Mike49

dianetavegia
dianetavegia Member Posts: 1,942
edited March 2014 in Colorectal Cancer #1
Hi Mike, I haven't seen any update on you for a couple of months and then saw your reply to John saying no chemo is working for you. Are you okay, my friend?

Diane
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Comments

  • Kathleen808
    Kathleen808 Member Posts: 2,342
    Thanks for posting
    Diane,
    Thanks for posting this and letting Mike know we miss him.

    Mike,
    We are thinking of you and saying a prayer.

    Aloha,
    Kathleen
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Mike
    Good eye, Diane

    Mike - you always told me "dry socks and warm chow" remember?

    I hate to hear that the chemo is not working for you - there is so much about this disease that we all simply do not understand - why this works for one and not another and vice versa. I wish there were something comforting that I could tell you right now.

    For now, I just wanted to offer you my love and support and hope that something gets things rolling the other way in 2010!

    You've always been very supportive of me and I just want you to know that I have not forgotten about you either.

    -Craig
  • grammadebbie
    grammadebbie Member Posts: 464
    Prayers
    Dear Mike,

    Just want you to know that I am praying for you and your precious family. Please let us know how you're doing and if there is anything we can do for you.

    God Bless You,

    Debbie (gramma)
  • snommintj
    snommintj Member Posts: 601

    Prayers
    Dear Mike,

    Just want you to know that I am praying for you and your precious family. Please let us know how you're doing and if there is anything we can do for you.

    God Bless You,

    Debbie (gramma)

    Caris Dx
    I'm sorry to hear nothing is working yet. Here are some things you might could research and consider. DCA with or without THM.
    Ask Lisa about Neoplas. There are half a dozen really good clinical trials going on, olaparib and fostamatinib would be my first two choices.
    You're right about getting your cancer oncotyped though. If your cancer isn't responding to conventional treatment then you might have a cancer that is genetically similar to some other cancer. I've been doing a bunch of research. I can't find anything specific but from my reading I'm getting the impression that many colon cancers are genetically similar to breast cancers.
    Also, see if you can get your Dr to prescribe you the maximum dosage of Lovastatin. I've read several articles and studies from a decade ago that showed lovastatin improves the patients response to 5fu. This may help with your current drug treatment.
  • Mike49
    Mike49 Member Posts: 261
    Update on Mike49
    This is Mike's wife Jenny, I wanted to give you an update on Mike. As you know his cancer has been refractory to all traditional chemotherapy recommended for colon cancer. We recently discovered that the cancer had spread to his duodenum and was obstructing his small intestine. In addition the mets to the liver have increased in size and caused very serious liver complications. He has experienced a rapid decline in health in the past six weeks and has decided to go on hospice care. He decided he wanted to spend the remainder of his time at home and as comfortable as possible. I am taking care of him at home with the help of Hospice of the Valley. He is very weak most of the time and does not have the energy to interact with the discussion board.

    Please don't be discouraged because Mike's story does not have to be your story! I think of you all often and hope for a cure from this cruel and senseless disease. I hope you will all be NED soon and wish you luck in your fight!
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    Mike49 said:

    Update on Mike49
    This is Mike's wife Jenny, I wanted to give you an update on Mike. As you know his cancer has been refractory to all traditional chemotherapy recommended for colon cancer. We recently discovered that the cancer had spread to his duodenum and was obstructing his small intestine. In addition the mets to the liver have increased in size and caused very serious liver complications. He has experienced a rapid decline in health in the past six weeks and has decided to go on hospice care. He decided he wanted to spend the remainder of his time at home and as comfortable as possible. I am taking care of him at home with the help of Hospice of the Valley. He is very weak most of the time and does not have the energy to interact with the discussion board.

    Please don't be discouraged because Mike's story does not have to be your story! I think of you all often and hope for a cure from this cruel and senseless disease. I hope you will all be NED soon and wish you luck in your fight!

