CSN Login
Members Online: 11

You are here

Need some help with medication and no appetite

Paula G.'s picture
Paula G.
Posts: 596
Joined: Apr 2009

Hi everyone,
I need some help from all of you that have been on irinotecan plus 5-FU or Xeloda.
John is taking Xeloda and irinotecan plus the avastin every thee weeks. He just started this last Friday and Friday and Saturday we pretty good. Sunday was a big drop I thought is was the steroid they gave him. Monday rolls around and the diarrhea started so he is taking imodium AD for this but the bad part is he is not eating or drinking much at all. He had about 8oz. of water yesterday a small amount of oatmeal a half of bagel and just a little bit of a milk shake. He say he doesn't have an appetite at all.

Any suggestions? He won't drink ensure or any of the other drinks for nutrition. They did give him compazine and Ondansetron and Lorazepam for nausea. He took one compazine but says he really isn't nauseated. If you can help at all I would appreciate it. Paula

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Paula,

Get some prescription lomotil for the diarhea- it controls it much better than immodium. Immodium worked for me for a while, but then I had to change to lomotil. Now, even though I'm no longer on irinotecan, the xeloda causes diarhea and I still need lomotil at least 3-4 days a week.

I wish I could think of something helpful for the appetite other than marijuana. I have heard from so many people who have finally tried it that it's really the only thing that helps with getting the appetite back. I don't know if it's legal in your state or not or if you can get it or not but, if so, I would certainly try it. They have edibles and sprays, if you don't like the smoke, but I've heard smoking it is what works best. I've tried it a couple of times, but stopped because I really didn't need it anymore & also because I was too paranoid. Mainly I wasn't, but my husband was- even though medical mj is supposedly legal in California, the feds have been harrasing the local dispensaries, closing them down over ridiculous supposed violations, etc & I was afraid of ending up on the news. If my husband weren't so paranoid about it, I'd do it anyhow.
If you don't have that worry, I'd get it for your hubby- a cancer patient is the "poster child" of who can benefit and qualify for medical marijuana (that's what the doctor told me when i went to get my mj medical card last fall).

Lisa

AnneCan
Posts: 3692
Joined: Oct 2009

Hi Paula,

It sounds like I am on the same treatment as John (folfiri + avastin), except I have treatment every two weeks. I just had a treatment yesterday + found I couldn't eat too much last night. I am drinking a smoothie right now + I am thinking I'll have an omelette a little later. I find lemon flavoured drinks seem to work for me. Also macaroni + cheese seems easy to deal with when I am not feeling up to it - we do noodles + make a simple cheese sauce. The bottom line is whatever I am able to eat/drink the first 3-4 days is what I do. I try to eat pretty healthily but those first few days it's what appeals to me + making sure to drink lots of fluids. If this is John's 1st treatment of this "cocktail", he may find that after a few days, his aappetite may come back, as mine does. Best of luck with this!

Anonymous user (not verified)

This comment has been removed by the Moderator

coloCan
Posts: 1956
Joined: Oct 2009

be clear, flavored nutrition drink; was suggested to me by radiologist but I preferred Boost/Ensure/CVS Plus drinks. Diarrhea causes you to lose essential salts and other minerals so talk with 0nc. The BRAT diet is also recommended (banana,rice,applesause,toast, I think)...Hoping John's runs shortly solidify.....steve

coolvdub's picture
coolvdub
Posts: 410
Joined: Aug 2009

Hi Paula,

I have to agree with what Lisa told you about the Medical Marijauna, it was the only way I was able to eat some days. I don't know if you are in a MM friendly state, but if you are I highly recommend getting a card and doing it legaly. If not, I would still do it, just be careful.

Lisa,
If I can but into your business, if going to a co-op or dispensary bothers your husband. Would he be okay with a delivery service? That's how I get my M&M's as my wifes Aunt calls it. We just meet up usually at a fast food restaraunt. It works out really well for all involved. Maybe you can offer this up to the hubby as an acceptable compromise, I mean if it works for you and makes you more comfortable, surely he wouldn't deny you some relief.

