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newby with questions

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Hi. I am a newby from NM. Recently diagnosed-stage 3- one lymph node involved. I started the Oxi-Leucovorin-5FU on Sept 22nd. The first week wasn't too bad except for the "jaw lock" and the throat constiction with the intolerable cold. The second week has been worse as far as all the symptoms especially the nausea and the fatique. Mouth sores already starting. I am having a hard time finding foods I can eat. Does anyone have any suggestions? (anything). How do you get through this? Thanks

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

...Hi NMLandLady, and welcome to our humble family.

I am not on the same chemo as you, I am on Folfiri w/Avastin, so have no experience with the Oxyplatin chemo, there are plenty on this board who are on it, but I can tell you what I have read about it sure did scare me.

I have read about the Neuropathy, a tingling in the hands and feet that can become very painful, and not sure if there is much out there to help it. Craig would suggest Big Balm cream, to stay ahead of it, I would put it on my feet 3 times a day, and maybe even putting it on before bed, with socks to cover it, may help, I moisturize my feet that way sometimes anyway, and it comes out nice and soft :)

You will have that jaw lock and some face pain, I have read about the cold sensitivity it has, you must wear gloves when going into the fridge, even in the grocery stores, don't reach for anything cold without the gloves, don't eat or drink anything cold, microwave it, sometimes even room temperature stuff can be too cold, so nuke it up, or else I hear it feels like glass going down your throat. You should eat whatever you want, chicken, soups, chili, but eat, and maybe drink some Ensure, to keep your weight up, so you can fight this thing, you need the strength for chemo. I have a couple of cookbooks I bought from Amazon on Recipes for Cancer, and they are great, there is one that has recipes to fight nausea, one to fight fatigue, and so on, and they taste really good.

You can get through this, I don't know everything on the Folfox, but am sure someone else will come help with any questions you have, with the mouth sores, there is a pink magic mouthwash your doctor can prescribe that has Miralax, Benadryl and Lidocaine or something in it that will help numb the pain, and also use Biotene toothpaste and mouthwash, which made a couple of my mouth sores go away in a couple days. I can't even use Crest anymore, or Mentadent, since it burnt the crap out of my mouth, though I can now use Arm and Hammer Baking Soda and Peroxide as well alot better.

I hope you feel better, and know you are not alone, and we are here for you :)

Hugsss!
~Donna

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Donna, I can't believe I already have a response from what I have read to be one of the most caring, compassionate souls on the board. Thank you so much for the info. I plan to look at Amazon asap for the books. Thank you again.
Sharon

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

... the feelings of what you're going through, and just try to be there for others, hoping to help even alittle! I think you'll do just fine like us, getting knocked down and just picking yourself up with this disease, don't let it get to you, you just keep on going, no matter what, we're here when you need us, if not right away, we'll be on soon!

Hugsss!
~Donna

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Hi!

Have them introduce Magnesium Sulfate by IV along with your Oxy - it will help your cold sensations and you will tolerate your treatment much better, if this is able to work for you.

The group always talks about Magic Mouthwah to help ease mouth sores - they will come behind me and tell you about it - it is an Rx that you can get filled.

For Fatigue, one word - REST and REST! Ok, 2 words :)

For nutrition, experiment with different foods after the mouthwash to see what you can handle...Ensure or Boost or Carnations Instant Milk is a good way to get some calories and it tastes OK. PB&J sandwiches, or some biscuits and gravy might be good. Chicken noodle soup or some scrambled eggs and toast.

Welcome to the site BTW, I am so glad you found your way here and very early too, so everyone here will be able to give you great advice, reciples, support and whatever you need - all you gotta' do is call - and you've got friends...that's from the James Taylor song and I just opened a post about it and shared it with the group and we all loved the line, so since you are here, it's for you too.

I've got a surgery in 5 days, so I'll be out of pocket (temporarily) but will be checking in to see how you are faring.

The rest of this wonderful community will be right behind me with the Welcome Wagon :)

One last thing I can tell you: Keep REPORTING your symptoms to your oncologist as they can adjust your chemo dosages during your treatment.

