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not looking good- Saturday update

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi,

Many of you know I've been on Dr. Cantrell's treatment of interferon and Lovastatin since mid December. I'm due for my next PET/CT scan on Dec. 10th (I had said before the 12th, but it just got moved up to the 10th). I've been getting bloodwork done with a CEA every couple of weeks. Just got my bloodwork results back last night from the blood draw Wednesday- Dr. Cantrell called me at home last evening with them. My CEA is now up to 96.4 from 64 two weeks ago. It was at 18 when I started the treatment in December.
Since CEA has always been a reliable indicator for me, this isn't looking good. Looks like this treatment isn't working. Dr. Cantrell said with those numbers, he's expecting the scan will show cancerous growth. He still wants me to come in for my appt. on the 17th this month, but I really don't see what the point is. I'll wait until after I get my scan results to cancel or not, though. I'll go to the hospital records room the day after my scan like I always do and request the report there. It'd take longer if I waited for my onc to review the scan report and get results to me. No waiting for me!
I mentioned to Dr. Cantrell that I might cancel the appt, as it would be close to $700 for me with the appt., airline tickets, and rental car. He still was urging me to come and keep the appt, and said there would be lots more for us to discuss as other possibilities. I don't know what to do.
Another onc that I have consulted with a few times before at UCSD had contacted my regular onc about the same time I was starting Dr. Cantrell's treatment to let him know that he has a clinical trial that I might qualify for. So, I called him yesterday and his asst. called me back saying the trial is still there as a possibility for me. I forgot to write down what it was called, though. It's an agent that has some similar qualities to irinotecan but supposedly has less side effects. One of the requirements for the trial is that the subjects had to have disease advancement while on irinotecan, which I did. I'm sure there are more specific requirements that I'd have to check out too. I'm hoping to talk to my regular onc about it and see if he has any ideas. He's never had any ideas for me. I just liked him because he was open to my ideas of doing alternative treatments. He's never called me at home- just his dumb nurse calls and then she usually takes a couple of days to call me. I already have an appt. set up w/ him on the 22nd, but now w/ the new info. that this treatment isn't working (based on the CEA- we'll see what the actual scan shows), I'd really like to talk to him sooner than the 22nd. He's going to be out of town soon going to the big colorectal cancer conference in Orlando, which probably most oncologists will be attending.

Ok- now I'm rambling, but in addition to the lousy CEA news, I've had another problem... my blood pressure has been sky high lately. Yesterday it was 170/106 and that was after I took an extra Atenolol for the blood pressure. I called my internist's office and the soonest they can get me in is Feb. 9th. They didn't act real concerned. I'm out of breath all the time, very weak- just going up my stairs makes my muscles quivery and tired, I have a headache most of the time, and I'm worried if I over exert myself, that I'll just keel over on the spot. I asked Dr. Cantrell if the high blood pressure could be related to the interferon or lovastatin and he didn't think so.

I'm trying hard to not overreact and stress myself out even more. I'm sure the blood pressure issue will get solved soon and I imagine there are other treatments for me for the cancer, if I can just fine one and get going on it before too much more damage is done by growing/spreading disease.

Lisa
Okay, now I'm rambling- venting too.
______________________________________________
Update on Saturday: Thank you everyone for your input, comments, and prayers! I ended up going into ER about 5 p.m. yesterday because of the blood pressure and muscle weakness. I was there until 10:30 p.m. and then released. They did a chest xray, which showed absolutely nothing- I didn't expect it to because my numerous lung tumors have all been under a centimeter. I guess the only good info to come out of the xray was that my tumors must not have grown past the centimeter point, or they would have shown up. They didn't do a CT. I had been having some chest pain, which is why they took the xray. I also have mild asthma, so it may have even been that. I was given an EKG right away and that came back normal. Next, they drew blood and all my bloodwork was normal, except my potassium was a little low and they gave me something for that. The whole time I was there I had a horrible headache. I was given two Tylenol for that, but they never gave me anything for the high blood pressure. When I went in it was 179/106 and by the time I left it was down to 145/91. Still high but not dangerous. It just went down on its own- they never gave me anything for it. Basically, they just told me to follow up with my doctor in the next couple of days. Well, this a.m. I woke up with the headache, which started pulsating more into a migraine. I took an Imitrex for the migraine, which apparently made my blood pressure go up again. Right now as I type, it's 174/113. I just took another Atenolol for blood pressure and will check it again in a little bit. I'm not going to go into ER again, though- they ruled things out, but they didn't do anything at all to make the bp go down. I feel like ER still wouldn't do anything for it if I went in today with it being higher- I'd just be tortured with waiting, lots of noise and confusion, and being made to freeze (their dumb thin blankets aren't warm enough!)

