Cramping, bloating, nausea

Cecile Louise
Cecile Louise Member Posts: 133
edited March 2014 in Uterine Cancer #1
I am almost 2 years out from my total hysterectomy, (endometrial & upsc, stage IB) and it's about a 1-1/2 years since my last chemo treatment (no radiation). For the last 7 weeks, I've been experiencing menstrual-type cramps (I keep feeling like I need to run to the restroom to see if I've started my period, LOL), bloating, a feeling of fullness or pressure in my lower abdomen, mild lower backache, the need to empty my bladder more often, and frequent (small) bowel movements. Has anyone else experienced these symptoms this far out from surgery? I have 2 titanium clips left in from my surgery and have experienced bad reactions to titanium hardware (knee surgery) before. I told my doctor all of the above. He is absolutely certain that the clips aren't the culprit (even with my history of titanium allergy) and he is ordering a CAT scan, but also indicated that he wanted to make sure "your mind isn't playing tricks on you" ...his words(sigh). I am trying to stay upbeat (maybe this is just a gastro-intestinal thing or adhesions/scar tissue ?) but of course that evil little "what if" lurks in the back of my mind. Thanks for giving me space to vent...and do let me know if anyone else has (or is) experiencing something similar.

Hugs to you all!
Cecile
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Comments

  • california_artist
    california_artist Member Posts: 816 Member
    Very concerned
    How soon til your doctor's appointment. Seems like you should be seen by somebody immediately. If your doctor's appointment is more than a week away, you might even consider going to the emergency room, where they might be likely to consider your problems not "just in your mind."

    I swear, I may just land a punch to the next doctor that throws that tidbit out there and tell him it was just a figment of his imagination at work. Silly doctor.

    Hugs, right back at ya,

    Claudia
  • kkstef
    kkstef Member Posts: 688

    Very concerned
    How soon til your doctor's appointment. Seems like you should be seen by somebody immediately. If your doctor's appointment is more than a week away, you might even consider going to the emergency room, where they might be likely to consider your problems not "just in your mind."

    I swear, I may just land a punch to the next doctor that throws that tidbit out there and tell him it was just a figment of his imagination at work. Silly doctor.

    Hugs, right back at ya,

    Claudia

    Concur with Claudia
    Cecile.....I am hoping that you are getting your scan done real SOON! If not, I do think you need to see another dr. Do you have a GP that you go to? That person may be able to get you evaluated sooner! Your symptoms are NOT in your head!!!! ARGHHHHH!!

    Karen
  • Kaleena
    Kaleena Member Posts: 2,064 Member
    Go with your instinct
    Cecile:

    Doctors are not mind readers. Some doctor's just go by the charts. To ease your mind, I would request either CT Scan or PET Scan. Further, some doctors are not listening to what you are saying. I would also ask another doctor's opinion. Remember you are the one who cares about your health! And since it has been going on for 7 weeks, I would certainly demand another opinion and/or scans.

    Let us know! We care about you!

    Kathy
  • Cecile Louise
    Cecile Louise Member Posts: 133
    Kaleena said:

    Go with your instinct
    Cecile:

    Doctors are not mind readers. Some doctor's just go by the charts. To ease your mind, I would request either CT Scan or PET Scan. Further, some doctors are not listening to what you are saying. I would also ask another doctor's opinion. Remember you are the one who cares about your health! And since it has been going on for 7 weeks, I would certainly demand another opinion and/or scans.

    Let us know! We care about you!

    Kathy

    CAT scan set for tomorrow!
    Thank you all SO, SO much for your support. Your concern has galvanized my resolve to get to the bottom of this. Unfortunately, I *still* tend fall into that "maybe he's right, he IS a doctor, after all, maybe I AM just imagining this" trap. Thanks for not letting me go there!!
    I'll let y'all know how the CAT scan goes.
    Again, thanks for helping me keep on the right track.

    Hugs,
    Cecile
  • kkstef
    kkstef Member Posts: 688

    CAT scan set for tomorrow!
    Thank you all SO, SO much for your support. Your concern has galvanized my resolve to get to the bottom of this. Unfortunately, I *still* tend fall into that "maybe he's right, he IS a doctor, after all, maybe I AM just imagining this" trap. Thanks for not letting me go there!!
    I'll let y'all know how the CAT scan goes.
    Again, thanks for helping me keep on the right track.