Have a good day and we'll be in touch
-Craig

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Thank you Craig. I read about your surgery on Friday. My prayers are with you for an uneventful day. I read about how you have been there for so many people. Thank you for responding to my post and making me feel welcome. You and Donna really surprised me. I feel blessed to have found this site and know I will benefit greatly from it.
Thanks again,
Sharon

thready's picture
thready
Posts: 475
Joined: Sep 2009

Hi, I am a newby in Texas. I am a stage 3B also, unless scans tomorrow show something else, but I really don't think we will have any surprises! I have not had any chemo yet, that comes in 2 weeks. A fellow that my husband works with was also a 3B and he said there is some sort of magic mouth wash that we need to request. He said rest when you feel bad, exercise (walk) and enjoy the good days.

The people on this site are the best resouce ever, I am sure you will get bunches of ideas. It is very helpful to be able to rely on those who have gone before us. Take care.

Jan

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Thank you Jan. I used to be from Texas. Born and lived there many years.I have been pleasantly surprised already to the responses on the board.
Thanks again,
Sharon

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Hi Sharon, Good to met you. My name is Brooks, I have stage 3 colorectal Cancer too and I just got done with my 3rd treatment of Oxy and 5FU. The jaw lock may have been from the Compazeene(sp) anti nausea pills. Are you on it? My neck locked up on me for four hours from Campazeene and it was very painful. Last week my doctor put me on Emend for nausea and it worked WONDERS!!! As far as eating goes Pasta seems to work for me. I have also found that it works best to snack throughout the day. No large meals. I'm sure that others will be on here soon with more answers.

Keep up the fight
Brooks

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Nice to meet you too Brooks. I have taken a few compazine, more after the first treatment than this week. I only have had one this week but according to the oncology nurse, the feeling of jaw lock (pain) was caused by the Oxiliplatin. How soon after your treatment can you drink something that is colder than room temp? My first treatment they told me I wouldn't be able to drink anything cold but I thought it wouldn't be that day. My husband and I went for lunch after my treatment and I ordered my usual-large glass of ice tea. Took a drink and thought I would die with my throat constricting. Even though I knew it wasn't actually constricting it felt like it. I have heard about Emend but I don't think my insurance will pay for it and I understand it is pretty expensive. I like some pasta. Are you able to tolerate the tomatoe sauce? Thank you so much for your response. It is so great to talk with someone who is going through the same things you are.
Sharon

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

As far as drinking anything cold. I think it took about a week after my first treatment to be able to drink something cool (NOT COLD). Now after my 3rd treatment I cant have anything cool or cold at all. I'd check with your insurance on that Emend. It has sure helped me and I know others who are on it and it seems to work best for them. Most of the pasta I eat is without tomato sause.

Contact me anytime you need to

Brooks

Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

I was on what you are on and oh boy
I still can't believe it when I read notes from others along the lines of, "oh it really wasn't that bad!"

How did I do it. *sigh* I had the best caregiver in the world, my mother. Who would drop everything in a moment, jump in her car and make the 3 hour trip to help and support me. I would have treatment generally on a Mon or Tues and by the weekend I would be down for the count. Toward the end of the treatments? Most days I would be down- very weak, horrid mouth issues, blah blah blah. Hospitalized 3 times for chemo issues- so yes, I beg to differ that "it really wasn't that bad".

I think the best piece of advice I can give to you- stay on top of the mouth sores, prepare for the bad days when you are feeling good, let go of the stuff that doesn't matter (like a clean house) and ask for help. One of the best gifts my co-worker could give me was she came over and scrubbed my kitchen and 2 bathrooms. I was in tears with such an incredible gift. Make sure your oncologist knows the issues you are having- it is those issues that help them to determine when or if your oxy should be cut. Mine were chopped away at bit by bit- finally after treatment 8, I was in the hospital for dehydration and mouth sores, my oncologist came to my hospital door and said, "guess what, you are done with oxy!" (he couldn't even come in the room without being totally drapped as I was in isolation).

