Has your doctor done something extra special?

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TraciInLA
TraciInLA Member Posts: 1,994 Member
edited March 2014 in Breast Cancer #1
We often post our frustrations and problems with our doctors here, but Joyce's post about her PCP inspired me, and I thought we could all use a positive weekend thread for some encouraging warm fuzzies:

Has one of your doctors gone out of his/her way to do something special for you? Or maybe said something especially kind or encouraging that stuck with you and helped you?

If you have any stories like this, please share it with us!

Traci

Comments

  • DianaLou
    DianaLou Member Posts: 30
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    My doctors special act
    Last November I had an appointment with my onc doc, who, as it turned out, had to be away from the office for the day. Apparently there was a mix up at her office and I didn't get a message advising me of such. I went to the appointment and as seen by her nurse practitioner and it was not a problem at all to me. Any way, the next week on the day before Thanksgiving I received a beautiful floral table arrangement from her , along with a note of apology. Now how many doctors do you think would do that. She is a gem!!!
  • sparky72156
    sparky72156 Member Posts: 61
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    My oncologist, frustrated
    My oncologist, frustrated with the staff at the plastic surgeon's office, called the surgeon and told him that he needed to call me. This was in response to the office telling me that I had to wait a week to get in to see the surgeon so that I could ask 3 short questions, and that they wouldn't schedule the surgery until I had talked to him. My oncologist said "That is unacceptable", and had the surgeon call me that night! Because of him, the surgery could be scheduled for that week!!! He knew the kind of pressure I was under and he found a way to alleviate it. Also, he called me once just to see how I was tolerating some steroids that I needed to be on prior to surgery. I just love him!
  • Dawne.Hope
    Dawne.Hope Member Posts: 823
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    My oncologist, frustrated
    My oncologist, frustrated with the staff at the plastic surgeon's office, called the surgeon and told him that he needed to call me. This was in response to the office telling me that I had to wait a week to get in to see the surgeon so that I could ask 3 short questions, and that they wouldn't schedule the surgery until I had talked to him. My oncologist said "That is unacceptable", and had the surgeon call me that night! Because of him, the surgery could be scheduled for that week!!! He knew the kind of pressure I was under and he found a way to alleviate it. Also, he called me once just to see how I was tolerating some steroids that I needed to be on prior to surgery. I just love him!

    Here is a couple:
    1) On my first meeting with my onocologist I was absolutely terrified! I waited and waited and when she finally came in I felt like the gauntlet was going to drop on my head. She looked at my intently and said, "Get off the table and sit in this chair. You are not a patient, you are a person." Wow. Talk about a wave of relief that washed over me at that point!

    2) When I was deciding whether I wanted a masectomy or radiation I went to see a radiation onocologist. He spent no less than an hour and a half listening, answering every single one of my questions with brutal honesty. I've never had a doctor spent such quality time with me.

    There are some good doctors out there. Keep looking 'til you find one.
  • laurissa
    laurissa Member Posts: 773
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    Hi Traci
    My surgeon is the nicest man. He's the one that diagnosed me. Mammo, ultrasound and biopsy the first day I went to him, though I had to wait 2 days for results. He gave his home phone number to call at anytime. He did my lumpectomy and I'm cancer free now. Whenever I thank him he says "no, thank God" He's the one that did it. He takes no credit at all. In his waiting room, he has a framed painted picture on the wall of a surgeon operating with Jesus standing behind him watching over him. I was in good hands.
  • New Flower
    New Flower Member Posts: 4,294
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    laurissa said:

    Hi Traci
    My surgeon is the nicest man. He's the one that diagnosed me. Mammo, ultrasound and biopsy the first day I went to him, though I had to wait 2 days for results. He gave his home phone number to call at anytime. He did my lumpectomy and I'm cancer free now. Whenever I thank him he says "no, thank God" He's the one that did it. He takes no credit at all. In his waiting room, he has a framed painted picture on the wall of a surgeon operating with Jesus standing behind him watching over him. I was in good hands.

    Great idea
    I will think about it. Having almost 14 doc through my treatment I can find several good ones.
  • Youcandothis
    Youcandothis Member Posts: 79
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    Great idea
    I will think about it. Having almost 14 doc through my treatment I can find several good ones.

