Welcome to the new Cancer Survivors Network website! Existing members can click HERE to review the changes and new features on CSN.

looking for non hodgkins relapse stories

alclmom Member Posts: 7
i recently had a 100% clean 3month post chemo pet scan. I want to be excited but i am having a lot of survivorship issues.. please share your relapse stories with me. i feel like my doctors live in a fairly tale worlds sometimes and i would love to here realty! please share age, type and treatment options.....thanks so much


  • WinneyPooh
    WinneyPooh Member Posts: 318
    10 years no cancers
    Hi, I am on another site but i was 10 years cancer free, i had non-hL, when i was 34 and it was stage IV i was basically dead when they found it only 10% of my left lung was usable and i maynot have made it through the night, but i went to the hospital because i stoped breathing and they found the cancer then and they cured me a year later.

    Now for the unfortunate part, I was DX with Colon Rectal Cancer in may of last year, Doc say it is unrelated but it is a new cancer and i hope to i will beat this one. Good luck and live well, go vegan if you can stay active and keep your weight under control is my advice to you. maybe if i had done the same i would not be here with a new cancer.

    Live, Laugh, Love
  • Joseph777
    Joseph777 Member Posts: 2
    I was diagnosed with myelofibrosis in the spring of 09. I have had non-hodgkins lymphoma twice. Once it was low grade and the remission lasted 9 years. I then was diagnosed with non-hodgkins, but it was both low and high grade at the same time. After many rounds of chemo, radiation, and a stem-cell transplant I was fine for about 8 years. That is when I was diagnosed with the myelofibrosis. They have tried just about everything with no success. Revlimid (sp?) was the last. It has gotten to the point where I have to go in approximately every 4-5 days to get two pints of blood and two pints of platelets and neupogen shots. However, now it has gotten to where I am experiencing symptoms within two days. Has anyone experienced this before?
  • DennisR
    DennisR Member Posts: 148
    I had NHL in 2000, had
    I had NHL in 2000, had surgery & RCHOP and was NED until May, 2008 when I was Dxd with a recurrance. I had Chemo and a stem cell transplant in feb 2009. I'm NED now again and doing well.
  • Karen Sullens
    Karen Sullens Member Posts: 3
    Non Hodgkins morphed into Lympocytic Leukima
    I find thay my cancer has been an ongoing subject. First was Breast Cancer and then the next year they found Lymphoma in my uterus(unheard of by the way). And here I am now with Lymphocytic Leukima.

    I have been on periodic treatments with Retuxin. I have had it 4 times now and each time give me a year or two. This time I am over a year and feel pretty good. I know my condition is Chronic, which is on going, and that the deal. Karen