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Familial Adenomatous Polyposis (FAP) and Stomach Precancerous polyps

Posts: 2
Joined: Oct 2009

I am a 40 year old female, several years ago I was diagnosed with FAP (Familial Adenomatous Polyposis, A rare inherited cancer predisposition syndrome. Since the diagnosis I have been receiving annual colonoscopy. The average amount of polyps collected from my colon were 10-15, in which none of them were cancerous. This particular year I received an upper endoscopy and a colonoscopy. The upper endoscopy showed I had polyps covering the entire stomach, 2 of the polyps collected showed evidence of low grade dysplasia. Now the doctors are interested in giving me a Total Gastrectomy with Roux-en-Y Esophago-jejunostomy (whatever that means?).And in the future, I am to consider a full removal of the colon. Are these to diseases both related with FAP? Is there a local support group of patients living with the FAP disease in my area(Laurel, Maryland area)? This is all new to me and I am so nervous right now. I know the surgery is very important to me and the doctors are considering this for precautionary measures. I just don’t understand, how am I going to live without a stomach and a colon or have problems related to the surgery. Thanks

SonSon's picture
Posts: 186
Joined: Jul 2009

If you have not done so already try posting in the discussion boards for Colorectal Cancer. I am sure that you will get guidance there.

Posts: 1
Joined: Feb 2011

I also have FAP. I had my colon removed in 2009. It went well. I would recomend it being removed. I had my yearly endoscopy and colonoscopy this week and thought all would be ok. My rectom and small intestin was ok but when they went into my stomach it was loaded. My doctor said she might have to remove part of my stomach. I am very nervous. Did you have the Roux-en-Y Esophago-jejunostomy? If so how did it go? Any information would be helpful. I have not been able to find any information about FAP and stomach removal.
Thanks a bunch
Aslo, the Mayo clinic has an FAP support group.

Posts: 7
Joined: Aug 2011

Have any of you gone through the stomach surgery and how are you doing?

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