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Life after Folfox

Posts: 61
Joined: Jun 2009

I have a question for those of you who have been through the Folfox treatment after rectal surgery. My husband will finish 12 treatments in April and we are just wondering how long it takes for the energy to come back. Yes, we know everyone is different but just would like to get your input. I am thinking just the mental relief of knowing you are done has to be big. So once you were done with Folfox, what type of work were you able to do? Did you get fatigued during the day after finishing? Thanks to everyone on this board. It truly helps in many ways to read your thoughts, questions, and responses. May everyone have a Blessed New Year.

Fight for my love
Posts: 1530
Joined: Jun 2009

Hi there,my husband is going to finish the same treatment next April too,also for rectal cancer.For the time being,my husband has problems on the week of chemo,he usually recuperates after the chemo week is over.On the week without chemo,he tries to work.My husband is an engineer for a laser manufacture company,he works on very very expensive and delicacy laser systems, so his fingers are very very important,because one small mistake may damage millions of $.He got grade 1 neuropathy after 4 round of folfox,the oncologist doesn't want him to end up with permanent nerve damage on his fingers,so on the round 5,the oncologist suggested to skip the Oxaliplatin,if my husband's neuropathy reduces,on round 6,he may be back on the whole folfox.This morning I just asked how his fingers feel like,my husband said they are feeling better.Hope everything goes very well with your husband's treatment.Happy new year.

KATE58's picture
Posts: 300
Joined: Nov 2009

I was on folfox for 10 months.
I felt really crappy for 3-4 days,
then sorta crappy for another 3-4 days then just
fatiqued.By the time i started to feel better
it was time for my next treatment.
when I finished folfox, it was 2-3 months before I
got my energy back, and I wouldn't say back to the level it was BEFORE I got sick, and only a month for the neuropathy to completly go away.
good luck
God bless

dianetavegia's picture
Posts: 1953
Joined: Mar 2009

My fatigue went away during my off weeks and I didn't have much fatigue after chemo. I'm 4 1/2 months out from chemo and feel great. I do still have fingertip and feet neuropathy, but I'll gladly live with that.... LIVE with that. :o)

Buzzard's picture
Posts: 3073
Joined: Aug 2008

and I can honestly say all of its not back yet but I can do almost everything I did before...Buzzard

lmliess's picture
Posts: 331
Joined: Dec 2008

My last chemo was Sept 8. Every week after that I started feeling better and better. As of now, I really feel great. I just have a little neuropathy in my hands and my feet and my rear end where I had radiation and surgery still hurts a bit but a small price to pay to have gotten the beast out of my body!

patsy1954's picture
Posts: 85
Joined: Sep 2009

I got my last of 12 treatments on October 19th. Was geeling pretty good by November 1st. Started working part time on that date and back to full time work on December 1st. I am on Xeloda and Avastin and doing fine. Counts dropped two weeks ago, had a one week delay in treatment and now back on track. Still feeling fine, just hate the neuropaty in hands and feet.


Patteee's picture
Posts: 950
Joined: Jul 2009

I think the big factor is the oxy- I got like 5 treatments full dose, then three reduced dose and then 4 with no oxy. I would say that oxy is the meanie, kick ones butt to the curb and back again drug. I think your husbands energy level in April will depend on when they start to reduce that drug or totally omit it. I was hospitalized for a week after my 8th treatment and took probably several months before I could function. Seriously, those months on oxy and regaining my energy level were the worse times and definitely I felt and looked like a cancer patient. I am a teacher and went from full days to part days to 1-2 days a week at half time.

Everybody is different with this- you really will get a wide range of responses.

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