Venting and Praising

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rrogers34
rrogers34 Member Posts: 135
edited March 2014 in Breast Cancer #1
Wow what roller coaster. So much has happened in my life this past few months. Now that I am done with Chemo. HOORAY, I am feeling more anxious? CANCER IS SO FRUSTRATING. I know I am lucky. I had this tiny little bump, no bigger than the size of my little fingernail, for months. Did exactly what the dr said and had it checked out by a surgical oncologist. FNB's, all okay. Ultrasounds all okay, mammo okay. It was there almost a YEAR! Being checked out.
I was told it was a fibroidadenoma. I asked if it was something that "turned" into Cancer and was told NO! It probably was all along. Still I was stage 1 Ductal Invasive. I felt lucky because though it has been there so long, I was still only stage 1. Then the next suprise..... I'm her2+. I asked if they did or would do an ONCO test. They said no. It wouldn't matter. I assume it is because I am her2+? Then I read about diet/nutrition, my onco said you cant eliminate soy completely from your diet and that I could have chinese food once in awhile, just dont go crazy with the soy sauce. The frustration is there are so MANY DIFFERENT OPINIONS out there. You dont know what to do? Then some say it's okay to take tomoxifen while doing Rads, then some say it is dangerous? What do you believe? How do you have confidence in anything? Then there is the pre-menopausal-or menopausal. They cant even agree on that? I was having regular cycles until my second chemo. I am having pains through out my body and start getting worried. What is it? Did it spread while on chemo? Did it not work? I'm having a re-excision to get wider margins, even though my margins were clear but close. I want clear and far away! Now I also have to change my anti-depression meds. From ZOloft to Effexor? I understand why but how? My Med Onco says just stop taking one and start taking the other? However, most say dont just stop taking those types of drugs. I'm so confused. I developed a seroma in my left breast which they will deal with during my re-excision. Has this happened to anyone? The seroma is in the inner side of my breast. The cancer was (hopefullY Was) in the outer lower part of my left breast. Just confused and scared right now. In the past few months, there has been one family who lost two family members within 2 weeks. One had cancer, went for his first Chemo, they did a scan after and he died. His father passed less than two weeks later. He too had cancer, but he died of a heart attack. My neice-in-law, just lost her Dad (57) this past weekend to liver cancer. They gave him two weeks. He made it three days. My Dad is very ill and there is nothing more they can do for him and we dont know how long he has. I'm sorry for venting. I felt like all I had was bad news. I know God is in control. I know I have to learn to let go. I just feel so out of control. I am usually the one that takes care of things and I cant do that right now. Thanks for listening. And to think I havent even started on tomoxifen which they say causes mood swings. LOL!

Comments

  • tgf
    tgf Member Posts: 950 Member
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    effexor
    I'm so sorry you are having to go through all of this ... and I know how concerned you must be ... now that they tell you you'll need to change antidepressants. I'm assuming you need to do that because you'll be on tamoxifen. I had to do the same thing. I had been taking wellbutrin and zoloft for years ... and was doing fine ... until I was told I'd need to change to effexor. I almost told the doctor that I'd take my chances ... and NOT go on tamoxifen ... but stay on my antidepressants. But ... he told me I MUST go on tamoxifen ... so ... I got the effexor prescription filled. And ... my oncologist had me stop one of the antidepressants I was taking (sorry ... but I forgot which one) and take effexor in its place for a couple of weeks. Then to stop the other and ONLY take effexor for a couple of weeks ... and all of that BEFORE I started tamoxifen. My switch-over worked fine... however ... it's been about 2 months now ... and I've found that I need a bit higher dosage of effexor ... but I'm doing fine. Maybe a gradual switch-over will be helpful to you too. Check with you doctor.

    hugs.
    teena
  • shortscake
    shortscake Member Posts: 228
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    i understand
    I understand when you have so much going on, I will keep you and your family in my payers you are so right god is in control...girl power
  • rrogers34
    rrogers34 Member Posts: 135
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    tgf said:

    effexor
    I'm so sorry you are having to go through all of this ... and I know how concerned you must be ... now that they tell you you'll need to change antidepressants. I'm assuming you need to do that because you'll be on tamoxifen. I had to do the same thing. I had been taking wellbutrin and zoloft for years ... and was doing fine ... until I was told I'd need to change to effexor. I almost told the doctor that I'd take my chances ... and NOT go on tamoxifen ... but stay on my antidepressants. But ... he told me I MUST go on tamoxifen ... so ... I got the effexor prescription filled. And ... my oncologist had me stop one of the antidepressants I was taking (sorry ... but I forgot which one) and take effexor in its place for a couple of weeks. Then to stop the other and ONLY take effexor for a couple of weeks ... and all of that BEFORE I started tamoxifen. My switch-over worked fine... however ... it's been about 2 months now ... and I've found that I need a bit higher dosage of effexor ... but I'm doing fine. Maybe a gradual switch-over will be helpful to you too. Check with you doctor.

    hugs.
    teena

    Thanks
    I will try that. Pray for me please. Can you believe I am still smoking? I am trying really hard to quit. I have to quit. Smoking and having cancer? Have I lost my mind?

