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Tomorrow is the day!!

weberdns
Posts: 156
Joined: Mar 2010

Having all kinds of emotions.....want to have it over, scared and terrified at the same time! It's the date of my first test shot for RI. Please pray that these Hurthle cells are not iodine resistant and are really hungry for the iodine and that this works! Wed is the body scan, Thursday is the full shot, and May 6'th is my last body scan! Wish me luck and that my family gets along ok without me being around and that I don't go stir crazy in the bedroom!!

sfl67
Posts: 55
Joined: Nov 2009

You and your family will continue to be in my thoughts throughout the week, and I think all will be well with you!

I think your confinement will go faster than you expect. By the time I did my bed linens and laundry each day, cleaned the bathroom, took at least two showers daily and prepared my meals, the day seemed to go quickly. Try to enjoy this time off and rest.

I wish you the very best and pray that you will have an excellent outcome. Please let us know.

Shelia

weberdns
Posts: 156
Joined: Mar 2010

Will keep you updated!

butterfly123
Posts: 52
Joined: Feb 2010

Sending positive thoughts and well wishes your way! Let us know how you make out.

weberdns
Posts: 156
Joined: Mar 2010

Thanks!

Here are a few posts from my message board and caringbridge page:
4/26/2010 - Just got back from the hospital. Blood work looks good:

TSH 73.9 - Only needed to be 30 to get the Radioactive iodine

Thyroglobulin 0.1 Only created by thyroid cells. If there aren't any this level will stay low

Thyroglobulin antibodies - Negative - Good

T4 - .10 - Very hypothyroid!

Taking this test shot was no more difficult than taking a vitamin. He did recommend Miralax for constipation for the test dose scan. I got 4
milicuries for the test dose.

Now off to rest....maybe some self hypnosis!!

Keep those prayers coming!! They are working! I can feel them! It was raining today. They say that when you marry on your wedding day, the angels are weeping with joy! I have this opinion about getting my treatment! The angels are weeping with joy that the time has come to get it, and that it WILL be successful!

weberdns
Posts: 156
Joined: Mar 2010

Wednesday, April 28, 2010 6:09 AM, EDT

Reach out and touch somebody's hand!

Thinki​ng this morning about how important love and touch is. My last personal touch was on Monday, it's now Wednesday, and all I want to do is hug the ones I love. I just want to hold out my hand and grab theirs....w​rap my arms around them and tell them how much I love them! Feel the warmth and security of a big pair of arms around me, telling me that everything is going to be all right!

Tod​ay is my first body scan. Hopefully it will show an iodine uptake into the cancer cells, and show that there is no metastas​is anywhere! They say that I will be allowed to be around people unti​l my next dose which is tomorrow afternoon. ​ Not sure what I will be able to do during my time out. I have 23 hours between my body scan and my full dose tomorrow. Guess that they will give me instruction​s today when I leave the hospital. B​ut I do know that the next dose will be tough.....c​raving touch after 2 days is tough.....7 days will be unbearable, but with the loving touc​h of God, and the arms of Jesus wrapped around me, and the warmth of the Holy Spirit in my heart I will get through it some how! Not to mention the support of my wonderful friends and family! But if they say I can give people hugs....you can rest assured people will be getting them today....st​arting with my family at home!

I also realized just how you can touch someone with your words and your love! So many of my wonderful friends I have never meet in real life....but we do share love! With a touch of my finger to a keypad I can send loving messages all over the world to people. It's just amazing!! I have often been asked how I can care for and talk to strangers....​people that I have never met in real life. I tell them if you don't do it you can't understand.​ These people aren't strangers! They are people who I love and care about. If I could physically hug them I would! I want all of my online friends, and family and friends who are far away that I love and care for each and every one of you and I am so thankful that God has brought you into my life! Each and every day I say a prayer and send you hug. So here is your hug for the day. Take it, and bask in the warmth! It's as real and genuine as the hugs that I give people in my physical life!

Your assignment today my friends is to hug the ones you love, pet your pets, and help someone in need! Not a tough assignment for the day! Reach out and touch somebody's hand....mak​e this a better plac​e if you can......Yo​u can do it.... know you can!!

Oh and to keep the prayers coming! First Body Scan today! Good iodine uptake, and no metastasis!​ Let's pray, hug someone, touch someone and together and make it a good day!!!

weberdns
Posts: 156
Joined: Mar 2010

Body scan done, but got no idea of the results. Tech said that we would have a preliminary report today, but the actual result will be given after the May 6'th body scan.

