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Neutlasta
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Dec 14, 2009 - 10:33 am
Hi! I am getting so sick after the white count shot. I thought this was suppose to make me feel better. Can anyone share with me any side affects they get from this ugly shot. I wonder if it's a bad solution. Does it need to stay frozen until maybe the day before. Because it arrives frozen and then I put it in the fridge for two more weeks. Thanks. |
Joined: Sep 2009
I have Neupogen
I don't get Nuelesta, but get Neupogen.
I have to go in for 2 or 3 shots on tx weeks.
It has to stay refrigerated, but the trick is to warm it before you get the injection, and inject it very slowly. Then it doesn't hurt.
It does cause severe chest pain for a few days for me. A heating pad is a big help - one of the nurses suggested it and it really works for me.
Without the shots I could not stay on schedule for chemo. I'd have big breaks waiting for my count to come back. Plus while you are waiting for your count to come back you can't go in public places and are at a big risk for getting ill. So I'll take the discomfort from the shots instead.
Joined: May 2008
My husband
had some bone pain his shoulders would hurt.
michelle
Joined: Aug 2009
HI!
Thanks. I get really really tired and fuzzy in my head and some stomach discomfort for a couple days. Bones are hanging in there. I'm thankful it hasn't been this way for the entire time on treatment but for the past two shots it has been a monster. But like Kathy suggests it is worth not getting sick over. Take Care and stay Festive.
Joined: Aug 2008
Hold it in your hand ...........
until it gets body temp.....then inject it very slowly...If it starts to sting any at all slow down...I believe it can be taken in the arm or in the belly. I took mine on the backside of the arm..Side effects were very slight headache and some vague type of lower back acheness.Pretty much it...
Joined: Aug 2009
HI!
Thanks. Buzz. I will do that but I'm not one to give it to myself. I would probably pass out on the floor - but on my way to the Onc. office I will keep it in my hand to make it room temp. The nurse always gives it to me in the back of the arm also but she does it quickly. I will ask her this time to slow it down. thanks again for the great advise. Have a great day!
Joined: Oct 2008
i think
that was the trick for mine.my nurse put it in slow and in my stomach.i did have some bone pain in my legs for a few days.good luck...Godbless....johnnybegood
Joined: Nov 2009
YEAH,IT HAS TO BE BODY
YEAH,IT HAS TO BE BODY TEMP
TAKE IT OUT OF FRIDGE AT LEAST 1/2 HOUR BEFORE.
I USED TO GET A BIT NAUSEOUS AND A HEADACHE ABOUT AN HOUR
AFTER THEY WOULD GIVE ME THE SHOT.IT IS A ROUGH SHOT IT IS THICK AND HAS TO BE GIVEN SLOW AND BURNS A BIT.
ALSO THEY WERE VERY ADAMENT ABOUT WAITING 24 HOURS AFTER PUMP DISCONNECT.
I HAD TO CALL THEM WHEN I WAS DISCONNECTED AND IF IT WAS 2PM THURS AND I
SHOWED UP FOR THE SHOT AT 1PM FRI,THEY MADE ME SIT AND WAIT AN HOUR TIL 2PM
KATE
Joined: Aug 2009
HI1
Thanks. I am disconnected on Sat. afternoon and don't get the shot until Monday morning so I'm okay that way. I need to warm it up abit for sure and ask the nurse to go slowly. Thanks for your thoughts. Have a nice night. Hugs.
Joined: Aug 2009
HI!
Thank you JBG. I hope your feeling good these days. God Bless you. Hugs.
Joined: May 2009
Hi
I also had the mucous built up in the nose and vaseline did help. My voice always left day 1-3 of chemo. Great advice given here. Take care. Hope you start feeling better.
Raquel
Joined: Jul 2008
Neulasta vs. Neupogen
Hi,
I'm sorry to hear you're having a hard time with the neulasta shots. Someone else just mentioned that they take neupogen and not neulasta. I have taken both at different times. Everyone's body is different and reacts differently. Make sure you take a tylenol or an advil about a 1/2 hr. before you get the shot. It does help.
I had a horrible experience while taking neupogen (these are the ones you have to take a few days in a row). I had such crushing pains in my sternum from it that I literally thought I was having a heart attack. It scared me so much that my onc sent me in right away to get an ECG done, which turned out normal. My onc then thought it was a fluke and so had me take neupogen again after the next chemo & it happened again. I will never take it again. Next time, they switched me to a neulasta shot (which is one shot only vs. the several of neupogen). I was scared I'd get the same reaction again, but I literally had no reaction at all and no pains. I was surprised, but pleased. I then got a neulasta shot every time I was unhooked from the 5FU pump & never had any problems. I did remember to always take 2-3 advils right before getting the shot. That's all the advice I have. Other than maybe try the neupogen. Everyone's different & I've heard of some people who had the reverse experience as I did in that they tolerated the neupogen better than the neulasta. Talk with your onc and/or oncology nurse about it.
Best wishes to you-
Lisa
Joined: Aug 2009
hi1
Thank you Lisa for your great advise. I am so sorry you had to experience such pain. I'm thankful that they were able to detect the cause easier than some other problems we here can experience. I did consult with my Onc today and that is what he advised me to do - take the advil before the shot. And I will definitely do it. Oh what a sick feeling I've been getting I will do anything to get rid of it for sure. I hope all is well with you and you are getting great joy from this Holiday Season. Take Care and God bless.
Joined: Apr 2009
Hello
I also get Neulasta. I get it in the back of the arm. I have never had any problems...side effects except 1 time when my hips were a little sore so and I mad myslf walk to keep movement going instead of laying idle. It helped. The first few shots I ever got stung a lot and I asked the board about it. Buzzard told me the same advice he just told you.... about telling them to slow down while injecting. I tell them all the time now BEFORE they start to be gentle with me :) Never had stinging again. take care
Jennie
Joined: Aug 2009
HI!
Thanks for your time and great advise. What a beautiful child you have. God Bless her. This Monday I will get it again. I get the flu like feeling, no fever, but very tired and irritable from it lately. I am going to try and take advil 1/2 hr before the shot and really force myself to take a walk. Unfortunately the temp dropped drastically here which makes it twice as hard gettiny myself out there. But I was thinking maybe I'll shortened them and make them 2 or 3 times a day instead. Need to pray it that for sure. lol. Take Care and God Bless. Hugs to you and the little one.