I was due for another interferon shot last night, but did not take it. I think that along with the muscle weakness, it may have been caused from the interferon and/or the Lovastatin. By muscle weakness, I mean that just walking up my stairs makes me feel like I've been exercising strenuously.
I'm just going to lay low today and rest in bed. I'll keep checking the b.p.
Gotta go- my left eye is pulsating- I need to close it and try to rest.
Lisa

lcarper2
Posts: 638
Joined: Dec 2009

Did any of the medical people you talked to about your blood presure being that high seem to think it was an emergency for you to be looked at ASAP. Hell I'd go to the ER if it gets any higher . Your head ache is because of the bp being so high as is all the other symptons you are having I would go lay down and try to clam down and retake my bp and if it hadn't gone down I would go to the ER...you need to come to Oklahoma sweetie I have a great team here...

Louann

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

I think I'll go take my bp again right now, then call and specifically ask the Dr.'s office how high does it need to be to be considered an emergency?
This morning it was a little lower- it was 147/95. Still high, but not like yesterday. I feel so out of breath still and my ears feel like they're burning. I know it's from the blood pressure.

lcarper2
Posts: 638
Joined: Dec 2009

I am not a nurse or doctor but my mother had high bp and they said when the two numbers run together it is called pulse presure and she could have a stroke so please don't take any chances...

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

I just googled blood pressure emergency. Two different sites said a blood pressure of 180/120 is considered an emergency. Mine hasn't been that high, but I will monitor it carefully and will still call my Dr.'s office back.
As if I didn't have enough to worry about already & worrying will just make the bp even worse!

lcarper2
Posts: 638
Joined: Dec 2009

Try to relax ,I know that is hard I am the worlds worse worrier but you are on top of it anyway ...

kristasplace's picture
kristasplace
Posts: 956
Joined: Oct 2007

I'm so sorry, Lisa. I wish there was some ready solution to all of this, and i wish your doctors would be faster in their responses. I've found the medical industry to be so exasperating. I was surprised when Dr. Fanta told me yesterday to stray as far away from the Western diet as possible!

Have you talked more in depth with Lisa P.? I think you should PM her, and find out exactly what she did to rid herself of cancer. I truly believe we can cure ourselves better than this traditional medicine crap. As far as your family's acceptance of a new lifestyle is concerned, like Emily said in another post, they'll just have to get over themselves and consider the alternative. This is to save your life. If that means eating tofu and celery for the next two years, so be it. They'll be thanking you full board when the cancer disappears.

I think about you every day, Lisa, and pray the cancer just vanishes. It's happened to others, so why not you?

If you need any help in motivation for a severe diet change, i'm here for you. I'm going the soft mechanical and liquid diet route, so i'm right there with you.

Hugs, hugs, hugs!

Krista

AnneCan
Posts: 3692
Joined: Oct 2009

Lisa,

I want you to know that I am thinking about you, + hope the scan results are good + also that your blood pressure behaves.

Take care!

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

I'm so sorry to hear this. I really was expecting good news.

I posted a link for you on Facebook so as not to insult anyone here.

Love you, sweet sister,
Diane

Lovekitties's picture
Lovekitties
Posts: 3354
Joined: Jan 2010

Lisa, I am so sorry that the treatments don't seem to be working. It sounds like the clinical trial is something to look at more carefully. The onc who called to let you know about it might be a winner...after all your health is in his thoughts.

About the bp...with the symptoms you are having and your overall health issues, I wouldn't put off going to ER if it doesn't come back under control. Taking extra meds to control it is only a stop gap. Maybe you need a night in the hospital under some anti stress meds and general overall care. After all, you just had some news which would give anyone anxiety.

Hope you get the bp under control quickly and that the clinical trial or something new out there will give you the boost you need physically and emotionally.

