CSN Login
Members Online: 4

You are here

So far I wish I had my bag back

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Ether I’m stopped up and cant go or I go 20 or more times a day. Then when the feeling does come I got to run like hell or it ends up in my pants. So far I wish I had my bag back.

Brooks

Jaylo969
Posts: 827
Joined: Jan 2010

It will get better. Seriously, your body just has to make some adjustments.

As for me, I took 4 Dulcolax 3 1/2 hrs ago, have drank most of a 64 oz Gatorade/Miralax...and absolutely NOTHING has happened! I am about to vomit...just came onto the forum to take my mind off of this 'crap'. Sloshing when I walk..Yippee.

Hoping for a better outcome for you soon;)

-Pat

TxKayaker's picture
TxKayaker
Posts: 177
Joined: Jun 2009

Trust me I know what your going thru it will get back to normal just give it time.

khl8
Posts: 810
Joined: Nov 2009

Brooks,
It will get better! Remember back when you first had your surgery and had the illeostomy?
This took time to get used as well. I know it is hard not to be impatient but your body has been through hell. I have found that if I eat a salad every day it seems to keep everything moving along. I am 7 months out from the reversal and I can do anything and go anywhere without worrying about being near a bathroom. Remember too that your sphincter muscle needs to relearn how to hold things back again, it has not had to work in months and it will take some time. are you exercising that muscle? Try and clench that muscle multiple times of the day to get it working properly again. It takes time to figure out what foods to eat that won't stop you up and what foods to avoid the runs. Once you figure this out it will be alot easier.
Kathy

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Well… I think I may have messed up. I saw a great job on Craigslist last week and now they want to interview me. So I fly out tomorrow at 5pm to Albany Oregon for a interview on Friday at 1pm. I’m so worried about being on the plane for 3 hrs and pooping my paints or at the interview and having to jump up and run for the bathroom. Now what am I going to do?

khl8
Posts: 810
Joined: Nov 2009

are you having the no go or too much issue today? If too much, then you should be fine tomorrow. If no go then take something to get it moving tonight. Stress can play a big part in it too. You can do this Brooks! After everything you have been through you can conquer this. Go get em!

geotina's picture
geotina
Posts: 2118
Joined: Oct 2009

Now you know you have to go to the interview. To be on the safe side, now you may not like this, but Depends. They even got male or female ones. Now I know you are rolling your eyes about now but, well, just do it. Your 3 hour plane ride and interview will go much more smoothly if you are at ease and not worrying.

Take care - Tina

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

That's what my wife was saying. Look what I've been reduced to “Diapers” But at lest I’m alive to hug on my kids so I guess things could be worse.

Brooks

geotina's picture
geotina
Posts: 2118
Joined: Oct 2009

Maybe us gals would have an easier time with it. It is just temporary, for the trip, to give you a little more confidence in your travel and interview.

You are alive, you are NED, you are going to go back to work. Things are looking so good for you, this is just a little bump.

Take care - Tina

KFen725's picture
KFen725
Posts: 108
Joined: Jul 2009

How funny - Albany is just about 45 minutes up I-5 from where I live! It's a cute, quaint small town. Hope that your interview goes well.

Kelly

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

We'll have to do lunch someday. I would love to met and know a person from the area.

Brooks

abrub's picture
abrub
Posts: 2098
Joined: Mar 2010

And concerned because I have to travel home 4 hours by car and train that evening. My problems can begin right away or as late as 36 hours later, and last from 3 hours to an additional 5 days. I'm bringing depends with me for travel home. Usually the barium is the quicker acting, and I'm all right within a few hours. The gastrografen is notorious for starting problems at an unknown time after, and the gut problems last for me for 3-5 days.

I should be having barium this time, so I expect to be okay.

Best bet is to be prepared. I needed Depends in the hospital, as my gut gave no warnings, so much as I dread the idea, I realize that my body isn't always going to be predictable, and I must deal accordingly.

AnneCan
Posts: 3692
Joined: Oct 2009

Brooks,

I hope this issue resolves itself soon. Good luck with the job interview + congratulations on following your dreams!

Marauders99's picture
Marauders99
Posts: 22
Joined: Feb 2010

Brooks,
It IS frustrating. Like everyone is saying things will start moving towards being normal again...though never quite exactly like it was. I wish I had some advice for you about your interview. Getting the interview must have been a great feeling. I hope things are controllable for you during the trip. Give it your best, that's all you can ask of yourself.

lizzydavis's picture
lizzydavis
Posts: 893
Joined: May 2009

Brooks, I completely understand. I hesitated going out of the house at all. Sometimes I would get out of the drive way to only drive back in to go to the bathroom. It has improved quite a bit.

- I suggest eating very little and very bland food such as dry toast, bananas, etc. for the trip. Immodium was wonderful for helping me. They do not want you to take too much of it (never everyday). It really works for me.

Good luck and let us know how it goes. We are pulling for you!

(Did you get my email?)

Lizzy

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Brooks,

I feel your pain, man. I didn't have a bag, but because of my IBS, I have had problems since my resection. I have to take Miralax twice a day and eat a bunch of fiber and take probiotics every day, or I get all backed up. Occasionally, though, and I never know when it will go like this, I have the OOPS moments where I realize I have to go to the bathroom NOW. Usually happens when I'm in the car and can't find a bathroom. I told my doctor that I feel like I have no control over my life now. And I have pain every day. I often contemplate dropping all the medicine and just drinking gallons of water and hoping it works out.

Go for the job!!! You deserve a new, wonderful chapter in your life!! I'll be praying for you.

