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I'm getting HIPEC!!!!

lizbiz's picture
lizbiz
Posts: 121
Joined: Aug 2008

Hello everyone,

I hope you all had a wonderful Holiday Season. I'm still having a hard time wrapping my mind around it myself, but Dr. Martin Goodman at Tufts has agreed to perform a liver resection and HIPEC on me. On February 1, I will be having my omentum, uterus, ovaries, gallbladder, spleen, some of my small intestine, possibly the rest of my colon, 1/2 my liver and all existing tumors removed. I was putting so much energy into hoping he'd say yes that I didn't really think about what I'd actually be going through.

I really think this will provide a new beginning for me and my husband (granted I make it through the surgery and nothing major goes wrong during recovery), but I'm starting to get freaked out about the procedure.

Has anyone had this procedure done with this extension removal? If so, what did you experience during the aftermath?

Thank you all,
Elizabeth

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Elizabeth,

Wow- that's a lot of surgery! I don't have experience in such a surgery myself- I had a liver resection with 1/2 my liver removed, along with my gallbladder, but nothing to the extent of what you're having done. I'm glad that you found someone who will do this surgery along with the HIPEC, too- it means you can get a new lease on life to get all the "bad stuff" out of you. I'd probably be freaking out about the procedure if I were you, too. You just have to keep your focus on what the procedure is going to be accomplishing and thank the Lord that it's able to be done.
I will be praying for you- check back in w/ us and give us a reminder right before your surgery.

You take care of yourself!!

Hugs,
Lisa

geotina's picture
geotina
Posts: 2123
Joined: Oct 2009

I've been thinking of you and wondering how you were doing. I'm glad the doctor has agreed to do the surgery to give you a new lease on life but yikes, that is a lot of surgery. I know what you mean about the holidays, 2009 was a year I was glad was over.

I have no experience with this type of surgery just wanted to let you know that many on the board will keep you close to our hearts and in our thoughts as you take this big step.

I wish you nothing but the best and sincerly wish all goes well. Go ahead and have a total freak out then settle down and prepare yourself for surgery.

Take care - Tina

AnneCan
Posts: 3692
Joined: Oct 2009

Hi Elizabeth,

Congratulations on being in a position to have this surgery. I have not had surgery for my colon cancer yet; however in the original plan for me I was to have chemo + radiation for 5 weeks, then a break & then major surgery - a resection & hysterectomy, a break then liver surgery for 1 met. However, when they took the scans after my treatment, although the cancer in the colon had shrunken, they discovered that I had 4 liver mets & did not want to do the surgery at that time; they wanted to try to decrease the liver mets (this has been successful so far). So some day I may have surgery similar to yours. Here is the good news: you are young (my surgeon & oncologist refer to me as young & I am much older than you!) & they can remove all the cancer, it sounds like. I think they only offer this extensive surgery to people they feel have a good chance of success. I want to wish you all the best, know that I am rooting for you & hope you will let us know how it goes.

mimic
Posts: 4
Joined: Mar 2009

My husband had HIPEC in October with Dr. Bartlett in Pittsburgh. He had 1/3 of small bowel removed, more of his colon (I think less than 1/2 is left now), omentum, some lymph nodes and tumor that were on large and small bowel and HIPEC. I know that this is not as many "removals" as you are to have, but his recovery was relatively easy. He was in surgery for 8 hours, in ICU a couple of days. He had an ng tube for a few days and was released from the hospital 8 days after the surgery. We stayed in Pittsburgh for 3 more days, then flew home. He went back to work 3 weeks later. His scar did have some issues after we got home. I think that was from too much activity flying home, changing planes, carrying bags etc. He is a doctor (radiologist) so he and a surgeon at his hospital took care of it.

Time will tell how well it worked, but he had a clear scan Dec. 23 (which is a good start considering 5 weeks after his right hemicolectomy for his primary tumor his pre-chemo pet scan showed "worrisome areas" that turned out to be worrisome indeed)

If we can answer any questions that I didn't addresss, please ask.

Also, I have read about someone (I can't think who at the moment) on the Colon Club who had HIPEC with Dr. Tufts. You might want to search it on there.

Good Luck!