Was permitted out of my room yesterday. I had a wonderful time last night! The first person to get a big hug and kiss was my hubby in the waiting room!! Family dinner. We spent the evening talking in each other's arms! Lizzie had scouts, and I had a ride arranged for her, and then she joined the fun! The dog was also so happy as she was depressed and on a hunger strike while locked up. She's not going to like what happens for the next 7 days! I've had more hugs since 2:15 PM yesterday that I have had in months!! Crammed in a few more this AM before school with Lizzie! Can't imagine going back for another 7 but I'll do what I have to to save my life!

nasher
Posts: 507
Joined: Apr 2010

Your update is helping me through this day

as it stands right now this is the plan they have for me

Monday 03 May 0830 (RI-131 UPTAKE) 8 uCi of I-131 t1/2= 8 days
Tuesday 04 May 0830 (RI-123 UPTAKE) 2 mCi I-123 t1/2= 13.2 hours
Wednesday I will be getting the full body scan and then eithor on the 5th and or the 6th I will be getting the therapy dose.

and as soon after i get out and be able to write again I will also send up my update

weberdns
Posts: 156
Joined: Mar 2010

Hope that it works out for you, and that you won't have any problems!

weberdns
Posts: 156
Joined: Mar 2010

Good news! The scan at the lower dose showed only cells in the neck! No metastasis anywhere!!! Yippee!! Good news for the day! Big dose in! 125 mCi's. Now for the cells to enjoy their main course and die!! Of course keep those prayers coming that I have minimal side effects, and that nothing new shows up with the higher dose on the next scan!!

sfl67
Posts: 55
Joined: Nov 2009

weberdns

Your levels seem very good from what little I know. I felt many of the same emotions you are experiencing, though my daughters both live 100 miles from me in two different directions, but I certainly missed my husband and doggie during my isolation, especially at dinner time.

Our oldest is a RN and I think you said in an earlier post that you too are a nurse, so I think that gives you a very caring and loving spirit, two attributes necessary to be a good nurse. Our eldest turned 34 on April 26th, the day of your first injections, so it was easy for me to remember your schedule.

Remain positive and take advantage of this respite, knowing that it will be over very soon!

You and yours remain in my thoughts and prayers.

Shelia

weberdns
Posts: 156
Joined: Mar 2010

Happy birthday to your daughter! I am trying to be so positive and beat this! I'm doing it for my self and for all the people that I cared for that didn't beat it! I think that I have more to do to help people with cancer once I get over this! Can't wait to get this over and get on with my life! THank you so much!! Then I can get back to taking care of the kids in the school health office!

weberdns
Posts: 156
Joined: Mar 2010

They were REALLY confusing!! I had a lot of questions!!

1. Drink plenty of water and juice the first days following treatment.

2. No kissing or exchange of saliva, sharing of food or utensils.

3. Use speperate or disposable eting utensils and wash seperately. Wash dishes in dishwasher if available.
4. Use seperate towels and washcloths.
5. No close contact with others especially infants, young chldren, (under 8) or pregnant women.
a) Except for 10 minutes per day stay at least 6 feet away from others for the next 3 days.
b). On days 4 - 7 do not get closer than 3 feet from others.
6. Sleep in seperate beds
7. No breast feeding your baby. Do not breast feed after treatment as breast mil is excreted after the treatment.
8; Seperate bathroms if possible.
9 Wash bed linens and clothing seperately.
10. Flush toilet twice after use adn wash hands thoroughly. Men are encouraged to sit when urinating to avoid urine splashing.
11. It you are contemplating pregnancy wait 6 - 12 months
12. Wash out bath with soap or cleanser after tub or shower bath
13. Rinse out sink twice after use.
14. Do not use public gym or equipment at this tmie.
15 - Avoid contact with toys or personal objects of young children unless using gloves.
16. Do not prepare food for family member or young chilren unless wearing gloves.
17. Employed individuals may require additional intructionsn depending on job position and work environment.

These instructions are to be followed for 7 days.

Asked him about toothbrushes and mouth guards and he said that you should wash mouth guards, and there is no requirements for toothbrushes but that many people replace them on their own.

In the consent form it states that 10 - 30 % chance that treatment will not destroy all the functioning Thyroid tissue. Additional treatments may be necessary.