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Thank you so much for your post. Were you able to go back to work? That is one of my fears that I won't be able to work. I had to take off today because of the nausea and fatigue.
Thanks again,
Sharon

Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

I am a teacher- started off fine- then went to half-days and then went to half days 2-3 days a week. It actually helped me to focus on going into work. Force myself to take a shower, clean clothes, etc. I would get to school totally whipped, but with this sense of accomplishment. Fortunately I had a ton of sick leave I could use.

thready's picture
thready
Posts: 475
Joined: Sep 2009

I appreciate Patteee for saying that chemo is tough. I don't want to go into this thinking that I will be getting meds, then on my way down happy street. That is the way I would want it but I want to be prepared. My Dr's office spent 6 hours giving me the facts from different perspectives and I know I face some tough times, but was not sure when all this will take place. I know it varies but at least I know it could happen early. My husband and family are also knowledgeable of what we might encounter but did not know when. Thank you Patteee!

I have only heard from two people who say they had mild fatigue and could keep going. I am also concerned about work. They want an employee who is there to work. I don't have the option of doing work during my good days. This discussion has been frank, but boy is it helpful.

The fellow I refered to above talked about the side effects. He also said it is not easy.

Annabelle41415's picture
Annabelle41415
Posts: 6440
Joined: Feb 2009

I would like to also welcome you to our message boards. You now have become a member of the family. We are here to help you, educate (as much as we can), support you and lift you (and much more). There is probably not a subject that we haven't covered on these message boards.

I was on the same "cocktail" as you and my second treatment it starting hitting me. The cold sensitivity in throat and hands were bad, especially when you forgot about it. I would end up dropping things back onto the racks at the grocery store when I was in the vegetable isle. I also was always cold even though I had this during the summer. The neuropathy can be bad and the more it accumulates in your body the more the hands and feet begin to tingle. I was told by my oncologist to take vitamin B6 and it did help a good bit. I agree with the magic mouth wash. I only had to use it once, but it made a big difference. I actually never got sick but I did take the compazine but it never worked for me because I have an ileostomy and it is coated and it would pass right through. There are many other prescriptions out there to help with that. Also try ginger tea or just eating a little slice of ginger.

Eat whatever you can tolerate as you will probably lose weight because you don't feel like eating, or nothing sounds good, or you just can't get it down, but like suggested, the Ensure (or something) similar helps keep some nutrients in you.

Once again welcome to the board. And come here anytime you want or need an answer. There is usually someone on at all hours. Oh and one more thing, if you are getting steroids before infusion, this will keep you up for two to three days - hence that was why I was answering posts at 3:30 in the morning :)

Keep us posted as to how you are doing.

Kim

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Thank you Kim. What a blessing finding this site has been. Everyone is wonderful. I have been trying to learn more about each of you when you respond to my post. I had to go to work today so I am late getting on. I work 12 hour shifts and my day starts at 5:30 am and finishes hopefully at 6:30 pm. Tonight after work I had a meeting so it put me home at 8:30. I was surprised I was able to do this today considering yesterday I was worn out and having nausea. But I am trying to take the good days and focus on them. Knowing that my next treatment is a week away and I feel pretty good means I am going to get to do some stuff the rest of the week. I remember reading something on one of the post about you Kim, can't remember what it was but I do remember I wanted to get to know you better so thank you for responding to my post.

earied
Posts: 22
Joined: Aug 2009

Hi Sharon, You can get the Emend from the drug company for free if you meet the criteria. If your clinic or the hospital has a social worker they can help you fill out and send in the paper work or the nurse at the doctor's office. I did receive it for free. I took it for a couple of treatments then I could tolerate it fine. I was on the same chemo you were after I did radiation/chemo. Try oatmeal or bagels, ate a lot of that. The neuropaty/cold with drinking usually stops after 5 days. Then a month after I finished treatment is hit hard in my hands and feet and dealing with that now. For diarrhea take 2 immodium AD when it hits and 1 ever time or every hour after that. Increase your fiber if you can.

Hang in there.

