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Help with nausea please

Lilmiss82's picture
Lilmiss82
Posts: 257
Joined: Dec 2009

Ok so I just got off the phone with my onc and she told me I have exhausted all anti- nausea meds. I have tried zofran, ativan, emend and compazine. All work until disconnection day. That when it's all down hill. Can anyone tell me if there is any other medication I can try or other remedy that works. I have chemo tomorrow so will be disconnected Sunday and can't tell you how much I'm dreading Sunday, Monday and Tuesday. Thank you in advance to all who reply :)

ittapp's picture
ittapp
Posts: 385
Joined: Jun 2009

Many people on here swear by marijuana, I think there is a thread about that on here now. It does help nausea from what I understand. Try it, Patti

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

I'm sorry you're having a rough time. I also have late stage nausea -nausea that rears up after disconnection. Emend has worked for me. Are you getting a bag of emend with treatment and taking the emend pill and steroid on day 2 and 3?
Check out the thread "Merino and medical marijuana and Nausea." That's where I'm headed if the emend stops working.
Take care,
Roger

Lilmiss82's picture
Lilmiss82
Posts: 257
Joined: Dec 2009

You know what they only give me steroids on the day of infusion. Could that be the problem? I mean are you suppose to take emend with a steroid?

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

I take 8MG of Dexamethason on days 2 and 3 with the emend. That could be the problem. Definitely ask your Dr. before treatment tomorrow. Let me know what he'she says.

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

I take 8mg of Dexamethason with Emend on days 1-3, and then anzemet and the dex on days 4 and 5. The dex is a steroid.

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

I find it hard to believe they are just leaving you hanging on this issue! It's the number one reason patients decide to stop the chemo that could save their lives! They need to figure something out! The only thing that finally worked for me was the Emend-decadron combo. I had tried Zofran, Kytril, phenergan, compazine. Do you get Aloxi (I think that's it) at infusion? There's a new Sancuso patch which i think is Zofran in a continuous transdermal and has shown some good results. I would definitely try marijuana if nothing else was working. Toss me off to jail, officer, but you'll be cleaning up the mess when the marijuana wears off!

Good luck with this, there is a solution out there for you.
mary

Lilmiss82's picture
Lilmiss82
Posts: 257
Joined: Dec 2009

My husband has been trying to talk me into medical marijuana for weeks. I thought about it but I'm scared. Tried it a couple of times when I was younger and had some bad trips. I get to paranoid and feel like I'm gonna die cause I feel like my heart beats to fast!!:) crazy I know but that's what happens

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

My experience is exactly the same. I tried it a few times when I was younger, and ended up in the fetal position. Here's how I see it. If I try it now and it makes me sick, how will I even tell. A good friend of mine, who is an enthusiastic recreational pot smoker told me that there is lots of different kinds of pot and more to the point - lots of bad pot out there. If you live in an MM state getting the right stuff won't be a problem. If not, put your husband on the case. I bet lots of more "experienced' folks will be able to better advise. But like I said, if the emend stops working, I'm blowin' a fatty.
Roger

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

this is now....Different circumstances entirely and I think you may find that it is nothing like the experience you had then.

I understand it's milder when eaten in baked goods yet just as effective. Eating it baked to get baked! Never thought of it that way
;-)
good luck...
-p

kapper48's picture
kapper48
Posts: 85
Joined: Aug 2008

Patty, I too always felt worse after they took the pump off. What I found that helped me was taking ibprofrom, now my dr did'nt like me taking it but it always seemed to make me feel better.
Pat

snommintj's picture
snommintj
Posts: 602
Joined: Mar 2009

Fresh ginger works very well
Juice it fresh, about the size of your thumb. It is very strong so you'll need to add something to it. I like a few lemons and apples.
You can also just add hot water a lemon slice and honey. It will ease your nausea. You can drink it whenever you feel sick.
Something else you might do. Trust me I know it sucks but getting up and walking outside helps a bit. You also might want to adjust your diet prior to treatment. I always switched my diet up 3-4 days before. I ate lite, mostly fruits and veggies. I also hydrated myself very well.

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

At first I hydrated myself real well and it seemed to help a great deal, then it got to where I didn't want anything at all and I paid for it...Sipping water constantly kept me feeling better at first but then I quit ......I really think though hydration is a main key in reducing the nausea.........Love Hope and Hiccups........Buzz

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

But here is what works to mostly get me through:

Infusion day: Decadron, Aloxi and Emend, all via IV.
Day #2, #3 AND #4 I take Emend pills. Standard is just the 3-day dose of Emend, but I get so sick disconnect and the next day that I take an extra day of Emend. One cycle I tried taking it on day #5, but it didn't help at all that day. I also get fluids on day #5 if I'm struggling (I have to go in for Neupogen shot that day anyway). And some nights I take Ativan. It does make me very sleepy, so I don't like to take it unless I'm having trouble getting to sleep and am nauseated.

Possibly an extra day of Emend might help you?

(Zofran gives me headaches and doesn't help. I'm allergic to Compazine. I got Kytril via IV on day #5 once and it helped.)

Anonymous user (not verified)

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PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

costs $180 per pill. I know that is w/o insurance, but $180 per pill!!!
They all try to get the benefits of what marijuana offers for a fraction of the price plus, unlike emend it actually makes you feel kind of good and even happy while it rids you of nausea and increases appetite. Emend did neither for me.