    Hugs,
    Cecile

    BIG HUGS TO CECILE
    We will all be thinking about you tomorrow and will anxiously wait for your update! I am SOOO relieved that you are moving ahead and getting this checked out!

    Prayers and hugs to you!!!

    Karen
  • california_artist
    california_artist Member Posts: 816 Member
    kkstef said:

    BIG HUGS TO CECILE
    We will all be thinking about you tomorrow and will anxiously wait for your update! I am SOOO relieved that you are moving ahead and getting this checked out!

    Prayers and hugs to you!!!

    Karen

    Ditto to Karen's sentiments
    Warm hugs and don't panic.
  • Ditto to Karen's sentiments
    Warm hugs and don't panic.

    This comment has been removed by the Moderator
  • Cecile Louise
    Cecile Louise Member Posts: 133
    CAT scan clear!!!!
    Nothing untoward showing on my CAT scan, except for some cysts in my liver and some mild diverticuloses, so now we're on a hunt to find out what is causing the cramps, nausea, etc. Onc is sending me to a urologist and if that doesn't show anything, I'll see a GI guy.
    Thank you all for holding my hand...I'll keep you informed as the saga progresses.

    Love, love,
    Cecile
  • Kaleena
    Kaleena Member Posts: 2,064 Member

    CAT scan clear!!!!
    Nothing untoward showing on my CAT scan, except for some cysts in my liver and some mild diverticuloses, so now we're on a hunt to find out what is causing the cramps, nausea, etc. Onc is sending me to a urologist and if that doesn't show anything, I'll see a GI guy.
    Thank you all for holding my hand...I'll keep you informed as the saga progresses.

    Love, love,
    Cecile

    Cecile
    Great news on your

    Cecile

    Great news on your CAT scan!
  • shortmarge
    shortmarge Member Posts: 291
    Kaleena said:

    Cecile
    Great news on your

    Cecile

    Great news on your CAT scan!

    Ceclie
    That's wonderful... You have a very Merry Christmas!
  • Ro10
    Ro10 Member Posts: 1,561

    CAT scan clear!!!!
    Nothing untoward showing on my CAT scan, except for some cysts in my liver and some mild diverticuloses, so now we're on a hunt to find out what is causing the cramps, nausea, etc. Onc is sending me to a urologist and if that doesn't show anything, I'll see a GI guy.
    Thank you all for holding my hand...I'll keep you informed as the saga progresses.

    Love, love,
    Cecile

    Cecile so happy for your good news
    So happy for your good CAT scan results. Hope you can get an answer for your cramps and nausea and hope you are feeling better soon. In peace and caring.
  • kkstef
    kkstef Member Posts: 688

    CAT scan clear!!!!
    Nothing untoward showing on my CAT scan, except for some cysts in my liver and some mild diverticuloses, so now we're on a hunt to find out what is causing the cramps, nausea, etc. Onc is sending me to a urologist and if that doesn't show anything, I'll see a GI guy.
    Thank you all for holding my hand...I'll keep you informed as the saga progresses.

    Love, love,
    Cecile

    GREAT NEWS!!!!
    Cecile....WHEW!!!I am soooo relieved to hear your report. That is GREAT news, especially before the Holidays. So relax and enjoy everything.....and then you can get back on the trail of what is causing the nausea and cramps.

    Such happy news! Karen
  • TiggersDoBounce
    TiggersDoBounce Member Posts: 408
    kkstef said:

    GREAT NEWS!!!!
    Cecile....WHEW!!!I am soooo relieved to hear your report. That is GREAT news, especially before the Holidays. So relax and enjoy everything.....and then you can get back on the trail of what is causing the nausea and cramps.

    Such happy news! Karen

    Awesome news Cecile
    ::::Doing the happy dance::::


    Laurie
  • CAT scan clear!!!!
    Nothing untoward showing on my CAT scan, except for some cysts in my liver and some mild diverticuloses, so now we're on a hunt to find out what is causing the cramps, nausea, etc. Onc is sending me to a urologist and if that doesn't show anything, I'll see a GI guy.
    Thank you all for holding my hand...I'll keep you informed as the saga progresses.

    Love, love,
    Cecile

    This comment has been removed by the Moderator
  • california_artist
    california_artist Member Posts: 816 Member
    unknown said:

    This comment has been removed by the Moderator

    Patricia
    Hi, sometimes the bladder gets nicked during the surgery. That could have happened to you. Your idea of a visit to the urologist sounds marvey pooh. Try to cheer up. I love you, even though you are way, way out there at times. I can be a very endearing quality.

