CSN Login
Members Online: 8

You are here

two dr. appts down, one to go- now what? Updated

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Update: Hi Everyone- thank you so much for your replies, suggestions, and prayers! I did write a short update Saturday, but a couple of people replied after that- guess they didn't see it down there. I had said that Dr. Fanta (Dr. Fantastic, as someone said) called me Saturday morning. I was supposed to have an appt w/ him this coming Tuesday. My insurance denied me to go to Dr. Lenz at USC (which I paid over $500 cash for), and they denied me seeing Dr. Fanta again (they said I already got a 2nd opinion from him w/in the last year). I could probably fight that & I will still try to get reimbursement for Dr. Lenz's appt. Dr. Fanta said that I might as well cancel my Tues. appt w/ him and that since he got all my recent medical info & the appt. notes from Dr. Lenz, we can just take care of things over the phone, fax, and email. What a guy! He is going to talk to Dr. Helton (my main onc) Monday a.m. to get him to write a letter to the insurance to explain why they need to pay for me to get Gemzar with Xeloda, even though it's not yet FDA approved for colorectal cancer. He thinks it will get approved & he's going to have all three oncs I've just dealt with sign the letter & he'll send the important good data on Gemzar (gemcitabine) to them as well. Dr. Fanta said he didn't want me to worry all weekend so that's why he was calling me Sat. a.m. He said "don't worry- we'll get this taken care of". So, I was able to relax and not think about it all weekend.
Now... I'm going to go help my 14 yr old w/ studying for her Mon. morning social studies test! Take care & I'll let you all know what happens with this. I'm thinking of you all too!!

Hi,

As you may remember, my PET/CT scan on 2/10 showed disease progression in my lungs, liver, and rectum. Three months before this time, I had stopped chemo when my November scan showed disease progression even while on Folfiri/Avastin. I then chose to start an offline treatment through Dr. Cantrell of Lovastatin and interferon. It worked well for several people, but not me.

This past week, I've set up appts. with my regular onc Dr. Helton, and Dr. Fanta,an onc I've consulted with before at UCSD and, for the first time, with Dr. Lenz at USC.
I had my appt. w/ my Dr. Helton on Wednesday. He said I should go for either of the clinical trials that Dr. Lenz or Dr. Fanta have to offer.
Then I had an appt w/ Dr. Lenz at USC yesterday, where I was really interested in pursuing the PARP inhibitor clinical trial and went up yesterday with hopes of this. First thing after Dr. Lenz walked in the room, he said "well, because you do not qualify for the PARP inhibitor trial, we will talk about what else we can do." Boom- I kind of felt like I was punched with that news right away, but had to keep my composure to keep up with everything else he started rattling off. Meeting him was an experience.
Anyhow- bottom line- even though I can't do the PARP inhibitor trial, there is a clinical trial that I would qualify for at USC (EPO 906 w/ Celebrex) BUT it is full and there's a waiting list of 18 people. I signed up for the waiting list, but don't know what the chances are and don't think I can just wait around for it. There are two other drug combos that show good promise and Dr. Lenz recommended for me to take (Gemzar with Xeloda or Pazapanip). The kicker is that only Xeloda is FDA approved & since the others aren't approved and there are no trials with them right now, I probably would never get insurance approval for them. Both Dr. Lenz and Dr. Helton told me that prior to Jan. 1, 2009, they could pretty much prescribe anything at all and insurance would cover it, but not anymore. Dr. Lenz said he knows that will only get even more restrictive with upcoming health care reforms. After asking me my income level, he told me I probably wouldn't qualify for help from the drug companies either.
So, I said, "well, then what should I do?" I also brought up the clinical trial that Dr. Fanta at UCSD thinks I should go on. That's called EZN-2208 with or without cetuximab. Cetuximab is Erbitux and anyone with kras mutations would be given it without the Erbitux. This EZN-2208 is a type of irinotecan/Camptosar that works just a bit differently and may have less side effects. Sounded good at first, but since I had disease progression on irinotecan before, I would worry to risk that this might not work either.
Dr. Lenz agreed with my concern and said I should not do it. That leaves me again with "well, then what should I do??" Due to the "diffuse, innumerable lung nodules", I am not a candidate for surgery, RFA, or cyberknife & I need to take some kind of chemo or other drug ASAP. I brought up "what about Folfox again?" That was what I took the first 6 months I was dx'd & my tumors shrunk and stopped lighting up on the PET on it. The issue for me, however, is that I had an allergic reaction to the oxaliplatin & had to go through desensitization each time for it so they are hesitant to try it again. Wednesday, Dr. Helton said he'd only consider that as a last choice. Well, I just might be at that last choice point. I was on the NCI website for clinical trials within 500 miles of where I live & I am only qualified for two of them- the same two that I already wrote about above. Maybe there will be more in the future or farther away. I'm going to see what my local options are first. I see Dr. Fanta at UCSD on Tuesday and will be talking more with Dr. Helton. Dr. Lenz said if I hear of any more trials, to email him and let him know. He also said to call and check every week to see if any more trials open up and to see if my name moves up the waiting list on the EPO 906 w/ Celebrex trial. I'll let you know within the week if I find out more.