I know there are as many opinions on this as there are ways to get through it.
-phil

PamPam2's picture
PamPam2
Posts: 376
Joined: Jan 2009

Hi
Kytril (sp?) is the one that finally worked for me, there are a lot of anti nausea meds out there, and in different combinations,I can't bellieve your doctor said there is nothing else to try. Hope you find some relief soon.
Pam

geotina's picture
geotina
Posts: 2123
Joined: Oct 2009

For what it is worth, I don't see many getting this but George got a IV bag of Anzamet for nausea at infusion time and he never had nausea. I know everyone is differnt but he never had to use anything else. Tina

Fb489
Posts: 69
Joined: Sep 2009

So sorry you are feeling blue,
If you are on OXI have the doctor reduce the dosage.
My hubby used to be really sick with nausea until his doctor reduce his OXI dosage.
He also uses ginger capsules 2 with each meal and it works better for him than
any of the anti-nausea meds.
It won't hurt to try, it cost so much less than the meds.
Good Luck

grammadebbie's picture
grammadebbie
Posts: 471
Joined: Jun 2009

Hi Lilmiss,

Just wanted to let you know that I had the same problems with nausea and tried all of the meds you have. I live in CA so marijuana is legal for medicinal purposes. It did the trick. I would take 1 or 2 puffs and the nausea would stop immediatley. You are right about different kinds. The dispensary I got mine from was very informative and had me try several different kinds to see what was most effective. I don't think I would have made it all the way through treatment without the marijuana. Let me know if you h ave any questions.

Blessings to you,

Debbie (gramma)

jillpls's picture
jillpls
Posts: 241
Joined: Mar 2008

HI Debbie,
I'm trying MM tomorrow when I get home from treatment. It'll be the first for me with fighting this disease. Can you tell me what kind you used? I wasn't sure which one worked so I will be experimenting. Thank God we live in CA so we can use MM...
JIll

grammadebbie's picture
grammadebbie
Posts: 471
Joined: Jun 2009

Hi Jill,

I posted last night but my computer went down and lost everything. I was very fortunate with the dispensary I used. They actually came to my home. It was funny...A man with a briefcase full of samples came and sat in my family room and educated me about the different types. Hehe. I tried several that he recommended (not all at once). I don't know if they all use the same names or not - theyare kinda funny too. MasterJack,Flat Top, Garlic, Org.Purps. They were all a little different but all worked immediately on nausea. I used a glass pipe that is supposed to be easier on your lungs than a joint. My 20 year old daughter went to the local tobacco store and bought me a "pretty one". haha. I only needed to take one or 2 puffs so it didn't bother my lungs. There are vaporizers that work good but they are kinda expensive. Hope this is helpful. If you have any questions let me know. I'll be praying for you.

Debbie (gramma)

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

Hey there Lilmiss82. I'm thinking about you this morning. I hope the disconnect goes well and that you feel better this time. Let us know.
Peace,
Roger

Julie 44
Posts: 479
Joined: Oct 2008

I am having the same exact problems...I have been on it all too...The doc is giving me Ativan the night before and the day of plus emend, and zofran too...Then he is giving me extra fluids with potassium then camptosar and avatin...The camptosar makes me have dry heaves,big time nausea and very dehydrated..It was so bad last time that I wound up in the hospital for 3 days...So beieve me I know how you feel...They are now also cutting my meds back by 50% which makes me leary about it working but he said I need to get this in my system... So you are not alone in this battle by a long shot...I get drug tested at work so I can't smoke anything otherwise I think I would try it why not what do you have to loose at this point....So good luck let usknow how you make out...JULIE

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Amend! Lemonaid worked for me!

Lilmiss82's picture
Lilmiss82
Posts: 257
Joined: Dec 2009

I'm awaiting disconnect appointment at 1:45. Thank you for your thoughts and response. I'm feeling pretty good have been taking the steroids with the emend and I can feel the difference:) also the fresh Ginger is helping too. Thanks to everyone round 5 down 7 more to the finish line:)

lizzydavis's picture
lizzydavis
Posts: 893
Joined: May 2009

Ginger Root pills and sucking lemon citrus drops helped me. I bought the Ginger Root pills at Wal-Mart. Hope you feel better this time.

thready's picture
thready
Posts: 475
Joined: Sep 2009

Just wondering if you took Ativan after disconnect. I take it from the day infusion starts then conntinue it until 5 days after. I get treatments on Wednesday, that is when I start the Ativan, 1mg at night, then I take 1 mg for the next 5 nights. I sometimes have to add 1/2 to 1 mg during the two days after disconnect (those are the worst days). I found also that i was getting so much medication around infusion and disconnect time that the antinausea meds were making me sick. Now I take Emend for 3 days, and get Aloxi at infusion time, take Ativan at bedtime. Friday is disconnect day and I use to get more Aloxi but now I just get fluids. (Before I got a lot more stuff but it just seemed to agrivate the whole thing.)

I noticied you did not include phenergen on your list. This is my go to med when all else fails. Others have mentioned fluids-these are so important, also I found I had to rest. This is hard for me but this last weekend all I did was sleep and I feel better today.

I hope things are going better.
Jan

jillpls's picture
jillpls
Posts: 241
Joined: Mar 2008

HI
I"ll be using MM tomorrow but I've found that peppermint helps with the nausea and so does a topical cream. There is also a suppository for nausea. Ask you dr about it. Also I have ginger honey for tea and I've been going to a treatment called "healing hands". It's helps with clearing out your mind of the memory of nausea. I was having it so bad I would have dry heaves up to two weeks after treatment. But this last treatment was amazing. IT was like I had not had any treatment at all after only 5 days. Good luck and God bless
JIll

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