*hugs*
Gail

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Now I got the fire poop... burns like a SOB... CRAZY!!!

eric38's picture
eric38
Posts: 588
Joined: May 2009

Fire poop? Ouch! Do you want me to call the fire department? I bet they have a hose that will put that fire out.

Eric

coloCan
Posts: 1956
Joined: Oct 2009

wave one over your reopened *** to remind it what to do......Hope things come out allright real soon......steve( Who else)

Known as assinine humor

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Brooks,

The last time I was hospitalized it was for "fire poop." I spent a night in the bathroom going, "Oh, God. Oh, God." Finally called my doctor's office and told them I felt like I was dying. I had rectal spasms, and it was PAINFUL. Several days of morphine and bed rest, and I decided to live.

*hugs*
Gail

abrub's picture
abrub
Posts: 2098
Joined: Mar 2010

Not "fire poop" per se, but developed an anal fissure that had me in tears every time I went to the bathroom and moaning in fetal position for several hours thereafter. I had it for a long time, as it was caused my chemo and wouldn't heal until I was done with chemo (one of the rare side effects of 5FU.) About 4 weeks after chemo ended, I could go without dread and tears.

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Desitin!

That works wonders for firey butt.

Good luck with the job prospect. This too shall 'pass'.

Honestly, tho, I know nothing about this but hope it gets back to the old normal very soon.

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Hang in there, Brooks

Time is the big healer - your bowel has been jerked one way and then another - it's trying to find which way to go. It will re-learn, but takes some time.

I don't blame you about being apprehensive on the plane - those "water closets" aren't good on a good day - I was 2 years from my surgery before I boarded a plane, and had the same anxieties that you did - nothing happened fortunately - but if it had, oh baby...

Good luck on your interview - maybe it will all go down in your "off moments" and when it's over, then...

Cross your legs, LOL:)

-Craig

Aud's picture
Aud
Posts: 480
Joined: Oct 2009

sorry you're going through this. I think Craig is right. Time will make it better. Good luck with your interview.
~Aud

dschreffler's picture
dschreffler
Posts: 58
Joined: Apr 2010

I'm wishing you the best. How far along are you from when you had the reversal? Is it recent?

grammadebbie's picture
grammadebbie
Posts: 429
Joined: Jun 2009

Dear Brooks,

So sorry you are having such a rough time. Hopefully with each passing day you will improve. You have fought so hard to get to this point...keep it up friend. We're all pulling for you.

Blessings and Big Hugs,

Debbie

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

...Exactly the reason why I am so afraid to get my takedown. I don't have the patience to retrain, it could take way too long, and just happy with the bag I guess! I hope it does get better for you sweety, don't give up, you can be one that has no problems after a few weeks, just give it time. No spicy foods, just watch what you eat as well.

We may not be able to share any cool bag busting stories for awhile, but at least now you can trade retraining stories LOL!

Hugsss!
~Donna

RickMurtagh's picture
RickMurtagh
Posts: 584
Joined: Feb 2010

I just got home from takedown today, so I can't say I know what you mean, but for you it has been just a few weeks post takedown. There are still lots of adjustments to make.

My wife found something that is intriguing. Hard to explain, but they are hmmm, might as well just say it, manly panty liners. They work with boxer/briefs. They are just fill the crotch and so far my slightly enlarged groin area has not been noticeable. I like them. When wearing them with speedos I would look more manly. Now to do something about that faint, wafting smell of poo.

So far I have been able to hold back the tides of flood waters. I was improving nicely until I had mac and cheese in the hospital. They said I could go home if the noon meal went ok. I did what anyone would do, I lied and said things were great. I am home now and that is what matters to me. I took a nice long nap when I got home and feel greatish now.

Did they just leave a whole i you where you ostomy was? Freaks me out, took my first shower today. Felt great.

Dude, I am so sorry to hear you have not been able to regulate things well enough to make it all manageable. Plus I was hoping for some Brooks, Words of Wisdom on the subject.

Been using all the standard stuff, Tucks, a barrier of some kind, soft soft soft wipes and some soft soft soft TP? I hate having to take ten extra minutes every time I drop a load, but so far it has been manageable and I am happy I had the takedown done. I hope you find something that works!

very best wishes

Rick

khl8
Posts: 810
Joined: Nov 2009

Rick,
Congrats on the reversal. How are you doing? I came home with the hole, i kept it covered with a gauze bandage, it took mine about a month before it closed.
Kathy

RickMurtagh's picture
RickMurtagh
Posts: 584
Joined: Feb 2010

it has only been two days but aside from being tired, I am doing well. I even drove to a store and got a new cell phone today. I fear the worst is ahead, but I have made all my preparations ahead of time with great info from all the great people on this forum.

I have found one huge advantage over the bag - it now takes me seconds to poop, where with the bag it took a long time with cleanup and all. Still going pretty frequently and it is still all loose, but hopefully I will see changes here in the near future.

khl8
Posts: 810
Joined: Nov 2009

you're going and that is a good thing. Just watch your diet and be prepared for an "oops" and you will be fine. The hardest part is coming to the realization that you will never be the same as you were before, but I am ok with it and so happy to get rid of the bag. It has helped my self esteem to be able to look in the mirror and just see the scars instead of a bag of poo hanging there. And one of the best parts, being able to sleep anyway that I want without the fear of the bag breaking open if I laid on it!

AnneCan
Posts: 3692
Joined: Oct 2009

Rick,

I am glad it is going well so far; good for you!

Subscribe to Comments for "So far I wish I had my bag back"