Complications include 1% chance of leukemia, 1% of significant bone marrow depression and a treansfusion may be necessary. 50% nausea and vomiting, 50% of damage to the salivary glands resulting in dryness of the mouth for several days. 20% chance of neck swelling, Decrease taste sensation for up to 1 year, You should not get pregnant for 12 months following I-131, and you should not 3eat for 60 minutes.

weberdns
Posts: 156
Joined: Mar 2010

Yesterday was a tougher day. Woke up with nausea and a headache. Both would come and go with Motrin and Ginger Ale. Also noticed that because of being hypo, my hands and face are swelling up and really puffy. My skin was blotchy. When I looked in the mirror I wondered who that lady was staring back! I had to take off my wedding rings as they were starting to get tight.....that was really tough to do...... Was more tired and took 2 naps yesterday. Went outside as it was warmer outside than inside, but was afraid that the sun combined with RAI might make me look like a lobster so I moved to the shady area of the front porch to read the paper and get some fresh air. Was still able to eat, but not as much as normally. But my spirits were still raised and I am still optomistic with my outlook for a long life and being cured of this!

weberdns
Posts: 156
Joined: Mar 2010

Happy Annniversary!!

Today is my 24'th anniversary with the most amazing man in the world....my soulmate, the one who completes me. The answer to my prayers! We are seperated by isolation, but our love will not be seperated! It can't be.....for he is a part of my life, and wherever he is a piece of me is always with him!!

I woke up this morning remembering the day 24 years ago. Looking at my big white dress hanging from the ceiling light fixture. Wondering what my life was going to be like....what the future will hold? In this day and age of divorce would we stick together??? I had more questions than answers at this time, but I knew that I was doing the right thing.....I had found the love of my life and we were going to start a life together!

There were a few hitches through the day (like the friend that I was living with who went out and I didn't have a key to get back into the house after my hair appointment.)....it was windy and in the 50's. When the keys for the car that we were using for the wedding party went to the reception without us, and we had to go to my friend's house close by and get another set so that we could use her car.

The ceremony was beautiful! A Cinderella wedding dream come true. Just like I always imagined it. The reception so much fun with all of our family and friend went way too quickly and was a blurr and before you knew it we were married and everything that took 6 months to perpare was over. It was time to start living our lives together.

Today pretty much started the same way. No there wasn't a dress, just a closed locked door and a room where I was all alone! Totally isolated from those that I loved! I had many of the same type of questions this morning that I had 24 years ago.....what will my future life be like??? Would we continue to be happy?? Will we continue to have a long life together?? Just what does the future hold for us?? Now it wasn't a white dress, a wedding ceremony, or a reception that was causing the questions. It was a diagnosis of cancer, and being totally isolated on such a special day! We've spent anniversaries apart because one of us was working, Dave had to travel on a business trip, together and looking at the car that I had wrecked the day before and counting our blessings, Once with me in the ER getting back X rays, once with him in the hospital having surgery (celebrated complete with cupcakes and non alcoholic sparkling grape juice_ , and now this! ( I know.....we need to watch out for this anniversary date! LOL!!) I do know that our love can get us through anything and that if we love each other and take things one day at a time, we can get through anything! We have a most amazing love together!!

But there is a love that is even stronger. The love of God! The one who brought us together, gives us strength when we are weak, the one who dries our tears when we are sad and carries us when we are weary!! So no more questions for today! We'll take it one day at a time knowing that we love each other and that God loves the both of us!! Happy anniversary darlin! I would love to hug my arms around you and not let you go....but soon......until that day......(which is Thursday by the way!) Don't forget how much I love you and how strong my love is for you! Nothing can break us! We will be together forever!

Sue

By the way still feeling ok with the RAI. STarted taking my allery medications and headache is gone. Still have some slight nausea, not hungry, and tired but doing pretty well!

weberdns
Posts: 156
Joined: Mar 2010

Never knew that I could be so tired! Even typing and reading tires me out. I need 2 naps a day, my fingers aren't moving the way that I want. I'll be done with my body scan on Thursday, but my endo wants me still on LID and off medication until 72 hours after the body scan. Oh man.....I am so tired.

nasher
Posts: 507
Joined: Apr 2010

good luck.. for me i got told i would have to be on LID for only 2 hours after my treatment .. if they take that back i am going to kill them... ok i will think about killing them cause i dont think i will have the energy to actually do anything but glare at them

weberdns
Posts: 156
Joined: Mar 2010

Found out that I could restart Synthroid and end LID 72 hours after my full dose. Since I couldn't eat because of the nausea I started on the Synthroid and found out hours later that I could eat real food....small portions and it was soooo good!! Feeling even better today with more energy! I was only a day behind so that is ok for the blood work as well!

weberdns
Posts: 156
Joined: Mar 2010

5/5/2010 Back on Synthroid and off the Yuck diet!