Sorry if this is too detailed- *See update at top*
Lisa

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

But that is quite sobering, dear Lisa.

You have fought so hard and researched everything and have jumped thorugh every hoop and climbed all the rungs on the ladder - thinking that the options have run out sent a chill right up my spine - I'm scared straight now.

Waiting lists and insurance approval is a big "stick in the mud" when you so despearately need some answers and/or a treatment, to say the least. Your composure is remarkable. There should be a picture of you in Wikipedia under STRENGTH and COURAGE.

But you are not taking this lying down and I continue to admire you for your perseverance in not taking No for an answer. I wish you could get in this trial that you are wanting to do.

Oxy again? Last resort? I'm not sure if I understand the desensitizing part of what you were saying - do they dilute this further so you can take it? Is that what that means?

This is very hard news and will be for the others that come behind me...but I'm going to continue to hope and wish for something to turn around - and fast.

I'm at a loss of words right now - my other wish for you is that your family will "pitch in" and help you more and take some of the burden off of you, while you fight this. From what you've said, it sounds like they rely and lean on you too much - and this is your time right now - we all take each other for granted, but maybe if they knew how serious this was, they would all step up their game and "lighten your load." You've been a SuperWoman for too long - I'd like to see you get a break and have them wait and care for you now. Not being preachy, but I just worry about you and I know your plate is full - you're sick and they are healthy. I'm sure the day to day stress can be hard on you.

Love you, Lisa :)

Still your friend
-Craig

lcarper2
Posts: 638
Joined: Dec 2009

I read this with a heavy heart I to agree that your family should lighten your load and allow you to get much needed rest this illness is very taxing to our body soul and mind. I pray for a healing for you and that God will touch you now and you won't need any trials...I wish I had more to say but am going to get a prayer chain going tonight for you...

Lovekitties's picture
Lovekitties
Posts: 3327
Joined: Jan 2010

Craig said it best. Will be praying that you can find a doc and trial that will work for you.

Marie

cowman
Posts: 61
Joined: Jun 2009

Lisa,

I had been looking all day for your post and was getting a little worried when we hadn't heard. This was hard to take no matter how you look at it. Craig said it well and I hope you do get the support you need and deserve at home. I will be praying for an answer to this and you know there are alot of prayer warriors out here!
Diane

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

I've been hearing more and more about treatments in Mexico. No FDA.... Oasis of Hope Hospital,Cancer Treatment Center in Tijuana, Mexico is one that I can remember people talking about.

Brooks

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

Lisa - This is hard to take, but thanks for sharing. I've been thinking about you. I understand the hesitancy to do Oxi again, but that sounds like your best choice. Oxi worked for you once, may be it will again. Just don't give up. Stay strong.
I've got a nice big fire going outside tonight. Sending you many, many sparks of Hope and Healing.
Roger

ann2008's picture
ann2008
Posts: 119
Joined: Nov 2009

My heart is heavy just reading your struggle. Please know my prayers are with you. Ann

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

The folfox is always there, and it did slow the progression ...Do you think that infusing it very very slowly would be a benefit in your favor...If all else fails the folfox will work, you know it will.......Love to you and yours , we're here for you..Clift

Jaylo969
Posts: 827
Joined: Jan 2010

I am new to this forum but I have been keeping up with your posts and hoping good things for you. You seem to be one strong,determined,& proactive woman and my hat is off to you for the strength and courage you manifest.My heart just broke when I read this post because I can only imagine how tiring all of this is for you.I know I'm tired and I haven't had to go through many of the things you have. I hope your name will come up fast for the trial and in the meantime know that if prayers, sparks, & good thoughts mean anything then you should be just fine because I know everyone in his own way is pulling for you and your well being.