Ann

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Thank you so much Ann. Everyone is so kind and helpful.

earied
Posts: 22
Joined: Aug 2009

Hi Sharon, You can get the Emend from the drug company for free if you meet the criteria. If your clinic or the hospital has a social worker they can help you fill out and send in the paper work or the nurse at the doctor's office. I did receive it for free. I took it for a couple of treatments then I could tolerate it fine. I was on the same chemo you were after I did radiation/chemo. Try oatmeal or bagels, ate a lot of that. The neuropaty/cold with drinking usually stops after 5 days. Then a month after I finished treatment is hit hard in my hands and feet and dealing with that now. For diarrhea take 2 immodium AD when it hits and 1 ever time or every hour after that. Increase your fiber if you can.

Hang in there.

Ann

abmb's picture
abmb
Posts: 311
Joined: Sep 2009

My husband was diagnosed in April with Stage 3C colon cancer and is receiving the same treatment you are, cold sensitivity, nausea, & fatigue are probably the worse he experiences. His onc did have him on Emend and it is great, but the 2 pills you have to take the 2 following days are pretty expensive so he has opt not to use that med and now he takes Prochlorper 10 mg and piggy backs it with Zofran 8 mg. That helps him, my biggest problem is he tries to hold back on taking the pills sometimes until it is too late! I hound him too much. We do tell his onc everything, he is there to help you, you pay them, which means they work for you. Do wear the gloves, less painful. I just want you to know that I don't know what everyone feels like, but this is a great board to come too. They help, even if you don't like to post, just reading their posts help. God Bless and take care. Margaret

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I have a tendency to hold out on pills too. I hate to take anything ever. But I'm going to take my oncologist's and nurse's and dietician's advice and stay AHEAD of the game with the nausea drugs. Once I start vomiting, I can't stop. So I don't want to start that game ever again.

Tell your husband to just TRY it the next cycle - taking the anti-nausea drugs on schedule - and see if it helps.

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Margaret thank you for your post. Your husband is so very lucky to have you.

ittapp's picture
ittapp
Posts: 385
Joined: Jun 2009

Hello, I am stage IV and on Folfox with Avastan, it is the same as you without the avastan. Avastan is for stage IV patients. I did have the Oxy for 6 treatments and will be doing my 9th treatment tomorrow. Anyway it was a little rough doing oxi but it is something you can do. They did cut mine because the neuropothy was lingering into the next treatment.As far as the other is concerned I am doing fine, i am a little fatigued but I am still doing most of what I did before. I only have had two mouth sores and the magic mouthwash cleared it right up quickly. I do have a hard time sleeping so I take ambien everynight. When I did have the oxi I ate things like chicken noodle soup, cottage cheese,yogurt and could not get enough watermelon at room temp. God Bless you, Patti

mommyof2kds's picture
mommyof2kds
Posts: 522
Joined: Mar 2009

Welcome, you will find this board very helpful and full of people who care and provide support. I was diagnosed in feb 08 with stage 3 rectal cancer. I have been through rad/chemo, have had 2 surgeries and now back on chemo. I was getting the same chemo as you, but had an allergic reaction on #6 oxy. Therefore I am not getting it anymore. YOu have already gotten some good advice on what to us for mouth sores. With the regards to the cold sensitivity, my oncologist gave me IV infusions of magnesium and calcium before and after the oxy treatment to help with the side effects. I never did receive any neuropathy issues. I am one of the lucky ones. With the help of being younger and getting the IV infusions-that is why. I was able to enjoy cold drinks about 5 daysd after the the infusion.
One bit of advice, rest rest and rest. If you are tired that means your body needs rest, give in to it. It will help you feel better. I was very tired. It will be a hard road with lots of feelings of uncertainity, but you can do it. We are all doing it and are all helping each other. God Bless. Hang in there.... Petrina

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

...is far from easy, and it's something very hard to get through, the feelings of uselessness, hospitalizations and blockages I have had all during this has wore me out, and given me some paranoia whenever I feel a slight cramp, I think "oh no, please dont let me backed up" I try to eat things I hope won't get blocked up. This has been the roughest year of my life, and who knows what's more down the road, it's an emotional roller coaster. Some people can sail right through it with no problems, and some can't, depends on the individual, that's for sure!

I wish you luck on your chemo journey, and wish you the best, if I can get through it though, I know you can as well!

Hugsss!
~Donna

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Thanks Patti, I love watermelon but I reacted violently with it (massive diarrhea) the immodium didn't touch it. Nice meeting you and thank you for your post.