    Oh my yes indeed
    1. My internist has her office in the same building as my oncologist. She actually came down to the chemo suite to spend time with me during my second infusion.
    2. My onc spent plenty of time explaining the process. The protocol in the chemo suite is that every time they put something into your iv they tell you what it is: "this is first, it's for nausea...here's the cytoxin" etc. When I had a terrible time after first treatment she reduced dosage by 10% and told me a little adjustment was common and wouldn't affect the efficacy of the treatment.
    3. Everyone, without exception, in the rad onc suite was encouraging and engaged. I hated lying there exposed but their high level of professionalism made it so much easier.
  • MGNS
    MGNS Member Posts: 197 Member
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    Oh my yes indeed
    1. My internist has her office in the same building as my oncologist. She actually came down to the chemo suite to spend time with me during my second infusion.
    2. My onc spent plenty of time explaining the process. The protocol in the chemo suite is that every time they put something into your iv they tell you what it is: "this is first, it's for nausea...here's the cytoxin" etc. When I had a terrible time after first treatment she reduced dosage by 10% and told me a little adjustment was common and wouldn't affect the efficacy of the treatment.
    3. Everyone, without exception, in the rad onc suite was encouraging and engaged. I hated lying there exposed but their high level of professionalism made it so much easier.

    When I was first diagnnosed
    When I was first diagnnosed my internist sat down with me and listened as well as talked to me without any time restraints. She told me to call her at any time, day or night if I had any questions or just wanted someone to talk to. She even made a note on my chart for her staff that if I called to put me through to her immediately. I was so touched by her care and compassion that I knew that I could make it through this detour in my life. She is a blessing!
  • mariam_11_09
    mariam_11_09 Member Posts: 691
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    All my doctors have been

    All my doctors have been absolutely wonderful and caring. I have spent so much time outside of Western medicine hearing horrible stories about how uncaring and inconsiderate western doctors are. However my experience has been the exact opposite and although there have been some hiccups along the way, I trust the judgement of each of my doctors - the breast surgeon, the plastic sugeon and the Oncologist, even the port surgeon is a sweetheart and all very respectful and go out of their way to ensure my comfort and safety. I feel indebted to each one of these doctors.

    I went to see the Oncologise because it appeared that the port scars were infected. After looking it at it he told me I needed to see the port surgeon (cardio thoraxic surgeon), however instead of getting me to make an appointment to go see him, he called the port surgeon and asked him to come done right away to see me which he did, in less than 5 minutes (all my doctors are in the same building). This was super convenient for me and it saved me so much time.

    Oh and another thing I am so impressed by, is that all my health information is on the computer, so any doctor I see at the clinic (Palo Alto Medical Foundation) has access to my records right then. When I was first diagnosed, each doctor I met had spent time studying my case and were familiar with it before I got to see them.

    For me, the cancer experience has been made so much easier by these great doctors.
  • ms_independent
    ms_independent Member Posts: 214
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    My oncologic breast surgeon
    My oncologic breast surgeon is the sweetest woman. she spent a lot of time with us explaining what they had discovered and what options we had to fight it. As I stood up to leave she gave me the greatest hug---the close kind that makes you feel safe and cared for. After the surgery and pathology reports came back she gave us the good news---no further treatment was needed. she was grinning ear to ear and gave me another of those caring hugs. I'm so fortunate that I don't need more treatment but, I really miss her.

    El
  • aztec45
    aztec45 Member Posts: 757
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    Good Post
    I like your post. Accentuate the positive. My Radiation Doc came in on Saturday and Sunday to help get me caught up with my radiation treatments. I kept missing them due to the job. He is the greatest guy. Always nice and upbeat. I told him to bottle up his energy and give it to me.

    P
  • Mama G
    Mama G Member Posts: 762
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    aztec45 said:

    Good Post
    I like your post. Accentuate the positive. My Radiation Doc came in on Saturday and Sunday to help get me caught up with my radiation treatments. I kept missing them due to the job. He is the greatest guy. Always nice and upbeat. I told him to bottle up his energy and give it to me.