Take care...

Marie

sfmarie's picture
sfmarie
Posts: 605
Joined: Aug 2009

I was hoping Dr. Cantrell's treatment would work for you! I am looking myself for treatment options. I know you have seen alot of the same people my sister has. Was Lenz of no use? he seems to have many clinical trials. I pray there is something coming down the pipeline that offers a chance for those that other treatment options did not work. I do believe you need to be your own advocate and no doctor I have met is going to call on their own, just to check in. Jaded I know.
Keeping you in my prayers.

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

Oh Lisa, I am so sorry to hear this. I really hope that the scans will contradict your CEA numbers. Lifting you up in prayer always.

-Sheri

robinvan's picture
robinvan
Posts: 1014
Joined: May 2007

I wish I had more to offer you than words of support and encouragement. There are so many moments when we feel powerless in the face of this relentless disease. All I can do is join you in a cry of lament...

Rob; in Vancouver

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Lisa

I hear the sadness and exasperation in your words - I'm sorry that it does not look like it is working - the CT scan results should bring this picture in clearer.

For your BP, over 200 can be a stroke at any moment! I saw you post 180 was an emergency and it sure is - I had it that high one time in the hospital when they left me off my meds after surgery. But 200 is stroke level. Undoubtedly this is causing the headaches and out of breath. 147 is bwetter but you are right to watch it.

Would be nice if Canctrell could give you a phone consult and save you all that money. Doctors just don't get it when we tell them we're "tapped" and we're "hurting for $."

You've always been so strong minded and I believe you've done the right things that you can do in your treatment. I am hoping for another avenue to pursue that can change the course of this disease.

Just a thought? Could this treatment you are doing be killing come cancer cells? The reason I ask is because when cancer cells die off, they emit some kind of protein and the CEA level can rise accordingly. A question to throw at them anyway - but this comes to mind.

I'm pulling for you Lisa - your strength and grace inspires so many here and there are many who look to you for hope. Count me in as well.

-Craig

WinneyPooh's picture
WinneyPooh
Posts: 318
Joined: Jul 2009

Lisa, i agree with craig, some times CEA level rise for other reasons not just a bad sign, mine have always been low and not been an indicator of anything for me, I would go on how you feel, and try hard to just let yourself relax, do what you like,a little lite exersise, and talk to a good listener let it all out, and check your own BP, High BP readings at the Doc offices are common,

take care of yourself
Live,laugh,play
Penny

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

I'm so sorry to hear this news Lisa. I was so hoping this would be the trick for you. It sounds like the clinical trial would be something to try. I also agree with folks about the concern for high blood pressure. Many of the chemo drugs we take, like Avastin, can affect the heart which can affect BP. Please don't wait to long to deal with this more immediate concern.

lots of love and care, Leslie

jscho
Posts: 62
Joined: Jun 2009

Lisa42, I'm very sorry to hear about the lack of response to Dr. Cantrell's treatment regimen. If I were you I would look into all sorts of clinical trials. You may want to ask Dr. Lenz at USC about trials related to cancer stem cells. I thought he was trying to get a trial started using something called ICG-001, a drug that inhibits the WNT pathway and causes cell differentiation. For these reasons, it may work well in drug resistant cases. There may be PARP inhibitor trials you can enroll in as well.

You have been so strong throughout your treatment. I'm sure you will find something.

Jeremy

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Lisa -

I posted a link on another thread regarding CEA. The numbers can
escalate greatly, when a lot of cancer cells die at once. I would
keep that in mind!

Second.... High blood pressure is a symptom of an underlying
problem. Drugs and the interaction of various medicines can
trigger high blood pressure as well.

When my wife had a ruptured cerebral aneurysm clipped, her
surgeon put her on a medication to elevate her blood pressure
well beyond the reading you're seeing. He stressed to me, that
high blood pressure does not cause aneurysms, strokes, or
heart attacks; those things occur to people with normal pressure,
and most often while sleeping, ruling out mental stress, as well.
(A stroke is when part of the brain does not get sufficient blood)

He had added that it rarely if ever, dislodges plaque, or causes
any other problem, but sustained, long-term high blood pressure
that goes unresolved usually will lead to to other complications,
but it is usually due to the underlying cause of the high blood pressure.