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

Hi,

You may want to look into taking ALA supplements. (alpha lipoic acid)

I see a dietician with a certification in oncology. (She is one of only about 200 in the US.) I'll be on FOLFOX also as soon as they get things straightened out for me - I had a little set-back with my port and had to have it removed right after insertion. ALA has been found to help a lot with neuropathy for diebetics. There have been limited studies done on chemo patients, and so far it looks promising for chemo patients too.

I will be getting magnesium and calcium via IV before I get the Leucovorin and Oxaliplatin.

Also on the dietician's advice I am doing the following:
►calcium supplements - 1200-1500mg (I'm taking 600 twice per day)

►vitamin D3 - 1000-2000IU/day (right now I'm taking 1000, but will bump to 2000 as the days get shorter and I get less sun)

►ALA - I've been taking 600mg per day right now and will bump up to 1200 the week I start chemo. The suggested amount is 1000-1800mg/day for neuropathy or chemo patients. (This is much higher than recommended for most people, but there are no known adverse affects for taking this much.)

►NO folic acid supplements - I stopped my multi-vitamin because of high folic acid in them. Not recommended for COLON cancer patients. (OK for some other types of cancer.)

Calcium, magnesium, D3 and ALA could help your chemo go easier. Worth trying. Glutamine has also been mentioned as a possible help for nueropathy (and mucositis - which causes the sore mouth).

As for nausea, I will get dexamethasone (a steroid) and Aloxi by IV before chemo also. I have already filled 3 prescriptions for Ativan, Zofran and Kytril. Because I had severe hyperemesis during my pregnancies (especially the last one which required IV outpatient and eventually a hospital stay), we want to be ahead of the game if I have trouble with chemo. We're saving Emend in case the others don't work, due to the cost.

If what you are trying for nausea right now doesn't work, speak up! There are so many different things to try these days that it is worth switching it up.

Other things to try for nausea:
ginger (or combination of protein and ginger)
peppermint
acupuncture

Good luck to you. I hope you find a little relief for a few of the most bothersome side effects.

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Kathryn, thanks for your post. I will be traveling to Amarillo in the morning and I plan to go to the health food store to purchase some of these vitamins I am reading about. Nice to meet you.

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Welcome to the Board. It's full of great people who will help you through this experience.

I was diagnosed Stage 1, so I don't have answers for you, but I do want to welcome you and say I look forward to hearing more about you.

*hugs*
Gail

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Hi Gail, thank you for your response. Nice to meet you.

velo8162's picture
velo8162
Posts: 15
Joined: Oct 2009

Go for the lidicane GI cocktail, it does help!

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

What do I call you? Velo? Thanks I will get some my next treatment.

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Lady, To the point with answers as it pertained to me, I did the same cocktail as you are doing now, oxal/leuc/5fu then after I get done with that I will then get to know ya better "Hows That" ? OK hang on here we go.....

Jaw lock....it seemed to start right off the bat, everytime I took a "first bite" of anything it happened, it hurts but I lived through it, kinda like biting a lemon.....ok next...

throat constriction....doesn't take ya long to find out that cold and Oxi doesn't mix, at all, breathing cold air will do the same thing to you. I found that Sunkist Orange, Crangrape, and coffee was the ticket for me. Sunkist just after chemo and my coffee was tolerable after a week of being off chemo, couldn't stand the smell of it for a week though.

Intolerable cold....Doesn't take ya long to check out a piece of ice either, no need to touch it anyway, you can't use it so there ya have it. I never wore gloves except when I first got in my truck in wintertime until the steering wheel warmed up.

Nausea...Dang, that was the worse thing for me. Sick, puked , but I knew that it was working and the body can go through amazing things when the survival instinct kicks in. I tried compazine,Zofran, Ansemet, and Emend, The emend did the best but still wasn't enough to keep me from being very nauseated. I normally didn't eat for the first 2 days then chili or spicy foods were palatible, cottage cheese and peaches at room temp was good. Country style ribs with spicy rib rub were good. I think the spicy stuff overwhelmed the nausea enough to allow me to eat. It wasn't a lot but enough .

