Update on Caballero38 AKA- Luis Rodriguez

A huge hug from Vegas
I have been thinking about you sooooo very much. You know, we are all waiting to die, that is something that I have learned in this journey. Most of us just don't know it. Even if I have my husband 30 more years and we are aged--I will feel it is not enough time. I got to thinking, when am I willing to give him up gracefully...never. Never.

What is most important is that you are feeling great right NOW. And you seem to be! That brings a smile to my face. And today you have today. And that is all we are ever promised. Look at Mark on the ACOR list...beat cancer, only to run off the road and die in a car accident too young. We have today, and only today.

I am glad you are coming here, and updating us. We miss hearing from you. I wish I could wave a magic want and (a) bring us all closer together physically so we could hug in person and (b) remove the cancer from each person. But I cannot. I can tell you though, Luis, that there is more to life than that which we see. There is a future and a hope. There is a God who holds you and who died for you and loves you. And I am praying he will make himself visible to you in ways I can only imagine. I pray that you and He are walking this journey together. I know He has been there to catch me the many times I have fallen on this terrifying walk...

I don't have answers either, but I do have love, and I can give that to you...

(sending a huge virtual hug)
Betty

Donna70 said:

Luis, glad to hear from you!!
Have been wondering what is going on with you. Sorry that it is not the news we would all like to hear that you are treatable. Betty has it right we are waiting to die, some of us have more of an idea of how close it can be. Hope the Hospice is treating you right. Do you have much family where you are? I hope so and each day is a gift but I sure wish it did not turn out this way for you. When I think of you and Al going thru the surgery only to find it in the bones, it makes me wonder if the drs could not check bones really good before the patient endures the surgery and in your case 2, before they operate. You are a brave man and have put up with so much, my prayers have been ongoing for you and all of us here and I will keep it up. Thanks so much for reaching out and telling us what is going on. Prayers always,
Donna70

Hi Luis
I am so sorry to here about what has been going on with you!!! Thank your for letting us know.

I am at a loss for words. I know exactly what you going through. This is very difficult for me to post it is hitting me to close to home.

Please try to keep your spirits up and give us an up date when you can.

My prayers are with you.

God Bless,
Kath

Luis it is good to hear from
Luis it is good to hear from you even though it is not what I had hoped to hear. We all want to be on the outside of the bell curve but....

I don't know if you followed my posts about Paul or not but here is the very short version.
After completing chemo and radiation he went into liver failure. He couldn't tolerate any more chemo. We found ourselves in hospice by defult, it was not a choice. Since he was not able to get treatment, we may as well take advantage of the hospice care which is much better than just having home health.

One of the first things the nurses told us was to forget what the doctors had told us, hospice patients don't follow the rules. At one point Paul was told maybe a couple of days, he lived 3 weeks. I was told to expect pain, there really was'nt any. The liver failure resulted in a euphoria and he was a joy to be around.. There was a woman at the hospice facility with ovarian cancer, she was there 14 months. There are poeople who improve and leave hospice care, two patients left while we were there. The nurses were right, no one knows what comes next, or even what to expect (and we usually expect the worse).

As long as you feel fine, enjoy it. You may suprise youself and find you have more "good" time than you think. One of the nice aspects of hospice was that there were no more emergencies, and this simple thing really helped us enjoy out time.

If you are up to it, please keep us posted.

Take care,

Susan

oriontj said:

Luis, I'm so sorry that this
Luis, I'm so sorry that this is happening to you...All I can say is I will pray for you and trust our Lord to carry you and be with you this difficult time...

orion

Hi Luis
CSN have not forget you.

My daugther and I have included you in our daily prayers.

Always hope and Faith,

Only God knows.

God Bless you,

Yovana

Caballero38 said:

Thank you all for your encouraging words
Thank you all for your posts.  It warms my heart that u rememberl
me and have me in your prayers.  I told you all I felt I was just waiting.  May not be exactly what I ment to say.  I "feel" that they have me just waiting,  but no, I'm still living my life.  In fact I just got back from a mini vacation.  I stayed at a local Casino Resort for a couple of nights and I had a lot of fun.  I suprised my family because I look and feel great.  And I do feel great, I am eating too much by mouth now, I'm not using the feeding tube (-;

my only complaint today is my next is still tired. It is still too heavy to hold without a brace.  It's not that bad, I just have to where the brace.

Again, thanks for listening to me.

I haven't posted earlier because it does choke me up everytime I read the post. It warms my heart thank you thank you.  

I will keep you posted, I am not expecting any changes that's why I'm invinting some people.  Anyways now I feel I'm not making any sence.!!  Good night!!!

Luis, You are so inspiring!
Luis,

I am so glad to hear from you. You are so full of spirit and life, SUCH AN INSPIRATION!

My thoughts and prayers have been with you....Hang in there, honey.

Please keep in touch. We all care very much.

Hugs and prayers,
Trish