My maternal first cousin who lives in Germany has what you have. I have UPSC - papillary serous endometrial. I wonder if there is any genetic connection to these rare cancers. She was raised in Germany, me in the US. She has been battling this for a couple of years.
I was just diagnosed with leiomyosarcoma too. I think that there are others on the board, although the spelling is so hard that searches sometimes come up empty.
I found references that other members with leiomyosarcoma are RuthRose,Gma,selena, Reneekarin1969, and more, although some are really old.
i was dig w/lms 8/2009. just finished chemo. below is a web site for people with lms only. Also, look under sarcoma in the "discussion boards" - there's 2 for lms
Are u on chemo now? I was diagnosed in Nov 08. LMS Stage 4b. Went thru 6 rounds of chemo ( doxorubicin and infosamide). had A radio frequency ablation done to burn off the resistant tumour in my liver in March last year. Was put on mecgace for 8 months an put on a lot of weight. About 1 kilo a month. Oncologist had change it to femara. Lost weight but other side effects. Stiff joints and very painful hand arthritis!!!
I just found out three days ago that I have leiomyosarcoma in my uterus. I am still trying to deal with all of the unknowns. I have a 7yr old son and I have no idea what to tell him at this point since my OB isn't able to tell me anything about the cancer. I have two oncologists lined up, appts have been made, now I am just waiting for next week to get here so I can get more info.
Hello my name is Tracy Wilson. I am here if you need any questions answered or any ideas??? I was diagnosed almost 2 years ago and I have been cancer free since. Please let me know how things are going! I can help you through this!
I had pelvic radiation and internal vaginal radiation. It took and still is taking a while to get over! All is good mostly! I go to my 3 month on Friday to see how things are going!
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Joined: Mar 2009
Wing and a prayer
My maternal first cousin who lives in Germany has what you have. I have UPSC - papillary serous endometrial. I wonder if there is any genetic connection to these rare cancers. She was raised in Germany, me in the US. She has been battling this for a couple of years.
I wish you well. Blessings, Mary Ann
Joined: Jan 2010
I have leiomyosarcoma too
Hi wing,
I was just diagnosed with leiomyosarcoma too. I think that there are others on the board, although the spelling is so hard that searches sometimes come up empty.
I found references that other members with leiomyosarcoma are RuthRose,Gma,selena, Reneekarin1969, and more, although some are really old.
Joined: Sep 2009
wing - i have it too
i was dig w/lms 8/2009. just finished chemo. below is a web site for people with lms only. Also, look under sarcoma in the "discussion boards" - there's 2 for lms
http://listserv.acor.org/archives/l-m-sarcoma.html
Joined: Mar 2010
Anyone with Leiomyosarcoma
Are u on chemo now? I was diagnosed in Nov 08. LMS Stage 4b. Went thru 6 rounds of chemo ( doxorubicin and infosamide). had A radio frequency ablation done to burn off the resistant tumour in my liver in March last year. Was put on mecgace for 8 months an put on a lot of weight. About 1 kilo a month. Oncologist had change it to femara. Lost weight but other side effects. Stiff joints and very painful hand arthritis!!!
Joined: Apr 2010
I was just diagnosed
I just found out three days ago that I have leiomyosarcoma in my uterus. I am still trying to deal with all of the unknowns. I have a 7yr old son and I have no idea what to tell him at this point since my OB isn't able to tell me anything about the cancer. I have two oncologists lined up, appts have been made, now I am just waiting for next week to get here so I can get more info.
Joined: Jul 2004
hystersisters
No disrespect to this board but you might find more immediate information on Hystersisters -
http://www.hystersisters.com/vb2/forumdisplay.php?f=6
as this board is very difficult to navigate. Having said that, if you know what to look for, its an invaluable resource. There other links out there -
http://www.mskcc.org/mskcc/html/13242.cfm which is the link to Sloan Kettering
and http://www.leiomyosarcoma.info/steptwo.htm, this one deals in with all leimyosarcoma and has a page devoted to Uterine Leiomyosarcoma.
Whatever you read, remember every case is unique and your doctors will be the best resource.
Joined: Jul 2010
I have a 7 yr old and I too had Leiomyosarcoma
Hello my name is Tracy Wilson. I am here if you need any questions answered or any ideas??? I was diagnosed almost 2 years ago and I have been cancer free since. Please let me know how things are going! I can help you through this!
Joined: Jun 2010
Hi Tracy
Can you please tell what kind of treatments you had?
Joined: Jul 2010
I had pelvic radiation and
I had pelvic radiation and internal vaginal radiation. It took and still is taking a while to get over! All is good mostly! I go to my 3 month on Friday to see how things are going!