Best wishes,
-Pat

Fight for my love
Posts: 1530
Joined: Jun 2009

Dear Lisa,I have been praying for you and I will still do.Wish you all the best.Take care.

JR's picture
JR
Posts: 140
Joined: May 2009

My heart goes out to you. You are and always have been an inspiration to me and my wife. Your strength and courage will carry you through until something comes along, and I'm confident that something will. Until then, I agree with Clift, pursue the Folfox. Did you get treatments of Folfox without the Oxy ? If so, did cancer keep shrinking ? Maybe Folfox without the Oxy will help. I don't know but something has to work for you. You are in my prayers.

John

robinvan's picture
robinvan
Posts: 1014
Joined: May 2007

Lisa,
I hope some treatment emerges for you from the midst of all you have described.
You are in my thoughts and prayers.

Rob; in Vancouver

dorookie
Posts: 1736
Joined: Jul 2007

I know you will, you are such a strong and courage woman. I pray for you daily. I totally agree with what Craig said, he has such a great way with words. Please know we are here for you if there is anything we can do just let us know. Keep the faith, Girl, it will work itself out.

Love your friend
Beth

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Everyone,

Thank you for all of your kind words and prayers. I feel badly now that I've made so many of you sad. Maybe I gave too much detail, but part of writing it all out actually felt good for me as I was typing it. My onc Dr. Helton never did call me back after I left a message this morning that he or at least his nurse could please call me back, as I really was wanting to discuss options after my appt. w/ Dr. Lenz. Now I guess I wait over the weekend. I'm not going to let this totally ruin my weekend, because I believe options are still out there, even if they've become harder to find. I think maybe if my onc will agree to give me the oxi (he was very hesitant), that might be my best bet for now anyhow. In spite of the recent disappointments, I still believe that there is a divine plan here and that belief is what gets me through it all.

I was so glad to hear some good news from some folks on this board over the past couple of days- sorry I couldn't be part of that- but maybe my day's still coming for that.

I think I may take the weekend off from the board- I'll be back soon though when I maybe have some news early next week.

Love ya'll! (I'm not from the South, but just like the way that sounds!) :)
Lisa

dorookie
Posts: 1736
Joined: Jul 2007

Have a great weekend, try to get some rest and relax. I know thats what my plan is. Good Night my friend.
Sweet dreams

*HUGS*
Beth

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Love and prayers to you Lisa. :)

Aloha,
Kathleen

Paula G.'s picture
Paula G.
Posts: 596
Joined: Apr 2009

Lisa,
John told me about your post. It makes me sick. There was someone at the infusion center that did mention doing Oxy on a slower drip. John had a bad reaction to it also. It did work for him. He still has the Folfri to go on if the Xeloda and Avastin fail.

I hate to hear that people have to search and search and insurance won't pay and Damn it it make me sick. We are thinking of you and keep us informed. Love Paula

banma
Posts: 9
Joined: Jan 2010

Lisa,

Keep at it - there must be something. Have you seen this one?

http://www.cancercompass.com/cancer-news/article/32941.htm

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Oh, Lisa.

Yesterday was a rare day that I didn't get to check the board. Reading this post now makes me hurt so much for you. You're very brave in the face of daunting prospects, and still have the grace to apologize in case you've shared too much with us.

I'm certainly not as well-versed in chemo as others here, but I will pray that just the right treatment will be found for you. Maybe WE don't know the answer yet, but it is there.

Please come here as often as you feel you can, and we will be here for you. And I also hope you will be resting and treating yourself like a delicate flower, otherwise.

I'll be praying for you and your family.

*hugs*
Gail

mom_2_3
Posts: 964
Joined: Nov 2008

Lisa,

I really don't know what to say. I has hoping Dr Lenz would just breeze into that room and tell you he had the perfect solution for you. I am praying that the next oncologist you have a consultation with has some good ideas for you.