I do have a job that allowed me to work the second week when I didn't feel as bad so that was a plus...

As far as how do you get through this...Here is my answer......
You puke when you have to puke, you cry when you have to cry, you rest or lay around when you need to rest and lay around. You go to the chemo clinic everytime your suppose to knowing that this is another trip you won't have to do again. It doesn't matter for 6 months how sick you get or how sick you are. You are fighting a monster and you will win the battle, but its not easy at all...the main thing is...at the end of the battle you can look back and say to yourself," I have taken a path that I would have never thought I could have ever completed, I have conquered the journey and all of its obstacles along the way, I am now a victor in the fight I have fought, I have scars and have suffered numerous setbacks , but I have kicked its tail".....and then sit back and relish the strength that you never knew you had but summoned up for this fight that has rendered you cancer free........and that my Lady, is how we do it.....we love ya and we'll be right here beside ya the whole trip......{{{{{{{{{hugs}}}}}}}} your new tourguide, Clift

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Clift, you really broke it down. Your post was very inspirational, to the point, cut and dried and very informative thank you so much. Thank you for the hugs. This is awesome to have so many people out there who care about someone elses dis-ease and is willing to take the time to share. How blessed we are. Nice meeting you.

butterfly23's picture
butterfly23
Posts: 257
Joined: Mar 2008

Welcome to our family! I just started treatment with oxy avastin and xeloda, so far, so good, I do have sensitivity to cold in the hands and some nausea, best word of advise with the nausea is to stay on top of the pills. For the 1st few days take them even if you don't think you need them. And as always listen to your body. I'm not to good at this one! I want to keep going, but it will only make it worse, if you are tired, REST! As, far as mouth sores, I don't have them yes, but my last treatments, a year ago, I did have them and the Magic Mouthwash does work, as for your feet, definately get the Bag Balm, (drug stores) put it on faithfully, it will help with the skin cracking! ANY, questions, we are all here for eachother! Don't hesitate. You are in my prayers!
Karyn

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Hi Karyn, plan to get the bag balm tomorrow. Thanks for your post and it is great to meet you.

coolvdub's picture
coolvdub
Posts: 410
Joined: Aug 2009

Sharon,

I am also on FOLFOX. You have been given good advice. The nausea is what kicks my butt. So far the meds haven't worked, but I am able to go to work most days. I will be doing Decadron and Ativan the day before Chemo and then for 3 days. Hopefully it will help. As others have said, tell your Onc & chemo nurses everything. That way you stand the best chances of minimal side effects. So far the neuropthy is tolerable for me, but I'm always cold now, so I just put on an extra layer. Also if the chemo gets to be to much, apply for disability and use the family medical leave act. Your employer has to hold your job for you under it. I to want to work as much as possible, but when the time comes, I will do it if needed. Just rest as much as possible and learn to slow down and let others help you with the day to day stuff at home.

Don

nmlandlady's picture
nmlandlady
Posts: 37
Joined: Oct 2009

Thanks Don. Nice to meet you. FMLA/LTD is not an option for me right now. 2009 has not been good to me. It started out with a broken leg snow skiing. I had had surgery the summer before so with that and my time off with my leg I depleted my 12 months. Since it is a rolling calendar I recently acquired 4 wks which I will use intermittent so the absence won't count as an occurrence. LTD would not kick in until I used all the STD then I have to wait 12 wks. By that time I will be on the oral 5FU and off the oxi-so why bother. I just need to hang in there so I don't loose my job. I couldn't afford the cobra insurance if I don't. Thanks again.
Sharon

Annabelle41415's picture
Annabelle41415
Posts: 6440
Joined: Feb 2009

Not sure if this was mentioned, but do not take anything without clearing it with your oncologist first. Some doctors don't want you to even take an aspirin or some types of vitamins as they can interfere with the absorption or have a counter reaction with over the counter products. Better to ask before hand instead of wasting that yucky stuff going in your vein :( And I went my whole cycle without diminishing my chemo at all - I wanted to, but doctor wouldn't so mine was doable. Others tolerate drugs at different levels, but the anti nausea pills really do work and will keep you feeling better.

Kim

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