That's much the same as having a fever; if you take medications to
lower your temperature, the cause of it would continue on. An
infection would grow to be overwhelming amount.

Lowering the temperature is important, since a sustained high
temperature can cause other damage..... and in that respect,
high blood pressure should be treated with the same concern.

I noted also, that any symptom that goes unresolved too long, will
cause more severe problems. Taking blood pressure medications
only takes away the symptom, not the cause of the high blood pressure.
So many people fail to realize that!

With the numbers as close together as you are seeing, I would be
concerned, but not panicked. If your physician was not concerned
enough to tell you to go to the ER, I might take that as a good sign.
You could call the ER and tell them your concerns, if they think
it's dangerous, they'll tell you..

I don't know if any of that helps, or just confuses things?

I guess the bottom line is, if my doctor isn't worried about losing
lucrative business if I die, I wouldn't be worried about dying.

(ha)

Stay well!

John

kersha
Posts: 63
Joined: Jul 2009

Hi Lisa I am so sorry to hear about your CEA levels. I hope it is just the because of the dead cells and that the scan would show no tumors. My husband's situation is similar to yours. We also went to Dr. Cantrell and was going to start on Feb. 18th but the scan my husband had on Tuesday showed no tumors so I do not think we would be going. He also was on folfiri and I think that it is why it returned. However, he went on Zeloda, Avastin and oxyaliplatin for the last three months and that took care of the tumors. Did your Onc. talk about going back on folfox or zeloda. I think that really works. You like all the others on this forum are always on my thoughts. I do not post a lot but I read what you all write and my heart goes out to each and every one of you all because the caregiver has a very good idea of what you all are going through.

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

If you click on Lisa's name under her picture, you can read all the meds she's tried that have not worked. :-(

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Lisa, For the first time in a L-O-N-G time I'm lost for words. If you ever just want to get out of the house PLEASE PM me and we can do luch and maybe take a walk on the O'Side Peir. I'm open to anything to help you. Maybe I can cook you guys dinner and drop it by? I hear I'm a heck of a cook!! LOL...

Brooks

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

this is indeed crappo news...I hate when the CEA is up and yours is up...you have worked so hard for this and invested so much...

re blood pressure...don't freak over that girl...today i had shingles on my face after shingles on back in Nov....189!!!! then when I calmed down ...knew I was going to see my doc for antiviral it was 120

Oh Lisa hang on...back to one step ...breathe...hold our hands...

mags

GOOFYLADIE's picture
GOOFYLADIE
Posts: 233
Joined: Aug 2009

Today you need to catch your breath. Or already be at an Urgent Care center or Hospital for blood pressure it always better to be safe. Who knows, you never know whos path your gonna cross at the right time. Stranger things happen. Read over this board and look at what you have accomplished girl you have come so very far and you can do this. I am sorry this miserable disease has laid its claws into you, but tomorrow you are going to be recharged with new energy to fight this morphodite SOB of a disease. LOL got a little carried away!!lol
You PM if you need me, want to talk on the phone, anytime day or night since my neck surgery, I don't sleep well so I am awake. So pm me and I can give you my phone # if you need it. I live on the central coast so I am not too far from you or Brooks.
Love ya Girl,
Goofyladie (Cass)

ann2008's picture
ann2008
Posts: 119
Joined: Nov 2009

You have always given such support and encouragement to everyone so I want to give that back to you. I do hope your scan totally disputes the CEA results. That would be consistent with other stories here where the damage/killing of cancer cells raises the CEA results. Please,take a deep breath and TRY to relax and get your b/p under control. My internist had to add a second med to get mine under control. He kept increasing my dose but that didn't do it. I haven't been through anything like you have in my treatment but please know that you are in my prayers . Please keep us updated. Ann

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Lisa my Friend,
I'm sorry that Dr. C's treatment may not be working. You are a strong woman and I am hopeful for you that you will find a clinical trial that works for you and gets you back to good health. I will hold you in my prayers. I think of you often.
Aloha,
Kathleen

Annabelle41415's picture
Annabelle41415
Posts: 6612
Joined: Feb 2009

This is not the news that any of us expected. You are sure in a difficult situation and just hoping the best for you. Maybe you can try that experimental treatment and if your oncologist thinks that is an option than you probably should try it, or think about it. Always thinking about you and wishing and hoping that things will get better.

