Hello Cancer Fighters and Survivors. I hope everybody is doing well. I am 4 weeks out of 35 consecutive rads and 6 treatments of Erbitux. Aside from the rash from Erbitux, I was doing pretty good until the end of week 6. the rad cone down of week 7 and the first 10 days of recovery were very tough. In week 2 of recovery, my neck started healing, it looked like a charbroiled steak. I gave up the tube 10 days ago. I have put back about 8lbs. Hopefully the tube will be gone next week. Food is okay, not great, better than the tube. Actually started drinking coffee again over Thanksgiving.
I have been going through the posts because I have not been around for a while. I am really doing pretty good and am very happy and fortunate. For the new people, this is a very tough treatment. Everyone responds differently, you will make it and the treatment will end. To me words cannot describe the ordeal. the best and simple advice is "one day at a time". Try not to project too far into the treatment. Somehow, as humans, we find a way to overcome tremendous obstacles and heal. I mean, 3 weeks ago, I was on the ground and barely cared what my name was, today I feel 500% better. My mouth is dry but getting better, taste is comming back slowly, and I can work without having to take a nap, and I don't have to sleep till noon. Unfortunately, fear and worry are part of the treatment and recovery, to me the worst part. Remember, the tough times will end and your new life begins. Hang in there and be well. Alex.