You said you searched for a trial within 500 miles from your house. I know it's a lot to travel further from that but if you should find any trial within the NY/NY/CT area you are more than welcome to bunk here as long as you need with our family. We would greet you with open arms.

I hope you have/had a nice relaxing weekend and enjoy the time with family.

Love and many many hugs to you,
Amy

mommyof2kds's picture
mommyof2kds
Posts: 522
Joined: Mar 2009

Thinking of you lisa. Sending positive thoughts your way. PEtrina

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

What about Mexico? Maybe those meds your insurance won't cover would be an option there.

Don't worry about making us sad. We're sad because we love you but it would hurt so much not to be a part of this time too.

We'll keep watching for other things and you keep searching, too.

Enjoy your weekend and have a wonderful day in church tomorrow. One thought: Have you asked the elders to anoint you with oil and have them pray over you?

Love and prayers,
Diane

geotina's picture
geotina
Posts: 2117
Joined: Oct 2009

I was just checking the board and saw your post. I'm so sorry you are having to go through this. I was hoping these doctors would have something up their sleeve to help you out. You can never give too much detail, with this disease we must learn and in that learning process need to hear the good along with the not so good, it keeps us on our toes to face the future. I'm sorry you are not getting the family support you need and deserve.

The financial end of cancer drives me crazy. Unless you are living in a tent or in your car you are out of luck. I just don't understand why medicine has to cost so much and just because you work you are screwed.

Take care Lisa - Tina

Brenda3.16
Posts: 211
Joined: May 2009

Lisa,

Sorry to hear your news. I know you will move on quickly and figure out the next move. Your knowledge amazes me. I have learned so much from reading your postst. You are in my thoughts and prayers.

Brenda

Anonymous user (not verified)

This comment has been removed by the Moderator

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hello,

Here I said I'd take a weekend break from the board, but here I am checking in! I just wanted to quickly share that Dr. Fanta from UCSD called me this morning. Knowing that my insurance hadn't approved me for the upcoming appt on Tuesday, he thought he'd just call me to discuss and save me the drive and appt. expense. He feels strongly that the Gemzar/Xeloda regimen that Dr. Lenz recommended (but that isn't FDA approved for colorectal cancer)that he can get insurance approval. It has so much data from studies to back it up that by his writing a letter to the insurance and getting all three drs. to sign it. He said he'll be right on that Monday and to not worry.

What a difference hearing those words made! I can relax and enjoy my weekend.

Hugs to you all-
Lisa (I'll pm some of you Monday)

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

I KNEW SOMTHING GOOD WAS GOING TO COME!!!

Life is funny sometimes
Brooks

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Brooks,

You're right!! If only we could know ahead of time what will end up working out & save ourselves a lot of anxiety and stress!
It hasn't been approved yet, but I will be following up w/ the drs and insurance this week & it hopefully will all come together.

Lisa

Aud's picture
Aud
Posts: 480
Joined: Oct 2009

Lisa, I was frustrated for you and now hopeful that Dr. Fanta can get that approval for you.
In the Light,
Aud

sfmarie's picture
sfmarie
Posts: 605
Joined: Aug 2009

I am glad you have doctor willing to go to bat for you! Awesome.
Enjoy the weekend. Marie

linandtom
Posts: 67
Joined: Dec 2009

Ask dr about using Xeloda - which is 5FU in pill form and Avastin. Folfiri plus Avastin worked for you and 5FU has been used for years for colon cancer. Avastin cuts off blood supply to the tumors - and they have to have blood supply to grow. I'm going to ask our dr our next visit if he is using this combination for others. He has always said it is a matter of finding a combination that will work for Tom. He has not had the Xeloda in this form but had the 5FU pump when on Folfiri. He hated the pump so taking it in pill form each day would be much better for him. Will not hurt to ask about any combination - especially ones that are already FDA approved. Look at the Vanderbilt Cancer Clinic and Sarah Cannon Cancer Researach here in Nashville as they have many clinical trials. Check on the clinicaltrials.gov website and just seach on these clinic names. You'll see all that they have. You can refine the search and only search active/open trials. Come to Nashville....we'll be sure you have a place to stay and get you to treatment. Read all eligible req and not eligible...as this makes a big difference what you can or cannot participate in. Don't give up Lisa....there are a lot of trials out there. Just got to find a doctor who will take the time to find one that fits you. Thinking and praying for you today. Beautiful weekend in Nashville....60 degrees!! Going outside now to enjoy! Hope you found peace this weekend and enjoy time with your family.