Kim

mom_2_3
Posts: 965
Joined: Nov 2008

Lisa,

I am sorry that you are going through this right now. It can be worrisome when the CEA goes up but I have read countless stories where it has gone up and then gone down, gone up when nothing is present on the scan and gone up as a result of treatment. As others have mentioned it is possible that the current treatment is having an impact and tumors are dying off and expressing the marker. Keep positive thoughts and enjoy this weekend and wait to hear your scan results.

My husband has hypertension so I know that high blood pressure can be scary but given your worrying it is not surprising. I carried three children and each BP reading while pregnant always read 107/70, without fail. Once I found out that I had cancer and started treatments my BP runs 120/80. Worrying has certainly elevated mine so I imagine yours has gone up as well. If your BP starts to get too elevated do not hesitate to get immediate attention from your ER.

As always, you are in my thoughts and in my prayers...tonight and every night. There are so many people here that love you. Please keep that love and affection in your mind as you go to sleep tonight.

Love and best wishes to you,
Amy

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Lisa, dear. I'm so sorry to hear this. I'm also very worried about that blood pressure issue. Both of my parents have had strokes, and I also deal with high blood pressure. I think your numbers sound dangerously high. I know my doctor would be very concerned about those numbers. Since I'm replying late to this, I hope by now you have either gone to the ER or seen your doctor.

Please let us know how you are! I know you need to decide for yourself what course to take, but my vote would be with a clinical trial. I'll be praying for good results, no matter what you decide.

*hugs*
Gail

chicoturner's picture
chicoturner
Posts: 285
Joined: Apr 2009

Lisa, first I want to tell you thank you for sharing your story. You may not realize how many of us were holding our breath as you began Dr. Cantrell's program. You are such a pioneer and I appreciate all you have done and will no doubt continue doing! Next I want to tell you to keep fighting! You have already proven that it is worth it! You are in my prayers. Jean

grammadebbie's picture
grammadebbie
Posts: 431
Joined: Jun 2009

Dear Friend,

I am so sorry that you are going through this. I will continue to pray for you. You have been so helpful and caring to everyone who comes to this forum. I would like to thank you for all that you do for us. You're always here for us with information and facts, yet you give it to us with such love and compassion. I hope you feel the love and support from all of us. I think of you often and hold only good thoughts for you.

Blessings to you,

Debbie (gramma)

kapper48's picture
kapper48
Posts: 85
Joined: Aug 2008

Oh Lisa, You hang in there and don't give up hope. You might be surprized when your c/t results come in. I feel in my heart that you will be fine. If you need to talk to someone you have my phone number call me anytime.
Pat

ittapp's picture
ittapp
Posts: 385
Joined: Jun 2009

I am praying for you hard!! Find a really good clinical trial and keep on fighting. I know you need a day to get your head around this, but let's just see what the scan says. I am like you my cea levels are very telling. We will be with you every step of the way. Patti

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I'm sorry this treatment doesn't seem to be working for you. You were very brave to try it, and we are all thankful for the information you've give us about it. Since it has worked for some people, your posting the information may make a difference for someone else. So no matter what, this was not a failure at all. It was a brave risk that will help others.

So now if your scans aren't more promising than CEA, you have to do it again. Take another brave risk - clinical trials. Think of all the advancements in colon cancer treatment in the last 5 years or so. There is a good chance that one of the ongoing or upcoming trials will be something new that is even better.

I'm hoping you get answers and new options soon.

HollyID's picture
HollyID
Posts: 951
Joined: Dec 2009

Lisa, I know you've always been there for me when I've needed you. I'm really hoping that there are more options out there, like the clinical trials you've mentioned.

I'm not sure if you're going to keep your appt with Dr. Cantrell, but if he has other options, maybe something worth trying, the trip could be worth it.

Seriously, about the blood pressure, I learned about 25 years ago from an internist that when both numbers equal 300, you're headed for a major stroke. There are so many variables when it comes to blood pressures. It's probably stress related, which mine would be as well, but just keep an eye on it.

Love you, girl.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Thanks everyone for reading what I wrote and for your comments and prayers. I wrote an update at the top under my original post about my experience of going to ER yesterday evening. Blood pressure is still up today.