    That's ah, the regular kind of love, not the girly with girly kind.

    I think someone spiked my coffee, I've gone loopy!!!!!!!!!!!!!!!!!!!!
  • california_artist
    california_artist Member Posts: 816 Member
    kkstef said:

    Concur with Claudia
    Cecile.....I am hoping that you are getting your scan done real SOON! If not, I do think you need to see another dr. Do you have a GP that you go to? That person may be able to get you evaluated sooner! Your symptoms are NOT in your head!!!! ARGHHHHH!!

    Karen

    Karen
    I just love it when people concur with me. Hat's off to ya!! or me, I forget.

    My coffee is definately spiked. You know, now that I think about it, I did get a different brand. It's one of those fair trade coffee things, it doesn't say what they traded it for,maybe they traded some of the coffee for marijuana. I better read the label.

    Love your emails. Thanks.

    Claudia
  • Patricia
    Hi, sometimes the bladder gets nicked during the surgery. That could have happened to you. Your idea of a visit to the urologist sounds marvey pooh. Try to cheer up. I love you, even though you are way, way out there at times. I can be a very endearing quality.

    That's ah, the regular kind of love, not the girly with girly kind.

    I think someone spiked my coffee, I've gone loopy!!!!!!!!!!!!!!!!!!!!

    This comment has been removed by the Moderator
  • california_artist
    california_artist Member Posts: 816 Member

    CAT scan clear!!!!
    Nothing untoward showing on my CAT scan, except for some cysts in my liver and some mild diverticuloses, so now we're on a hunt to find out what is causing the cramps, nausea, etc. Onc is sending me to a urologist and if that doesn't show anything, I'll see a GI guy.
    Thank you all for holding my hand...I'll keep you informed as the saga progresses.

    Love, love,
    Cecile

    Cecile
    When I read that you scan was "clear except for some cysts in my liver," it really nagged at something in the back of my mind. I decided to let it go til Christmas was over. The nagging is because I'm not certain you can tell the difference between a cyst and cancer on a CT scan. I was wondering if your doctor had thought or offered to do further testing to make certain it is only a cyst. Like I menitoned I don't know how reliable a CT is in deciphering cyst from cancer. Please ask your doctor if he or she would be willing to stake their life on the CT scan results being accurate.

    That, in combination with cramping nausea and bloating? I'm worried.

    Sorry, but I have an obligation to say something.

    Sincerely,

    Claudia
  • daisy366
    daisy366 Member Posts: 1,458

    Cecile
    When I read that you scan was "clear except for some cysts in my liver," it really nagged at something in the back of my mind. I decided to let it go til Christmas was over. The nagging is because I'm not certain you can tell the difference between a cyst and cancer on a CT scan. I was wondering if your doctor had thought or offered to do further testing to make certain it is only a cyst. Like I menitoned I don't know how reliable a CT is in deciphering cyst from cancer. Please ask your doctor if he or she would be willing to stake their life on the CT scan results being accurate.

    That, in combination with cramping nausea and bloating? I'm worried.

    Sorry, but I have an obligation to say something.

    Sincerely,

    Claudia

    I had the same thoughts, Cecile
    I ditto Claudia. I think you should see your GYN/ONC.
    Mary Ann
  • Cecile Louise
    Cecile Louise Member Posts: 133
    Love you guys!
    Thank you for all your comments, thoughts and for keeping me on track here. No, my onc explained that the cysts are common and has not ordered any additional tests. My CAT scan report lists 3 stable cysts of varying sizes and 1 hypodensity in my liver, but then says "otherwise normal liver". Since he said it was normal or common I haven't given it much thought (can you say "denial"? LOL) but I'm pulling my head out of the sand. My onc has recommended that I see a urologist (I'm seeing him today) and if he can't figure out why I'm cramping, then I'm off to see a Gastro-guy. In addition, thanks to y'all, I've decided to be a little less passive and give my GP & my regular Gyno-guy a call and see what they have to say. One thing I'm learning: fear can make an otherwise fairly intelligent person (me) do some pretty stupid stuff (like ignoring something, hoping it will go away). I'm still not convinced my symptoms are not caused by the titanium clips, since I had a bad reaction to titanium before, but regardless, I need to get to the bottom of this. My life just may depend on it. Thanks for reminding me of that - and for just being here with me.
    Hugs to you all
    Cecile