Mimi

mimic
Posts: 4
Joined: Mar 2009

I meant at Tufts with your dr.!!

linandtom
Posts: 67
Joined: Dec 2009

Did your husband have any liver mets?

mimic
Posts: 4
Joined: Mar 2009

He didn't have any liver mets.

Mimi

PGLGreg's picture
PGLGreg
Posts: 741
Joined: Jul 2006

I've only read about a few others who've done HIPEC, but I have the impression it's not quite as bad as it sounds. The fact that your doctors have agreed to proceed with HIPEC is a good sign. Lots of luck.

--Greg

Fight for my love
Posts: 1530
Joined: Jun 2009

Hi Elizabeth,you are in my prayers.I hope everything goes very well with you.Best luck and best wishes to you.

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

I'm so happy to hear Dr. Goodman will be helping you out and I'll be praying for you, your husband and the doctor!

Diane

lizbiz's picture
lizbiz
Posts: 121
Joined: Aug 2008

Thank you all! I'm really putting a lot of faith in this. I really wasn't counting on making it to the end of this year (I know I still may not - no guarantees) but I'm very encouraged by all of this and by Dr. Goodman's approach. He seemed hesitant at first due to my liver, but there's only one tumor there, it's been there for a year and hasn't multiplied - granted, it's now quite large, but it hasn't spread. He seemed to take that as a very positive sign. Also, it's clearly on the right edge of my liver and still very resectable.

I basically had a semi-meltdown in the exam room. I started bawling and telling him that I really saw this as my last and only chance as EVERYTHING has failed for me, that I knew that I wouldn't be cured, but I really needed to buy time in case anything comes up in the future that may help me. I really just emotionally presented everything I had. I don't know that that had a lot to do with his decision to take me on, but I was prepared to attach myself to his leg in true toddler style and not let go until he said yes.

I don't know what the future may hold for me, but I'm very happy (and totally freaked out) by this. Is this what being pregnant feels like? It's as close as I'll ever get to that.

Love,
Elizabeth

sfmarie's picture
sfmarie
Posts: 605
Joined: Aug 2009

This is the one chance for a "cure". The debulking, liver resection and HIPEC are the gold standard when they talk cure. Reach out to jenhopesandprays. She has had it done by Dr. Sugarbaker.

Good luck and you are in my prayers. I know it will be tough but you will get through it and i know a dance with NED is in your future.

philiptc
Posts: 4
Joined: May 2011

Hi Elizabeth,

How did your surgery go with Dr. Goodman? Could you please share what was done and how you are doing? I truly hope all is well.

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Unfortunately, Liz passed away several months ago.

I saw this post and her name and my heart stopped, but recognized that it was an old post that had been revisited.

Just wanted to let you know she is no longer with us.

philiptc
Posts: 4
Joined: May 2011

I cannot express how sorry I am to hear of her passing. We have a decision to make about the CRS/Hipec surgery and very little time to make it. I am new to this but may I ask what went wrong? How was the doctor? I apologize for asking but we are desperate. I understand if it is too painful to respond and will respect your decision.

tootsie1's picture
tootsie1
Posts: 5065
Joined: Feb 2008

Wow! That sounds like a MAJOR amount of surgery. I'll be praying that it goes extremely well. Have courage, dear!

*hugs*
Gail

ADKer's picture
ADKer
Posts: 150
Joined: Aug 2008

I have not had the extensive surgery that you will have. Looking at what will be removed though, I believe that the biggest recovery will still be from the liver resection. That I have done. It is difficult surgery but a lot of su have gotten through it. You will too. For me it was quite difficult for about 2 weeks. After that, it was kind of slow but certainly manageable. Two weeks that you have to get through, one day at a time. You can do it.

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Hi Elizabeth

It made me so happy to see your post!! I've been concerned for you for awhile and know you have felt despondent at times but was just hoping that something good would come to you.

And it looks like it finally has!!

I'm so glad that you now have an option and a plan of attack - now you're in some control and can dictate the flow of the fight.

That sounds like alot of surgery alright - you are certainly very brave and I applaud you for your courage - I'm so happy to see you post and I can feel the happiness in you for the first time...and this is wonderful.

I can't wait to hear how this story gets written...