    Let him know that we love you all............
    and Jenny, thank you so much for allowing us to be part of Mike and your families life. Understandable how tough this is to us all especially your family, and know that anything at all you need please don't hesitate to ask. Love and Hope, Clift
  • dianetavegia
    dianetavegia Member Posts: 1,942
    Heartbroken
    Jenny, will you give Mike my love?

    Mike was diagnosed only a few months before me and was quick to befriend me and make me feel welcome. He had such a positive outlook on things. It breaks my heart to know he's not going to make it but I really appreciate you letting us know. Not knowing is agonizing.

    I'll be praying for all of you during this time and hope Mike is not in pain.

    For those who don't know Mike, here is a link to his intro to the group:
    Read Mike's Intro Here

    God bless,
    Diane
  • just4Brooks
    just4Brooks Member Posts: 980
    Mike49 said:

    Update on Mike49
    This is Mike's wife Jenny, I wanted to give you an update on Mike. As you know his cancer has been refractory to all traditional chemotherapy recommended for colon cancer. We recently discovered that the cancer had spread to his duodenum and was obstructing his small intestine. In addition the mets to the liver have increased in size and caused very serious liver complications. He has experienced a rapid decline in health in the past six weeks and has decided to go on hospice care. He decided he wanted to spend the remainder of his time at home and as comfortable as possible. I am taking care of him at home with the help of Hospice of the Valley. He is very weak most of the time and does not have the energy to interact with the discussion board.

    Please don't be discouraged because Mike's story does not have to be your story! I think of you all often and hope for a cure from this cruel and senseless disease. I hope you will all be NED soon and wish you luck in your fight!

    PM me anytime
    Hi Jenny.. I'm sure happy that Mike is home with his family and friends. Send him our love!!!


    Brooks
  • Shayenne
    Shayenne Member Posts: 2,342

    Heartbroken
    Jenny, will you give Mike my love?

    Mike was diagnosed only a few months before me and was quick to befriend me and make me feel welcome. He had such a positive outlook on things. It breaks my heart to know he's not going to make it but I really appreciate you letting us know. Not knowing is agonizing.

    I'll be praying for all of you during this time and hope Mike is not in pain.

    For those who don't know Mike, here is a link to his intro to the group:
    Read Mike's Intro Here

    God bless,
    Diane

    I'm
    very saddened to hear this, Jenny, and know that he is our brother and we will all be together one day. Your family will be in my prayers, he is a special person, always positive and sweet, and stuff like this really hurts and gets me down, once the disease gets worse. You always wish for 2nd and 3rd opinions, but then again, after awhile, people get sick of the fight, and do NOT give up, but just want to be free. I'm sure I'll be there one day, and know when it's time to stop. I hope he is not suffering, and please give him hugsss for me!

    Hugsss!
    ~Donna
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Mike49 said:

    Update on Mike49
    This is Mike's wife Jenny, I wanted to give you an update on Mike. As you know his cancer has been refractory to all traditional chemotherapy recommended for colon cancer. We recently discovered that the cancer had spread to his duodenum and was obstructing his small intestine. In addition the mets to the liver have increased in size and caused very serious liver complications. He has experienced a rapid decline in health in the past six weeks and has decided to go on hospice care. He decided he wanted to spend the remainder of his time at home and as comfortable as possible. I am taking care of him at home with the help of Hospice of the Valley. He is very weak most of the time and does not have the energy to interact with the discussion board.

    Please don't be discouraged because Mike's story does not have to be your story! I think of you all often and hope for a cure from this cruel and senseless disease. I hope you will all be NED soon and wish you luck in your fight!

    Mike the Angel
    Dear Jenny

    I had one of those mornings where I woke up and threw chlothes on to keep warm and immediately logged onto the board before doing anything.

    And the first thing I saw was this post - and it hit me very hard as I tried to clear the cobwebs out of my mind in reading this.

    I am HEARTBROKEN! I've always liked Mike and he's been a good friend and a nice guy to me always.