Graci,
Great suggestion, I know all to well the phrase, you have to eat, eat something. And you are certainly right with your asessment, it does stress us to the max. We know we need to eat, we just can't. I mean we have cancer, it's not like our brains stopped working. We are just not able to eat. it's very hard to get somebody who isn't going through this to understand. But I like the idea of the of the Mega High calorie drinks. I have always had issues with my weight. I could put on weight, just thinking about food. Now I have a hard time maintaining it, a couple of weeks ago I was down to 140, down 100 pounds from my normal weight. It has taken a few weeks of eating like a pig to get back up to 155.

Don

PamPam2's picture
PamPam2
Posts: 376
Joined: Jan 2009

Hi Paula
I was drinking chocolate milk and milkshakes, then got diarrhea, the onc nurse said milk/dairy products can cause this, cause lactose intolerance, and this can become permanent if you continue to eat it. Keeping fluids in is very important, I found soda pop and water with some lemon or lime slices I could get down. While on the chemo I didn't focus too much on "healthy" foods, just ate whatever tasted good to me. I hope John will increase his fluid intake and can find some foods he will eat. Best to you both
Pam

Paula G.'s picture
Paula G.
Posts: 596
Joined: Apr 2009

Thanks guys,
He feels a bit better today. He did eat this morning and is drinking a little more. He won't do the ensure Boost stuff. He tried them at the start of all this when he first came out of the hospial for colon surgery. Just couldn't get them down.
As far as MJ I have thought of that but and this is a big issue, our 19 year old was smoking it in the house and we came unglued with him. We don't want him to think we think it is okay because he would abuse it. He also is 19 and thinks or I should say doesn't think. I worry every time he leaves the house that we will get a call from the cops. He always thinks he is smarter than everyone else. I just told him that all it is going to do is make him fat, stupid and lazy. All of which he doesn't need help with. Sorry I do love him with all my heart but I was 19 once and did smoke pot. I think at that age we all thought we were smarter than we really were.Oh and my dad was a cop. I really thought I had the wool pulled over his eyes. NOT!!! Well I guess at least know where I can score some.
I will just keep hoping that it will get better in a couple of days. Paula

PhillieG's picture
PhillieG
Posts: 4885
Joined: May 2005

I have not come face-face with the MJ and my 16 yr old son but he knows that I do not want him smoking it as a "kid". When he's older and wants to use it, I hope I'm around to share with him. So my situation is different since he is not actively smoking it. I think though that if he were that I would try to have him see the different situation your husband is in. He's not doing it for kicks, he would utilize the medicinal benefits from it. I know that we are "thinking like adults" as my son has said to me on occasion.

I hope you all are doing better
-phil

abrub's picture
abrub
Posts: 2088
Joined: Mar 2010

I understand that there is a medication: Marinol; which is an appetite-enhancer based on marijuana. A friend is on it to encourage her to eat. You can talk to John's dr about appetite enhancement.

coolvdub's picture
coolvdub
Posts: 410
Joined: Aug 2009

Paula,
I'm sorry the 19 year old has caused you such problems, That being said, it might be a good opportunity to teach your 19 year old that it can be used responsably. But I certainly do understand the position you guys are in. I have not used marinol so I can't speak to how good it does or doesn't work. But give it a try if you feel it may be a good alternative.

Don

Paula G.'s picture
Paula G.
Posts: 596
Joined: Apr 2009

Thanks I will ask the Dr. about the marinol. He has not ate anything but a little yogurt today.

taraHK
Posts: 1961
Joined: Aug 2003

I agree with what some others have said -- whatever he can tolerate or whatever appeals to him, he should eat -- just get calories in, somehow. I've just started chemo again and I'm facing this issue again. For me, "comfort food" helps, the first couple of days. And, eating several small meals (in fact, snacks), rather than 3 (or even 1!) big meal. Also high calorie snacks -- shortbread helped me!

Good luck with this.....

Tara

Anonymous user (not verified)

This comment has been removed by the Moderator

petppetp's picture
petppetp
Posts: 14
Joined: Nov 2008

tell your doc you want a prescription for 'megace' (also known as magestrol). they have it in pill form, and also in a concetrated liquid called 'megace ES'....which my mom prefers. one teaspoon a day and he wont be able to STOP eating...its amazing. i give it to my mom and every 2 hours she says shes hungry. and there are no side-effects either.
ask your doc if he/she has samples to give you, it comes in little bottles thats about a weeks supply.

cheers

Anonymous user (not verified)

This comment has been removed by the Moderator

Subscribe to Comments for "Need some help with medication and no appetite"