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Are there any other MMMT survivors out there?

1975goatgirl
Posts: 1
Joined: Nov 2009

I am a 34 yr old woman who was diagnosed with stage 4B uterine MMMT. Mine had metastasized to my omentum, colon, appendix and most of my pelvic and abdominal lymph nodes. I am 3.5 years in remission. I would love to hear from other survivors. I know this is a very uncommon cancer in relation to most uterine cancers. I've never talked to anyone else with it.

My email is kisses4fluffies@yahoo.com

Thank you,

Carrie

sapna16p
Posts: 3
Joined: Aug 2019

Hey ... i wish someone is reading this ... my mother was diagnosed  with MMMT grade 1 last year and we did a radical hysteractomy and radiotherapy. post which she was in the green for some time and now she has 2 new growths in her intestine and about to go through another surgery. i know somewhere that this is not the new i was hoping for but tis there anyone out there who has a sotry similar to mine and has come out in the green to the other side. 

 

feeling dejected and alone. please help i would greatly appreciate. 

Jairoldi's picture
Jairoldi
Posts: 202
Joined: May 2017

Good morning Sapna,

I feel the pain in your post. It is so hard to sit with the unknown. I don't have any experience with what you are asking about but want to assure you that others will be along soon to share their experiences with you. 

cmb's picture
cmb
Posts: 353
Joined: Jan 2018

I'm sorry to hear that your mother's cancer has recurred so quickly, but unfortunately uterine carcinosarcoma (MMMT) is a very aggressive type of uterine cancer that can recur, even when caught early as your mother's was.

I assume that her doctor will be recommending chemotherapy after her next surgery, if her overall health permits this type of treatment. There was a recent report from a clinical trial that compared the chemo drugs Paclitaxel plus Carboplatin (PC) to Paclitaxel plus Ifosfamide (PI) in women with stage I-IV, recurrent carcinosarcoma of the uterus or ovary. This trial indicated that the PC combination treatment should be considered a standard of care for this patient population.

You can read the full summary at:

https://www.eurekalert.org/pub_releases/2019-06/no-not_1053119.php

I was diagnosed with Stage 3B MMMT in 2016. Although I have not had a recurrence yet, other women on this board have had to deal with spread of other, equally rare types of uterine cancer.

If you have more questions as you learn about what is planned for your mother, I recommend that you create a new topic. This is a very old discussion and many of the women who used to post here no longer do so.

You can always see when someone last posted by clicking on the user name in the blue box to the right of the comments. Some members like myself, have also posted information about our treatments as part of their profile.

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