Lisa

lmliess's picture
lmliess
Posts: 331
Joined: Dec 2008

you are dealing with this! I get migraines on occasion so I know how hard it is to have those where it feels like your eye is pulsating! And don't you just hate ER rooms! Ugh...the 2 times I went after my surgery I was so annoyed because I felt like no one knew really what to do....so they just observed me.

Just know we are all thinking of you and I will keep you on my prayers!

Linda

GOOFYLADIE's picture
GOOFYLADIE
Posts: 233
Joined: Aug 2009

Good I am so glad you went to hospital. I know it didn't seem like much but your blood pressure did come down that was the concern. I can only imagine the wait time. I still hate waiting in any Dr's office today for any appointment. I felt I did enough time for everybody on the board. I am praying everyday for you and you promise to RUN not walk if your blood pressure goes that high again. At least if something should happen with your blood pressure you will be at the right place where everyone can take care of you.
Goofyladie (Cass)

abmb's picture
abmb
Posts: 311
Joined: Sep 2009

Lisa, I have been reading all the support you have on this board They are always here to help when we need it the most. I do agree the CEA levels do rise when cancer cells are dying off. So try to think on that one positive note. I know everyone tells you not too worry, but how can you not. I see someone here offered to take you to lunch, that is probably a good idea, get out of the house, away from the computer for awhile. I see you have family, I do not know the ages of the children, but maybe do a family day movie in house, with popcorn and snacks. Just take the family and cuddle for the day. All good vibes from kids when we need it the most. Mostly, take care of your self, talk to God and ask him for help and strength. He is always available to us. Take care and God Bless. Margaret

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

I hope you are getting lots of rest and feeling better today. You are so very much loved. We are all right there with you.
Take care.
Roger

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

((((LISA)))))

Hope things get better today.

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Lisa, I have been out of pocket most of the week, I am so sorry to hear about your recent health. Please try as you might to relax and don´t worry too much. I know that would sound so stupid from most people, but what can we do but try and eleviate the symptoms. I know stupid!

You are in my thoughts, and will continue to keep you there!

Hugs!

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi again-

Thank you again- you guys are all so great and encouraging! My blood pressure is a lot better today, and so I went to church- wanted to get out of the house after sleeping all day yesterday & I'm glad I went. People there are great to me.
I still am easily tired and out of breath, so I'm still taking it easy.
I'll post aother thread when I get my scan results back later this week (scan on Wednesday, results on Thursday).
I'll be okay and will definitely consider all different kinds of options. I'm intrigued now about finding out about what Dr. Lenz has. I've never consulted with him before & so I probably should. I'll have to find out how that works with my insurance. I will look into it Monday.

Hope you all have fun with the super bowl, if you're watching it. I don't care at all about the game- only the commercials and half time interest me!

Lisa

geotina's picture
geotina
Posts: 2121
Joined: Oct 2009

Your anxiety and stress level must be through the roof. I'm glad going to church today brought you comfort in this most stressful time. Sorry, don't know about Dr. Lenz but maybe you should also check on the oncologist with the clinical trial. Guess you have to wait until after the scan to know if Dr. Cantrell is still in the mix. With so many decisions to make its a wonder your blood pressure wasn't higher. I'll have to google Dr. Lenz, don't know about him. Take care - Tina

GOOFYLADIE's picture
GOOFYLADIE
Posts: 233
Joined: Aug 2009

So glad to hear you somewhat your normal self. We are all here cheering, listening, crying, sharing, boasting and holding it all together with you. Happy to have your kick cancer rear back with us. Huge warm hugs and prayers your way.
Goofyladie (Cass)

jillpls's picture
jillpls
Posts: 241
Joined: Mar 2008

Hi Lisa, I admire your courage and strength to reach out to so many treatments. I have been hoping your last treatment would be the cure. So many are watching you and learning from you so thank you. There are so many clinical trials out there that I'm sure there is one for you. Keep fighting the fight because we are in it with you.
God bless you and guide your path
Jill

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Lisa,

I'm glad you went to be checked, but I'm sorry they weren't much help to you. It'll be much better when you see your own doctor.

Please take care!

*hugs*
Gail

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