    I suppose since joining the board, that I've developed this "shield of naievete" that all of my friends are going to come through this OK and nothing bad will happen to the people I know - that others might not make it, but certainly not my friends. I think that is because the hurt is so great to think that one of us will not be with here with us and their families.

    I know the reality is quite different as I am a rational man. The difference to me is that I've become closely attached to so many friends here, that I just deny that something can go wrong - just a self protection mechanism to keep me sane. 'Cause it just pains me that people I know could possibly not be here one day. This is a new one for me - I've watched people pass away at my old cancer center and could acknowledge it, but it became different when I came here to the board - again, I get attached...I'm the type of person that is "In for a Penny - In for a Pound." There is no in between with me...if I love or like, then it is deeply, I just don't know another way and don't want to know another way.

    Please tell Mike from me these words:

    "DRY SOCKS and WARM CHOW" - from his friend Craig in Texas. He'll know what it means.

    I'm starting to cry now and getting emotional, so I'll just sign off. I'm going to think about Mike often and I'll still hold out hope that he'll get better, but I understand the realities from your post, so I'll prepare myself.

    I hope that he is comfortable and glad he is at home - if I had a wish it would be to leave this life at my home as well.

    Thank you, Jenny, so much for you update on Mike - he's a brave man who's now inspiring me with his courage and bravery in the face of a terrible adversary - may the Gates of Heaven swing wide open upon his arrival.

    And I want to also thank you as his CareGiver for all of your love and all you are doing for him right now - you are simply the best.

    God Bless YOU BOTH!!!
    -Craig
  • Kathleen808
    Kathleen808 Member Posts: 2,342
    Dear Mike and Jenny
    Dear Mike and Jenny,
    You and your beautiful family are in my prayers. Mike, you have been such support to me (and ****) during our time on the board. I hope and pray that your family has some peaceful time together.
    Jenny, I will hold you in prayer during this time. Even though Mike can't post, please know we will all be with you in thoughts and prayer.
    With aloha,
    Kathleen
  • KATE58
    KATE58 Member Posts: 299

    Dear Mike and Jenny
    Dear Mike and Jenny,
    You and your beautiful family are in my prayers. Mike, you have been such support to me (and ****) during our time on the board. I hope and pray that your family has some peaceful time together.
    Jenny, I will hold you in prayer during this time. Even though Mike can't post, please know we will all be with you in thoughts and prayer.
    With aloha,
    Kathleen

    YOU ARE IN MY PRAYERS

    YOU ARE IN MY PRAYERS
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Mike49 said:

    Update on Mike49
    This is Mike's wife Jenny, I wanted to give you an update on Mike. As you know his cancer has been refractory to all traditional chemotherapy recommended for colon cancer. We recently discovered that the cancer had spread to his duodenum and was obstructing his small intestine. In addition the mets to the liver have increased in size and caused very serious liver complications. He has experienced a rapid decline in health in the past six weeks and has decided to go on hospice care. He decided he wanted to spend the remainder of his time at home and as comfortable as possible. I am taking care of him at home with the help of Hospice of the Valley. He is very weak most of the time and does not have the energy to interact with the discussion board.

    Please don't be discouraged because Mike's story does not have to be your story! I think of you all often and hope for a cure from this cruel and senseless disease. I hope you will all be NED soon and wish you luck in your fight!

    So sad
    Jenny,

    It breaks my heart to read this. Mike has always been so kind and friendly here, and we will all miss his posts.

    I'm glad you have hospice there to help you, because I've heard they can be so comforting to the family as well as the patient.

    Please give Mike my love and let him know that we're all thinking of him and praying for him. I'm praying for you, as well.

    *hugs*
    Gail
  • Annabelle41415
    Annabelle41415 Member Posts: 6,715 Member
    Buzzard said:

    Let him know that we love you all............
    and Jenny, thank you so much for allowing us to be part of Mike and your families life. Understandable how tough this is to us all especially your family, and know that anything at all you need please don't hesitate to ask. Love and Hope, Clift

    So Very Sorry
    So sorry to hear of his decline and that nothing is working for him and also that his cancer has spread so quickly. Please let him know that he is thought of with kindness and a very brave person.