    God bless all of you.
  • rrogers34
    rrogers34 Member Posts: 135
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    i understand
    I understand when you have so much going on, I will keep you and your family in my payers you are so right god is in control...girl power

    I feel like a baby
    Compared to all you have gone through, I feel like a baby. I think about you often shortscake. You are amazing. Thanks for your prayers and thoughts.

    God Bless
  • carkris
    carkris Member Posts: 4,553 Member
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    rrogers34 said:

    I feel like a baby
    Compared to all you have gone through, I feel like a baby. I think about you often shortscake. You are amazing. Thanks for your prayers and thoughts.

    God Bless

    I trust my rads onc and he
    I trust my rads onc and he said you can have tamoxifen during or after radiation. sorry about all the issues and hope it improves soon. shortcakes thinking of you too!!!!
  • Sher43009
    Sher43009 Member Posts: 602 Member
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    carkris said:

    I trust my rads onc and he
    I trust my rads onc and he said you can have tamoxifen during or after radiation. sorry about all the issues and hope it improves soon. shortcakes thinking of you too!!!!

    I'm also IDC as well as
    I'm also IDC as well as DCIS, stage 1C, ER/PR+ and HER2+. I also had to have a second surgery to get clear margins (this was done before chemo). I did 4 rounds of A/C with 1 round of taxol--I had a bad reaction so had to stop. 35 radiation treatments. I have Herceptin treatments every 3 weeks until Oct. My oncol. started me on Tamoxifen after radiation don't know why. I just started Effexor for the night sweats caused by the tamoxifen. I've never been on anti-depressants before and not crazy about the numbing effect it has on me but the night sweats are better. My oncol. also said that the ONCO test is not done unless you're boarderline HER2+. There was no question with me so I didn't have it done.

    I understand how you feel about the treatment confusion, I guess we just have to trust our medical team and pray it works. There is no control over cancer so I have to take a deep breath and go on faith.

    I wish you well.
    Sher
  • rrogers34
    rrogers34 Member Posts: 135
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    Sher43009 said:

    I'm also IDC as well as
    I'm also IDC as well as DCIS, stage 1C, ER/PR+ and HER2+. I also had to have a second surgery to get clear margins (this was done before chemo). I did 4 rounds of A/C with 1 round of taxol--I had a bad reaction so had to stop. 35 radiation treatments. I have Herceptin treatments every 3 weeks until Oct. My oncol. started me on Tamoxifen after radiation don't know why. I just started Effexor for the night sweats caused by the tamoxifen. I've never been on anti-depressants before and not crazy about the numbing effect it has on me but the night sweats are better. My oncol. also said that the ONCO test is not done unless you're boarderline HER2+. There was no question with me so I didn't have it done.

    I understand how you feel about the treatment confusion, I guess we just have to trust our medical team and pray it works. There is no control over cancer so I have to take a deep breath and go on faith.

    I wish you well.
    Sher

    Numbing Effect?
    What numbing effect? How was the second surgery compared to the first? I was fortunate to have clear margins, no node involvement, but when they said, Close but clear. I wanted far away and clear. LOL! My Onc seems to being going back and forth regarding when to start me on tomox. I plan to get that resolved within a week or two, since I wont begin radiation before I heal from the next surgery.

    God bless
    Becky
  • Sher43009
    Sher43009 Member Posts: 602 Member
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    rrogers34 said:

    Numbing Effect?
    What numbing effect? How was the second surgery compared to the first? I was fortunate to have clear margins, no node involvement, but when they said, Close but clear. I wanted far away and clear. LOL! My Onc seems to being going back and forth regarding when to start me on tomox. I plan to get that resolved within a week or two, since I wont begin radiation before I heal from the next surgery.

    God bless
    Becky

    Numbing effect may have been
    Numbing effect may have been the wrong expression. I feel like I'm in a fog, not really with it and sluggish. The surgery itself was easier with the second because I had local anesthesia instead of general like with the first. My second surgery was one week after my first so I was really tired afterward. I was back at work 9 days after the second one.

    Good luck with your surgery and let us know how you make out.
    Sher
  • Marlene_K
    Marlene_K Member Posts: 508
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    rrogers34 said:

    Thanks
    I will try that. Pray for me please. Can you believe I am still smoking? I am trying really hard to quit. I have to quit. Smoking and having cancer? Have I lost my mind?

    God bless all of you.

    Smoking
    I smoke too and feel like a COMPLETE idiot! I mean...really? I always told myself if ever I got any kind of medical diagnosis that could have been caused by smoking, that would be all I needed. I would quit on the spot! My father continued smoking after undergoing heart surgery and I thought he was nuts... "I would never do that", I thought. I have tried many times to quit since my diagnosis in June, only to be unsuccessful. My next, and hopefully my last, quit date is this Saturday, the 1st. It's my mom's birthday. She has passed, but I thought maybe it would be more meaningful if I dedicated my quit to her birthday. Just a note to share with you, I've read that women with breast cancer who continue to smoke after radiation have a much higher risk of getting lung cancer. Scary! Another thing someone told me and I haven't looked into it yet, but that smoking while on Tamoxifen is very dangerous because of the risk of blood clots and an increase due to smoking. Just some food for thought, as I need to keep this foremost in my addictive little mind. It's not easy, but it's time, for me at least. I'm not preaching by any means, Becky, I'm just reinforcing my own thoughts while sharing them with you! ♥♥♥