    P

    My onc is a 17 year bc survivor!
    and when she met me she hugged me! The first onc I went to gave me all the nasty stats and told me I might as well be triple negative and said it with a really negative tone of voice.
    When Dr. Scott saw my chart and saw the 5% positive ER she hugged me and said "Thank goodness you have that! Now you can have more treatments!"
  • chenheart
    chenheart Member Posts: 5,159
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    My oncologist has the
    My oncologist has the bedside manner of a slug...he is dismissive and I honestly think that after 7 years he should know my name ( but doesn't)...and the ONLY thing he ever says to me is that whatever exercise I am doing ( I jazzercise, walk my dog an hour a day, do 5 and 10 Ks as well as half marathons) he always says evidently it isn't enough, as I am still overweight. GRRRRRRR. I have gained 15 lbs since my diagnosis in 2003....went from a size 9 to an 11-12 and I never hear the end of it from him.

    But the Good Thing he did? He prescribed the correct chemo cocktail for me, and I am in remission for 7 years now~ I would have loved hearts, flowers, fellow feelings and camaraderie to be sure...but I am accepting LIFE over his non existant empathy!

    With a glass half full of hugs!

    Chen♥
  • sbmly53
    sbmly53 Member Posts: 1,522
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    Well....
    It was the usual annual gyn exam , my Doc - whom I absolutely love - exited the room and I being in a hurry, quickly started to gather up clothes. But I stepped on a tiny sliver of glass and yelled "OUCH!". Dr opened up the door and asked if I was okay. I was naked clutching my clothes and trying to tweeze the glass out with my fingernails. Stupid thing was bleeding like crazy. He got the glass out and was so upset that it was there anyway...

    So I was about 53 at the time and gravity being what it is and all, I was mortally embarassed. Doc has seen me naked from the waist up and the waist down - but always lying flat. He got the whole picture that day!

    This is the same man who referred me to the worst surgeon on the face of the earth about 11 years ago (for a simple non BC breast surgery). Never had a problem/complaint with him before me). When I came crying into his office because of the outcome plus his double billing that insurance wouldn't pay, he personally called the surgeon and that was that.

    In October, he called me and said "My Dear, I don't have good news..." He followed up with phone calls, had his nurse, a BC survivor call me. His many kindnesses through the years (about 22!) have always been appreciated. Every year I ask him if he is planning to retire and he squeezes my knee and says 'No, we have a standing date.'

    Sue
  • Cairmaid
    Cairmaid Member Posts: 64
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    Wonderful medical staff all around
    I've been blessed with wonderful medical staff all through my experience, from mammogram to surgery to radiation to oncology to pharmacy. There isn't room to tell all the wonderful experiences but a few instances stand out:

    Dr. Will E., who did my biopsy and had already made an appointment with the surgeon for me when he called me with the results.

    Dr. Mary M, my surgeon, who explained everything and listened closely enough to figure out that my boss is her neighbor.

    Chad, the radiology technician who met me at the door twice a day for 5 days for my radiation treatments and always asked how I was...and really wanted to know.

    Dr. Jeff, the nuclear physicist who gave me my radiation treatments and who laughed and said, "Robbie?" when I asked if the robot had a name.

    Dr. Kathleen S., radiation oncologist, who seemed distant at first but she was almost in tears when I experienced pain while she was removing the brachytherapy balloon.

    Dr. Mary V, my medical oncologist who emailed my surgeon with a post-surgery question I had and who, on my second visit, remembered my husband's name and where my son lives.

    My pharmacist who went out of his way to figure out how to save me even more money on my prescription.
  • RE
    RE Member Posts: 4,591 Member
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    Great Question
    About 10 or so years ago when my older sister had her second battle with breast cancer she had the gene testing done and found out she was a carrier of the bc gene. She then contacted my baby sister and encouraged her to have both breasts removed and to get a complete hysterectomy, she was 31 at the time and not sure that was a good idea since she was healthy. My sister called my oncologist and explained to his receptionist that she was my sister and her concern regarding my older sister's suggestion then asked if she could have an apt. for a consultation with him knowing how much I value his opinion. The nurse put her on hold and the next thing she knew she was talking to my oncologist. He spent 45 minutes going over her health history reassuring her in his opinion it was not necessary to at that time to undergo such surgery and he volunteered to have her blood work done to check her cancer markers which came back fine. He did not bill her for his time or his lab work, he simply was being kind to someone in need.