    Kim
  • Julie 44
    Julie 44 Member Posts: 476
    KATE58 said:

    YOU ARE IN MY PRAYERS

    YOU ARE IN MY PRAYERS

    Jenny
    Thank you so much for updating us on Mike..Caregivers are very important in our lives. You have been there for him through all of this and I know even if he doesn't say it much that it means alot ..It is a horrible monster and I am so very sorry that Mike has declined..Please tell him we all love him and he is in our prayers as you are also. Its so hard to see a love one decline in health. Know that we are here for you to keep posting to us because as you already know talking to our little family here does help alot.....I will be thinking and praying for both of you...JULIE
  • Julie 44
    Julie 44 Member Posts: 476
    KATE58 said:

    YOU ARE IN MY PRAYERS

    YOU ARE IN MY PRAYERS

    Jenny
    Thank you so much for updating us on Mike..Caregivers are very important in our lives. You have been there for him through all of this and I know even if he doesn't say it much that it means alot ..It is a horrible monster and I am so very sorry that Mike has declined..Please tell him we all love him and he is in our prayers as you are also. Its so hard to see a love one decline in health. Know that we are here for you to keep posting to us because as you already know talking to our little family here does help alot.....I will be thinking and praying for both of you...JULIE
  • HollyID
    HollyID Member Posts: 946
    Mike49 said:

    Update on Mike49
    This is Mike's wife Jenny, I wanted to give you an update on Mike. As you know his cancer has been refractory to all traditional chemotherapy recommended for colon cancer. We recently discovered that the cancer had spread to his duodenum and was obstructing his small intestine. In addition the mets to the liver have increased in size and caused very serious liver complications. He has experienced a rapid decline in health in the past six weeks and has decided to go on hospice care. He decided he wanted to spend the remainder of his time at home and as comfortable as possible. I am taking care of him at home with the help of Hospice of the Valley. He is very weak most of the time and does not have the energy to interact with the discussion board.

    Please don't be discouraged because Mike's story does not have to be your story! I think of you all often and hope for a cure from this cruel and senseless disease. I hope you will all be NED soon and wish you luck in your fight!

    You're all in my thoughts
    You're all in my thoughts and prayers.
  • dianetavegia
    dianetavegia Member Posts: 1,942
    Gosh
    My heart is just broken.

    Craig... I'm like you. I love BIG. It's hard to explain to people who are not like us. I love Mike and he will be missed.
  • Patteee
    Patteee Member Posts: 945
    Mike49 said:

    Update on Mike49
    This is Mike's wife Jenny, I wanted to give you an update on Mike. As you know his cancer has been refractory to all traditional chemotherapy recommended for colon cancer. We recently discovered that the cancer had spread to his duodenum and was obstructing his small intestine. In addition the mets to the liver have increased in size and caused very serious liver complications. He has experienced a rapid decline in health in the past six weeks and has decided to go on hospice care. He decided he wanted to spend the remainder of his time at home and as comfortable as possible. I am taking care of him at home with the help of Hospice of the Valley. He is very weak most of the time and does not have the energy to interact with the discussion board.

    Please don't be discouraged because Mike's story does not have to be your story! I think of you all often and hope for a cure from this cruel and senseless disease. I hope you will all be NED soon and wish you luck in your fight!

    oh man, I am so sorry
    Please

    oh man, I am so sorry
    Please know that we are holding you guys close in prayer. Hugs to your beautiful children!
  • SandyL
    SandyL Member Posts: 218

    Gosh
    My heart is just broken.

    Craig... I'm like you. I love BIG. It's hard to explain to people who are not like us. I love Mike and he will be missed.

    Aww, Jenny
    I am so terribly sorry to hear of Mike's situation and your entire family's as well. Please know that you are all in my prayers. I hope and pray that he's not in pain.
    Sandy