Jun 13, 2010 - 3:56 pm
I got phone call from the GI Coordinator at MD Anderson, Wednesday, to let me know the ball was rolling and to get some preliminary info from me. Was not expecting a second phone call Thursday at 5:30 pm telling me that I have an consult appointment with Dr. Cathy Eng on Tuesday, June 15 at 1:00 pm. Holy smokes!!! They requested all my biopsy slides, anal, liver and lung and want me to have a CAT scan before I come (bring CD with me). Got on the phone at 8:00 am Friday. Six hours later and everyone is working toward these goals. Many emails back and forth with Dr. Hoffe my RAD/Onc...she is a gem!!!.
Completed: CAT scan scheduled for Monday at 8:30, contrast picked up. Liver biopsy picked up from hospital pathologist. Plane reservations made: only first class available on such short notice. Two tickets to Houston, $1960.00. My dear friends, Julie and Danny, insisted they donate his frequent flyer miles to pay for them. Should have left us with a $200 processing fee, but the agent was kind enough to waive these as well. Final cost $10. Julie and Danny also insisted that I use his priority points for lodging. So Julie made my reservation at the Holiday Inn, 1/3 mile from the hospital. I am so blessed to have such loving and generous people in my life.
In progress: Moffitt working on preparing lung biopsy. Relunctant to release it to me, want to overnight it, I will be calling again tomorrow. Anal biopsy in storage 30 miles away, confirmation that it had been retrieved, and they will work toward getting it re-read (?) and delivered to the Tampa facility tomorrow a.m. so I can pick it up. Fingers crossed on all of this.
My best friend Teresa will be driving down from North Florida tomorrow (missing three days of work) to accompany me. Our flight out of Tampa is 6:35 pm. She is a seasoned traveler and I am so glad that she will be leading the way as I hear Houston is a ming boggler!!! We plan to return Tuesday evening as things stand right now.
Such high hopes for Dr. Eng to have a fresh perspective on treatment options. I will let you know something as soon as I can.
Blessings to all,