    RE
  • Whoknowz
    Whoknowz Member Posts: 82
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    Good idea Traci
    It's so much more fun to focus on the positive! I've had wonderful doctors thru this journey. I honestly wasn't expecting much. Doctors have seemed to become more impersonal and rushed the last ten years or so. My husband died of cancer several years ago and there were few warm fuzzy moments.

    My PCP got me in quickly when I called and said I found a lump in my breast. She spent a lot of time talking to me about the possibilities, told me she'd get me in for a mammogram within 24 hours and no matter what it said she wanted me to see someone in a particular surgeon group within a week for a second opinion. Then she asked if I minded if we had a prayer. I usually keep my prayer time private and don't discuss religion, but I was touched by the warm, caring and nurturing actions she and the nurse were taking. We had a prayer, hugs, and I let her office ar about 6 pm. By 8:15 the next morning I had the mammogram and surgical consultation appointments exactly as she had said.

    The surgeon blew me away. The first ten minutes or so were like any two people getting to know each other. Then I got on the table and she looked at the mammogram after the exam. She had them redo her schedule so she could do a biopsy immediately. She said she'd rush the results and she did. She did the biopsy Thursday and called me Monday. She wanted me to come in the next morning to talk about the options. When I said I had a previous obligation she simply offered to meet me at 6:30 am. She involved the 2 friends who went with me, giving them assignments to do. She was a jewel and always treated me like a new friend. I missed her when I moved past the surgical stage.

    My oncologist started out just like the surgeon, taking time to get to know me before any physical exam or medical discussion. When I have run into her in the medical building she knows exactly who I am. My first day of chemo she came in with funny stories and a lot of reassurance to help me relax.

    My radiation oncologist also took the personal route but not as completely as the other two. He has been more distanced but very approachable, warm and funny.

    These four have always made me feel that this is doable and that they are right there with me. They have encouraged me, praised me, and helped me to remember to laugh and enjoy life. From the stories here, there are many really good doctors out there who are practicing medicine not just taking patients.
  • Taina
    Taina Member Posts: 166
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    laurissa said:

    Hi Traci
    My surgeon is the nicest man. He's the one that diagnosed me. Mammo, ultrasound and biopsy the first day I went to him, though I had to wait 2 days for results. He gave his home phone number to call at anytime. He did my lumpectomy and I'm cancer free now. Whenever I thank him he says "no, thank God" He's the one that did it. He takes no credit at all. In his waiting room, he has a framed painted picture on the wall of a surgeon operating with Jesus standing behind him watching over him. I was in good hands.

    beautiful
    Traci......
    sounds like God worked thru your doctors hands....
    May God keeps blesing you and your doctor....
  • Sharon_D
    Sharon_D Member Posts: 55
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    Whoknowz said:

    Good idea Traci
    It's so much more fun to focus on the positive! I've had wonderful doctors thru this journey. I honestly wasn't expecting much. Doctors have seemed to become more impersonal and rushed the last ten years or so. My husband died of cancer several years ago and there were few warm fuzzy moments.

    My PCP got me in quickly when I called and said I found a lump in my breast. She spent a lot of time talking to me about the possibilities, told me she'd get me in for a mammogram within 24 hours and no matter what it said she wanted me to see someone in a particular surgeon group within a week for a second opinion. Then she asked if I minded if we had a prayer. I usually keep my prayer time private and don't discuss religion, but I was touched by the warm, caring and nurturing actions she and the nurse were taking. We had a prayer, hugs, and I let her office ar about 6 pm. By 8:15 the next morning I had the mammogram and surgical consultation appointments exactly as she had said.

    The surgeon blew me away. The first ten minutes or so were like any two people getting to know each other. Then I got on the table and she looked at the mammogram after the exam. She had them redo her schedule so she could do a biopsy immediately. She said she'd rush the results and she did. She did the biopsy Thursday and called me Monday. She wanted me to come in the next morning to talk about the options. When I said I had a previous obligation she simply offered to meet me at 6:30 am. She involved the 2 friends who went with me, giving them assignments to do. She was a jewel and always treated me like a new friend. I missed her when I moved past the surgical stage.

