Nov 20, 2009 - 10:34 pm
Went to the doctor on Thursday. The CA 125 is up to 55.2. It was 42 on the 10/29. The doctor says he does not treat numbers. He treats when the CAT scan shows something. My CAT scan was negative again. That was good news.
He said the infection pocket I had in my abdomen was from a lymph node biopsy. He said that at times fluid pockets can occur. I am not sure how it got E-coli in it though? I was going to ask him, but he was talking about something else, and I forgot to ask him. The fluid collection area continues to get smaller.
He said that some people's CA 125 will stabilize in the hundreds or even 1000's and the CAT scans remain negative. So his recommendation is to continue to observe the CA 125. I will have a repeat lab in 6 weeks, and then if it is 80-100 I will have a repeat CAT scan.
He also said if I had any symptoms - bleeding, bloating, pain, nausea and vomiting, to let him know. I told him it is pretty scary to observe, when I have never had symptoms before and I was diagnosed with stage III-C. He said , yes, the cancer is very sneaky.
He said to treat with chemo now, could depress the bone marrow, and then when I really needed the chemo I would not be able to take it. I asked if the chemo would be the same Taxol/Carbo. He said if the cancer reoccurred within 6 months of my last chemo (which was August) then he would use different chemo. He said UPSC is similar to ovarian cancer, but insurance companies will not reimburse for ovarian cancer drugs. He said he finds this very frustrating. But the hospitals will not approve drugs that are not reimbursed.
He said he felt I would need to go back on treatment in 3, 6 months or within the year. Not the news I wanted to hear, but I appreciate his being upfront with me. I do have confidence in him.
So for 6 weeks I will continue to enjoy each day. We are leaving for our Mediterranean cruise on Wednesday. We will be gone for 12 days. We are looking forward to the trip very much.