stage IV roll call

WinneyPooh
WinneyPooh Member Posts: 318
edited March 2014 in Colorectal Cancer #1
everyone, own members are not fairing to well or are we? I need to know, we all need to know

Here I go, the rest of you need to follow,

Age 44, Dx may 2009 stage iv, large primary tumor of the rectum, spread to liver, and most recently several varing size mets of predeim. abdomen wall, currently on chemo, for control
Docs are not anticipating surgery at this time (the short story)

Know for a cheer.

I got spirit yes I do I got spirit how about You?

Winney
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Comments

  • msccolon
    msccolon Member Posts: 1,917
    Here!
    Initial diagnosis stage IIIB August 2004, tumor in descending colon. First recurrence in 2006 to right ovary. Second multiple mets to abdominal area/organs in 2009. Third recurrence in late 2009 to liver. Currently watching as my CEA continues to climb, going to have to go into treatment of some kind in the near future.

    I got spirit, yes I do. I got spirit how about you?

    mary
  • impactzone
    impactzone Member Posts: 539 Member
    still here
    dx 9/06... 2 lung resections, liver resection and chemo... 51 years old and still teaching and coaching... next scan is in July
    Chip
  • Brenda3.16
    Brenda3.16 Member Posts: 209

    still here
    dx 9/06... 2 lung resections, liver resection and chemo... 51 years old and still teaching and coaching... next scan is in July
    Chip

    Here !
    DX 3/09. Mets to liver and lungs. Chemo for the last year. Surgery not an option at this point. Still teaching and running my 14 year old daughter around.

    Brenda
  • biglaur
    biglaur Member Posts: 72
    Stage IV June '08
    Chemo until February, then Xeloda til August, with cyberknife radiation thrown in late September. Age 58, colon resection Sept '06, recurrence June '08. I feel GREAT!!!!! Laurie
  • jillpls
    jillpls Member Posts: 238
    live stong!
    Dx in 2006 with IIIC rectal, one day before my 50th. Now I'm 53 had recurrence in 08 to lung and gut. Back on treatment until now and taking a break. I feel strong and good. My CEA was never out of normal so it's not a good detector for me. Only scans tell the story. JIll
  • geotina
    geotina Member Posts: 2,111
    George
    was diagnosed 3/30/09, age 60, advanced Stage IV, all size mets to liver and lungs, some quite large. Transverse colon resection 4/2/09, chemo Folfox 5/09, now on maintenance. Response to chemo was excellent. CEA was close to 900, now hovers around 16. Worked full time through Folfox and continues to do so. To date, no surgeries except colectomy, no radiation, etc. at this time.

    Tina
  • This comment has been removed by the Moderator
  • sheri22
    sheri22 Member Posts: 273
    My turn
    DX stage II 6 years ago didnt follow up after maintance chemo long story short started haveing pain in Nov 08 dx stage IV Jan 09 was on the pump now on XLODIA feeling good still working but only 2 days a week NEXT

    sHERI22
  • C Dixon
    C Dixon Member Posts: 201
    Hi Winney, I am here.
    Diagnosed Stage IV on Nov. 2008 with many mets to liver and three spots on my diaphragm. 12 rounds of foflfox. Clean scans. Went in for liver resection and active disease found on diaphragm still. Three weeks later in Sept of 2009 I had a HIPEC and just finished 12 rounds of Folfiri in mid-April. Scans are currently clean and my CEA ( good marker for me) was 0.95 today.
  • scouty
    scouty Member Posts: 1,965
    Still Present
    and accounted for!!!

    dxed stage IV Feb 04' with mets to liver and left lung. 5 1/2 years NED now (non-surgical remission to boot). Long story but if you are interested check out my profile stuff.

    and absolutely; spirit can kick cancer's bootie!!!

    Lisa P.
  • mom_2_3
    mom_2_3 Member Posts: 952
    Hi
    Nov 2008: diagnosed with Stage IV with 5 mets to the liver (both sides). Cancer discovered by chance during a c-section.

    Feb 2009: liver resection (40% of liver removed), colon resection, gallbladder removed and HAI pump implanted

    April 2009 - Nov 2009: adjuvant chemo (5FU systemic and FUDR in liver pump)

    May 2010: my 15 month scan since surgery still clean


    Amy
  • Lilmiss82
    Lilmiss82 Member Posts: 257
    mom_2_3 said:

    Hi
    Nov 2008: diagnosed with Stage IV with 5 mets to the liver (both sides). Cancer discovered by chance during a c-section.