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I am so happy I kept reading. I was so disappointed for you, and with so many posts I almost didn't read all the way through to the end. This is great news. I am glad you have a doctor that will fight for you with the insurance companies - and not just one, but three that will do it!

Have you taken Xeloda yet at all? Even though it is very much like 5-FU and most people have about the same end results, some people do much better on one than the other. And in those cases it is often Xeloda that works better for certain patients. Combined with a new drug you haven't tried, it could be just the combo for you!

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Kathryn,

Yes, I've taken Xeloda before. Actually, I had a recurrence this past summer while I was on a maintenance dose of Xeloda and was also getting Avastin infusions every 2 wks. But the drs. think that Xeloda mixed with the Gemzar will be a promising possibility. I guess it's not the strength of the Xeloda on its own that matters as much, but how it interacts with affects the other drug. Weird.
I'm certainly willing to try going on it.

Thinks for your input and take care-
Lisa

AnneCan
Posts: 3692
Joined: Oct 2009

Hi Lisa,

I am sorry that you didn't get the news you wanted to hear when you met with your doctor, but I knew your diligence + hard work would pay off..... I was so happy to read this post which said that Dr. Fanta (should that be Dr. Fantastic?) has a solution to the issue. I know what a difference words like his can mean + I hope your weekend is much brighter with this news. Thanks so much for updating us despite your desire to have a break.

jscho
Posts: 62
Joined: Jun 2009

Hi Lisa, sorry to hear about the financial/insurance issues, but I looked up the gemzar/pazopanib drugs and they seem full of promise. Gemzar appears to have only mild side-effects and should act cooperatively with xeloda (both create base deficiencies for replication, but for different bases). The pazopanib targets growth receptors like avastin does, so acts quite differently. It has a nice track record of slowing progression (by factors of two!). This sounds like a potent cocktail, attacking cancer cells on multiple fronts, and I sincerely hope your doctors can get insurance to cover them.

Best,
Jeremy

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Jeremy,

Thanks for your reply. It is interesting, isn't it, to read the results of both the phase I and phase II studies on Gemzar with Xeloda and to read that it sounds really, really promising and with very few side effects too. The pazopanib also!

Lisa

HollyID's picture
HollyID
Posts: 951
Joined: Dec 2009

Lisa...

So glad to read this! What dedicated physicians you have! I love that they're going to write the ins. company and tell them to approve it. I really, really pray that this works for you!

I hope your daughter passes her test today!

Love to you

Holly

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

Oh Lisa! I kept reading your post hoping I would get to the *good news*...but it never came. My heart is heavy for you right now, but you have such a strong spirit...I feel like I'm not being strong with you. I'm not understanding why insurance companies won't look past money and see the human side of treatment. In the meantime, I will continue to pray for your strength and healing.

-Sheri

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

Oh Lisa! I kept reading your post hoping I would get to the *good news*...but it never came. My heart is heavy for you right now, but you have such a strong spirit...I feel like I'm not being strong with you. I'm not understanding why insurance companies won't look past money and see the human side of treatment. In the meantime, I will continue to pray for your strength and healing.

-Sheri

kristasplace's picture
kristasplace
Posts: 956
Joined: Oct 2007

Lisa, this is such distressing news. You know me, i'm going to agree with Brooks suggestion full heartedly. The time has come to take drastic (and expensive) measures that can change all of this. I recommend Gerson, of course. With a 90% success rate treating terminal patients, it just may be worth the $5500 per week. It's easy to say it's only money when you don't have any, but this is your life. We can run a fund-raiser for you if we have to. I'd be more than willing to help organize that. Let's send you to Mexico, girl! Email me!