    My oncologist started out just like the surgeon, taking time to get to know me before any physical exam or medical discussion. When I have run into her in the medical building she knows exactly who I am. My first day of chemo she came in with funny stories and a lot of reassurance to help me relax.

    My radiation oncologist also took the personal route but not as completely as the other two. He has been more distanced but very approachable, warm and funny.

    These four have always made me feel that this is doable and that they are right there with me. They have encouraged me, praised me, and helped me to remember to laugh and enjoy life. From the stories here, there are many really good doctors out there who are practicing medicine not just taking patients.

    Oh yeah!
    My Nurse Practioner is also a family friend. At a regular check up she asked if I had my mammo yet for the year. It was time, so the next week, I got it. A few days later, Lisa called me and said "We have a little irregularity and you need to see a surgeon. He'll probably want to do a biopsy".

    So, she set me up with her favorite surgeon and sure enough, he did want a biopsy.

    When the reports came back, Lisa got a copy too. That night, she and her husband came to our house to give us the results in person... "It's the C word" ... then we all cried and hugged each other.

    By the time my appointment rolled around three days later, I had my legs back under me enough that I actually heard about 1/2 of what the surgeon said and I had some really good questions for him.

    My surgeon said "Lisa must think a h**l of lot about you to chose to give you those results in person. That is the hardest part of my job. Lisa is a special lady!".

    I will forever be grateful to her. Thank you Lisa.
  • Different Ballgame
    Different Ballgame Member Posts: 868
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    My Plastic Surgeon
    My plastic surgeon was the first person in my life who had a calming effect on me. I walked into his office with butterflies in my stomach and I walked out of his office calm as could be. He sits directly in front of me, always smiles, listens to what I say, remembers what I said and encourages me to do things, such as form a breast cancer support group. Consequently, I am very comfortable when I see him.. He is an extremely kind, sensitive, and thoughtful man to everyone. He now hugs me and gives me a kiss on the cheek when our visit has ended. (My oncology surgeon, oncology radiologist and primary care doctor also hug and give me a kiss on the check...I'm just a lovable old woman who gives her doctors homemade goodies from her kitchen. LOL) I told him that I consider him as of my blood and treat him as the nephew that I never had. I zap him e-mails all the time and he responds to them.

    He is 6’4” tall, skinny, and loves food. I am a woman with a very generous nature. I am an extremely fussy, expensive, healthy, cook-from-scratch cook who is known for her cooking and baking. Not only does he enjoy my cooking and baking, but his wife and sons also enjoy what I make.

    Does bottles of good red wine count in exchange for goodies made from my kitchen? Or...when he went to Italy he bought me a gorgeous handmade, handpainted, ceramic wine and vinegar set that sits proudly on my kitchen counter. Or when he went to Alaska on a fishing trip, he gave me one package of Halibut that he caught. Or, he gave a jar of his mother’s prized homemade blackberry jelly. Or, he recorded a CD of various artists that he wanted me to listen to.

    My plastic surgeon became my cancer doctor because I was fortunate in that I did not need chemo nor radiation after my bilateral mastectomy. Breast reconstruction took longer for me due to infections with the expanders.

    I make him feel very special because I adopted him as My #1 Doctor. (He calls me his #1 Supporter.) He's my third adoption. I have an adopted niece and an adopted godchild who I also make feel very special. He became my third adoption in an 18 year span of adoptions. He was the doctor who removed the recurrence on my scar when I saw him for my annual breast reconstruction physical. When he got the biopsy report, he immediately placed it on the desk of my oncologist surgeon. With the recurrence I have discussed many times with him my feelings, radiation, and Arimidex. He is always there for me.

    He treats me like an aunt. I told him once that he was meant to be in my life as I was meant to be in his life and I don’t know the reason why. If it was not meant to be, then I would never have had the infections, my breast reconstruction would have been completed quickly, and he would have never been adopted. He got adopted 9 months after I met him.

    Hugs,
    Janelle