A friend wrote me today asking if I was feeling better..... I started writing to her after reading a book and felt that this would make a good journal article for today.....Here it is:

Believe it or not 100% better!! I am totally less tired than yesterday. My fingers are working better and even the computer doesn't exhaust me! I've now been up for 5 hours without a nap.....a record as of late! Figured out today why time is flying by so quickly! I was sleeping 14 hours a day leaving only 10 to do what I want. Read the paper, read a book, watch some TV or a DVD, get on the computer, talk with a friend....that pretty much takes care of the rest of the day!

Just found a phone number on the internet which may be the phone number of a friend of mine who doesn't know that I'm sick yet.....but she's been on my mind. Hopefully I didn't leave a message on the machine of a complete stranger, but they didn't have any names on the message, just the number. Hopefully it is her number. The next way to reach her is in a letter. I really miss her and want her to know what is going on in my life!

I just finished reading a book by Kristin Hannah (I've been reading her books as I heard that she was WONDERFUL!) It is called Firefly Lane. This book spoke to me personally........It is kinda the story of my life (with the exception of the rich famous best friend! LOL!!)) The main character even graduates high school in 1978 like me. Her kids are different, but she has many of the same feeling that I had at that age and throughout the book. Won't tell you the ending, but my life will be differnent than the books......but it really touched me in a way. Made me have a good cry of all the feelings that I have held in lately! Now I feel refreshed and ready to move onto a new chapter in my life after this scan! I know for a while, even if this is the last treatment that I need, that I will be in a secure place for years to come, but it isn't going to keep me from living my life to the fullest!

The book was a good catharsis for the past few months, and now it's time to take control of my life once again and use the things that I have learned through these past few months.

I've learned that I am stronger than I ever thought possible!

I've learned that I CAN control food.....I did it for a month because my life depended on it....I can do it again now!

I've learned that I have more people who care about me than I ever imagined, and I personally had an impact in their lives as well! I can go on reaching out to people in need and helping them in some way....touching and teaching them, as my friends have taught me! I've found time to let old friends back into my life and now I have to find a way to make the effort to keep them there.....it shouldn't be that they are around just for the crisis times, but for every stage of my life!

I know how much my family means to me and that I will fight hard to stay with them. I'm sad that I won't be able to see Lizzie perform at PNC Park with the chorus, but I can't control this! I need to be here for other big events in her life!

I don't know what God has planned for me in the future, but I sure am excited to find out!! Hope that you will continue this journey with me! The scan is on Thursday! More prayers that nothing shows up with the bigger dose! 26 more hours of isolation! Then look out world!! Here I come!

nasher
Posts: 507
Joined: Apr 2010

good to hear

myself i just got out today from the hospital and started on my Synthroid at 200mcg

they kicked me hard with the I-131 at 175mCi so i have a feeling what you got plus a little

im still trying to get over the being tired but i promised myself i was going to write and keep up with my message boards today while things are fresh in my mind

i am sore all over i ache all over and i have mostly gotten that wonderful metal taste out of my mouth. although a side effect i don't think i care for sour hard candies anymore.

hopeing you are doing well yourself

weberdns
Posts: 156
Joined: Mar 2010

I am doing great! Got 125 mCi's and less than 1 week after RAI I am back to work and worked 3 days this week! My scan came back negative with only thyroid in the neck.....no metastasis!! Yippee!! Thyroglobulin level and antibodies also came back negative so the 2 together are great signs! I'm celebrating my life! Loving my family ....and living in the world. I'm not sure that I'm not getting a mouth full of cold sores, or just irritation from the lemon candies....but I'm feeling great! My family is starting to recover from the stress that the past few months have brought us and I am now praying for their recovery. My husband is trying to juggle work, home, and my diagnosis and suffering from panic attacks. My son screwed up in school this semester, and needs to take 1 test and pass it to remain in college for another semester.....say a prayer for both of them. They both took my diagnosis really hard! My daughter was the resillient one....ended up with all A's and a B this term, and is now celebrating on a chorus trip to New York City!! I'm enjoying my life....continuing to learn more about myself.....and enjoying this time where for the first time in months I don't have to worry about my health! I'm taking it one day at a time, so I'm not going to worry about how long it will last.....it's lasting for today so I celebrate and embrace it!

IowaBo
Posts: 32
Joined: Feb 2010

Hi,
Just a thought about the cold sores. They are completely different from other mouth sores. I got sores kind of like canker sores inside my mouth. Doctor gave them some big long name, but they are stress related and not contagious. Then after the RAI I got sores on the edges of my mouth like they were very dry. They took a while to heal. I just kept using lip balm to keep moist. I also got a red streak across my face from the corner of my mouth. Luckily it went away after about a month. The corners of my mouth are still red though, but I can live with that.

weberdns
Posts: 156
Joined: Mar 2010

I did really well with the sores and didn't have a lot of problems with the RAI.

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