Hugs,
Krista

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

oops- posted this twice

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi,

I've thought of the place in Mexico, but not really that seriously to be honest.
I wrote an update of how I got a call from Dr. Fanta at UCSD Sat. a.m. & he thinks we'll get the Gemzar approved to take with Xeloda. Gemzar (gemcitabine) has some really good prospects in the couple of studies already done on it. So, that's what I'm waiting to hear about this week. Krista, I have been changing a lot of my diet and have started reading the Anticancer: A New Way of Life book that Nanab (Raquel) has talked about. It makes so much sense.

I will keep in touch and let you know what happens this week.

Take care!
Lisa

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Lisa,
Good news from Dr. Fanta. I am so hopeful for you. We are reading Anticancer as well. Dick is committed to starting it when he gets off chemo in March.

Thanks for keeping us updated. I thought of you and prayed for you a lot today. :)

Aloha,
Kathleen

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Kathleen,

Glad you're reading Anticancer also- it would be a miracle if my husband would ever read it or listen to anything said there. Soooo frustrating! While I was reading it yesterday, he went off because I "was inconsiderate" in buying a brand of hotdogs without the sodium nitrate. He thinks of hot dogs and beans as a "staple". Dinners with ground beef and tomato type sauces are about all he wants for dinner. If I make something else healthier, he'll eat it some of the time and complain or will just go get himself something else to eat like a bowl of cereal, his "beans and weins" as he calls hot dogs and beans, etc. Really hard to get into what I need to do with healthy eating. I already know it does not matter at all what he hears about nitrates, preservatives, dyes, chemicals, hormones in our meat and milk, pesticides, etc. He doesn't believe any of it. I've talked about ALL of that many times. I love my husband, but feel lots of frustration over this. He said I can do whatever I want with how I eat, but he and the kids shouldn't have to change what they like to eat. I told him they need to change or at least get better about it because I don't want them to go through what I'm experiencing! He said for himself, he prefers "quality over quantity"- he'd rather not live to 90 if he has to eat "garbage" (the garbage is referring to the healthy food- not the actual junky and fatty foods he prefers- lol) I believe it really would take a miracle. I do happen to believe in miracles and have "little" ones (if there's such thing) all along the way. Just realized I have not prayed about this issue. Here goes... :)

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Lisa,
Add me in as praying for your family and the healthy eating. I'll tell you from the caregiver point of view, I have figured out that all I can control is myself. At times when I am very anxious I will start to try to get everyone doing the right thing and then I realize that I am not taking the right steps.... eating well, exercising, meditating, being grateful. When I start to do the right things, it's funny but my family slips in line a bit more. (Dick is actually the fitness buff in the house along with our 15 year old daughter.) I guess what I want to do is encourage you to stay your course and do what you need to do for yourself. Right now that has to be your primary concern... it is best for all of you. Do not fret when your husband goes for the cereal for dinner.... if you cooked a good meal (I can't beleive your still cooking for everyone...I want them to cook for you) then let me forge for themselves. I do this at times and most of the time the family will eat what I cook but if not... not my problem.
I want things to get easier for you my friend. I will keep you in my prayers.

Aloha,
Kathleen

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Sheri,

Although I haven't heard any more news than when I posted my update, I am not feeling (as) anxious as before and believe that something will get approved this week. I'll give the drs today to write their letter to the insurance co. & I will be after them again tomorrow. Thanks for caring and praying. You're in my thoughts and prayers too.

Lisa

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Wow, what a nice and dedicated doctor! That's great, too, that he called to give you some peace of mind over the weekend.

Praying the letter sways the insurance company and that this treatment works, really works for you!

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Diane,

I sent you a message. Thanks for the prayers!

Lisa

jams67's picture
jams67
Posts: 927
Joined: May 2006

I'm glad that you posted all of the details. If we don't know what is going on, we can't pray for you. Know that many of those lurking in the background here are your friends and family and will pray for you. You have so much strength of character that many of those in treatment will benefit from knowing your story and work harder for their own healing.
Jo Ann

Fight for my love
Posts: 1530
Joined: Jun 2009

It's great to see your update,Lisa.You got great and responsible doctors who stand by you.It's so good to know everything will be taken care of.Again,you are in my prayers and wish you the best.Take care.

Subscribe to Comments for "two dr. appts down, one to go- now what? Updated"