    Feb 2009: liver resection (40% of liver removed), colon resection, gallbladder removed and HAI pump implanted

    April 2009 - Nov 2009: adjuvant chemo (5FU systemic and FUDR in liver pump)

    May 2010: my 15 month scan since surgery still clean


    Amy

    Count me in
    Diagnosed April 27,2009 stage IV (7 lymph nodes positive and 1 met to liver) age 27. Have endured chemo/ radiation june/ July '09. Rectal resection and liver resection September '09. Now on treatment #11 of folfox. Almost done !! Then will begin maintence chemo in July. Last ct was in February and all was clear hope to stay this way for a long time:)
  • crazylady
    crazylady Member Posts: 543
    still here
    dx March 2004 stage 2 rectal at age 46
    recurrence Oct. 2005 right lung
    has been in and out of both lungs since then
    currently on phase 2 drug trial

    I will be celebrating my 53rd bithday this week!
    Yes, I have plenty of spirit!

    Jamie
  • zenmonk
    zenmonk Member Posts: 198
    still kicking
    DX'd sept 2007 stage 1. Mets to liver 11 months later. Liver resection june 09. Scan yesterday. I hope its still good. Will know on wednesday but today I'm good to go.
  • abrub
    abrub Member Posts: 2,174 Member
    Dx 4/6/2007
    Stage IV Appendiceal Ca; mets to ovary, omentum, throughout peritoneum, outside of colon, both near (rt colon) and far (sigmoid colon) - double resection, including part of ileum

    Here and doing great. Currently NED (to be confirmed by visual (surgical)inspection next month.
  • lesvanb
    lesvanb Member Posts: 905
    still here too
    dx 5/08 stage 4a rectal cancer; 1 met to liver; resectable at dx
    radiation 28 tx xeloda/oxaliplatin 6/08
    LAR surgery 9/08
    R hepatectomy 10/08; NED after surgery
    FOLFOX 10 tx 12/08-5/09
    baseline PET/CT after surgeries/chemo 8/09; still NED after 3/10 CT scan!
    next PET/CT 6/10

    Leslie
  • scouty
    scouty Member Posts: 1,965
    crazylady said:

    still here
    dx March 2004 stage 2 rectal at age 46
    recurrence Oct. 2005 right lung
    has been in and out of both lungs since then
    currently on phase 2 drug trial

    I will be celebrating my 53rd bithday this week!
    Yes, I have plenty of spirit!

    Jamie

    Hey Girl!!!
    Good to hear from you and happy birfday!!!!

    Hope all the kids and grands are doing great too.
  • patsy1954
    patsy1954 Member Posts: 85
    Dx 4/09
    Dx Stage4 4/09 Lg tumor on transverse colon, 2 lg tumors on r lobe of liver, multiple lymph nodes that can't be removed

    5/09-10/09 Folfox
    11/09-2/10 Xeloda and Avastin as maintenance
    2/10 TACE procedure
    3/10 Bad news increase in tumor size on Xeloda
    3/10-4/10 on Folfiri and Avastin
    4/10 Bad news CEA and CTC markers are climbing, off FOLFIRI
    4/10 till now on Erbitux and CPT11 GOOD NEWS my CEA and CTC markers take a nosedive YEAH

    Been working full time since 12/09. Loving life and lviing it to the fullest.

    Pat
  • Geetar_Dave
    Geetar_Dave Member Posts: 7
    patsy1954 said:

    Dx 4/09
    Dx Stage4 4/09 Lg tumor on transverse colon, 2 lg tumors on r lobe of liver, multiple lymph nodes that can't be removed

    5/09-10/09 Folfox
    11/09-2/10 Xeloda and Avastin as maintenance
    2/10 TACE procedure
    3/10 Bad news increase in tumor size on Xeloda
    3/10-4/10 on Folfiri and Avastin
    4/10 Bad news CEA and CTC markers are climbing, off FOLFIRI
    4/10 till now on Erbitux and CPT11 GOOD NEWS my CEA and CTC markers take a nosedive YEAH

    Been working full time since 12/09. Loving life and lviing it to the fullest.

    Pat

    Livin' Large
    DX Jan 09, colectomy and liver resection. 12 rounds folfox to July 09. Bad neuropathy, finally getting better. Scan in Nov 09 showed 2 enlarged lymph nodes, started maintenance chemo without the oxi. CEA up to 31.7 from 18.8 last month. Scan scheduled for next week. Wish me luck.

    Still livin' large, though. 5k runs (ok, run/walk), biking, kayaking, playing music. Life is good!
  • Betsydoglover
    Betsydoglover Member Posts: 1,248
    Still here - diagnosed 5/2005
    Still here - diagnosed 5/05 with liver met.

    Sigmoid colectomy 6/05
    6 cycles Xeloda/oxaliplatin/Avastin - NED after 3 - stopped chemo 12/05
    Tiny lung nodule (9x11mm) shows up 11/08; removed via VATS 4/09
    6 cycles Xeloda/Avastin
    Continuing Avastin only every 3 weeks
    NED again since 4/09