-Craig

wifelover
Posts: 1
Joined: Dec 2009

Hi Elizabeth,

My wife had a HIPEC by Dr. Goodman at Tufts early of Dec, and she is recovering from surgery now. It was long and hard operation, about 12 hours, so recovering takes longer than normal surgery. She has been admitted twice through ER after dischaged, and still strugled with sharp pain and severe vomitting. But do not scary, we got a hope again, and she is getting better very bery slowly. Dr. Goodman is really nice and realy good man, he will take care of you very well, and all staffs in Tufts are pretty much kind and professional, you will be OK.
If you have any further question, please email me geumjoora@yahoo.com.

Goodluck,

wifelover

jayl
Posts: 1
Joined: Jan 2010

I'm actually sitting in the waiting area of the hospital now as she is recovering from her surgery. Today my mom had 2 sections of her colon removed, as well as her gallbladder, omentum, ovaries, and uterus. This was followed up w/ HIPEC.

Going into the surgery, she was diagnosed with stage 4 colon cancer about 6 months prior. She went through 10 rounds of chemo, which included Avastin and Folfox. This treatment worked especially well for her, as PET and CT scans after chemo treatment looked like normal healthy scans!

We decided to proceed with the surgery in an aggressive attempt to cure her cancer. Going into the surgery, we knew she would have the ascending portion of her colon removed and possibly her omentum. When the surgeon came out of surgery to give us an update, we learned that they had found small nodules on her peritoneum, ovaries, and uterus. Her gallbladder was swollen so they removed it and they also found small nodules on her lower colon so they had to remove that portion as well. She is going to have to use a bag and have follow up surgery in 2 months to reconnect the second portion of her colon. Time will tell how well she heals.

The good news out of all this is that the surgeon removed all visible traces of cancer. We are hoping and praying that it will have been worth all of the effort. I hope this helps and I hope to have helpful feedback for you after my mom has some time to heal. God bless and keep a positive attitude!

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Welcome to the forums! Wow, that is GREAT news! Wish they hadn't found more stuff but I'm glad they found what was there, got it out and are going for a CURE!

God bless and again, welcome.
Diane

philiptc
Posts: 4
Joined: May 2011

Hi Jay,

How is your mom doing since she had her surgery? Who was her doctor and how was he/she? Can you please let me know as we are faced with the decision of having this CRS/HIPEC procedure and are terrified.

God bless you and your family.

robinvan's picture
robinvan
Posts: 1014
Joined: May 2007

Missed this post on its first go round. What exciting, and scary, news. I hope all goes well for you.

Peace and blessings... Rob; in Vancouver

Lovekitties's picture
Lovekitties
Posts: 3372
Joined: Jan 2010

Glad you were tenatious enough to go for what you felt was right for you.

Glad your doc feels you are good candidate for what you wanted.

Hold on to the spirit that has gotten you this far.

Keep positive thoughts that your goal is attainable.

Wishing you sucess with the surgery and a speedy recovery from pain.

Marie

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Elizabeth, this major surgery is only a few days away. I just wanted to bump this to the top so all those who are rooting for you could jump in and send best wishes, good luck and prayers.

I've not forgotten you and am expecting good news!

Big hugs and prayers,
Diane

geotina's picture
geotina
Posts: 2123
Joined: Oct 2009

I Pm'd her a few days ago wishing her luck with her surgery. My goodness, that girl is so young and getting the motherload of surgeries. Hopefully, it will really help and aid her in beating this monster down. Good Luck Liz. Tina

Jennorti
Posts: 1
Joined: Dec 2009

Hi Elizabeth, just wanted to check and see how you are doing? My dad is having HIPEC with dr goodman on Tuesday. We are quite nervous but excited too.

Hope this email finds you well on your way to full recovery.

God Bless.

Jenn

NJC
Posts: 72
Joined: Nov 2010

*deleted* misread the date as this year when replying to previous post.

philiptc
Posts: 4
Joined: May 2011

Jenn,

How is your dad doing since he had his surgery with Dr. Goodman? How big was the surgery and how was the doctor and Tufts? I hope I am not intruding but we are faced with having to have this CRS/Hipec surgery and are terrified.

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