tattoos and nipples?

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carnic8488
carnic8488 Member Posts: 11
edited March 2014 in Breast Cancer #1
Hi everyone,
I had tram flap surgery in June and have to make a decision about whether to have just tattoos or both nipples and tattoos. Any thoughts out there? I also haven't started Femaara because I am worried about side effects although they said it would cut my chances of getting cancer again down to about 7%. I'd love some imput.

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  • m_azingrace
    m_azingrace Member Posts: 399
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    Just my opinion...
    but is there any worse side affect than worrying that the cancer might return?

    I don't know about tattoos and nipples...what's that about? Gracie
  • jk1952
    jk1952 Member Posts: 613
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    Just my opinion...
    but is there any worse side affect than worrying that the cancer might return?

    I don't know about tattoos and nipples...what's that about? Gracie

    I took Tamoxifen for six

    I took Tamoxifen for six months before I developed blood clots and had to stop. It's hard to tell whether the clots were from the Tamoxifen or the fact that I had a nasty insect bite that was infected. But, I do not regret trying the Tamoxifen: it helps to reassure me that I did whatever I could to fight the beast.

    As far as nipples and tatoos are concerned, I'm planning to have both, but the nipple creation that's been described to me is relatively simple and does not include taking tissue from another part of my body to help to form the nipple. I had DIEP reconstrucion, so the nipple creation options may be different with that than with a 'normal' reconstruction.

    Joyce
  • Ltalcott
    Ltalcott Member Posts: 119
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    to be normal
    I had a bilateral mastecomy in March with immediate DIEP reconstruction, and nipple construction and tatooing on August 4th. I am so pleased with the nipples and tatooing.

    I am actually going to look normal. My breasts are a little bigger than they were before. I'm petite, about 120 pounds, 5'1" tall, and I had been 34C. I'm wearing 36C bras now--the shape is a little different than before--not as droopy, and the base is bigger.

    I had 'eye-shaped' scars on the center of the breasts, where the surgeon had cut and scooped out all the breast tissues--the skin from my tummy being the center. The new nipples were put on the area of the breast that protrudded the most, and then the surgeon used one of the circle-shape tape-on electrodes to draw a circle to mark where to tatoo for the aerola.

    The new areola and nipple are within the 'eye' and make the scars seems less noticeable. (The surgeon tells me the scar will fade a lot, probably between 6-12 months post-surgery.)

    But I am actually going to look normal!

    Lisa
  • dbs1673
    dbs1673 Member Posts: 203
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    undecided
    I too, am trying to decide about the nipples and tatooing. Actually it's more about the nipples. I had bilat mast and just had my 2nd set of silicone implants put in. (First set had rippling issues, etc. 2nd set much better so far.) How long after implants have people waited? Anyone had just the tatooing? Anyone regret doing the nipples? Those with nipples, do you have "nipple show" in your clothing? Didn't we used to try and find bras to cover that up? Lots of questions and probably many more things that some of you here can share. Guess I'm wondering if this is the way to "dot my I's and cross my T's" or is this procedure greater than the outcome.
  • LauraLL
    LauraLL Member Posts: 9
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    Ltalcott said:

    to be normal
    I had a bilateral mastecomy in March with immediate DIEP reconstruction, and nipple construction and tatooing on August 4th. I am so pleased with the nipples and tatooing.

    I am actually going to look normal. My breasts are a little bigger than they were before. I'm petite, about 120 pounds, 5'1" tall, and I had been 34C. I'm wearing 36C bras now--the shape is a little different than before--not as droopy, and the base is bigger.

    I had 'eye-shaped' scars on the center of the breasts, where the surgeon had cut and scooped out all the breast tissues--the skin from my tummy being the center. The new nipples were put on the area of the breast that protrudded the most, and then the surgeon used one of the circle-shape tape-on electrodes to draw a circle to mark where to tatoo for the aerola.

    The new areola and nipple are within the 'eye' and make the scars seems less noticeable. (The surgeon tells me the scar will fade a lot, probably between 6-12 months post-surgery.)

    But I am actually going to look normal!

    Lisa

    you've done what I am planning to do
    Lisa,

    You have had done what it sounds like I am getting ready to do. Although at this time, I am planning on a single mastectomy, I am questioning a bilateral because of the increased risks with the Tamoxifen. Sounds stupid, but I am more afraid of the post-op pain than I am the cancer itself. I think it is because I am still in disbelief that I actually have cancer.

    Can you tell me of your experience? You sound so positive and I'm scared to death.
  • Ltalcott
    Ltalcott Member Posts: 119
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    LauraLL said:

    you've done what I am planning to do
    Lisa,

    You have had done what it sounds like I am getting ready to do. Although at this time, I am planning on a single mastectomy, I am questioning a bilateral because of the increased risks with the Tamoxifen. Sounds stupid, but I am more afraid of the post-op pain than I am the cancer itself. I think it is because I am still in disbelief that I actually have cancer.

    Can you tell me of your experience? You sound so positive and I'm scared to death.

    bilateral mastectomy
    They found IDC in my left breast, and when I was talking to the surgeon he must have said something about having both breasts removed, because I clearly remember saying, "I could have both removed????" I have had cystic breast disease, with lumpy breasts, six or seven biopsies, so I had been waiting for 15 years to hear I had cancer. To have both breasts removed and not worry about any new cancers seemed like the only way to go.

    The MRI that showed the cancer on the left also showed a tiny spot on the other breast, which they decided to biopsy--it came back IDC too! Not spread from the other side, just another primary site. Knocked me on my a**--even thought it changed nothing since I'd already scheduled the bilateral. (Did mean a sentinel node biopsy on both sides.)

    I have told many people--other than it being cancer--everything about my diagnosis was positive. IDC, most common kind of breast cancer, which means most research. They know what works. My tumors were small, 1.4 and .6 cm, with clean margins, no lymph node involvement. I had no complications of the really complicated surgery--17 hours long!--except a hematoma that caused me to keep that one drain maybe a week longer than the others. ER+, PR+, and HER2-, Oncotype DX scores of 9 and 16. Because of my family history, they did the genetic testing, and it came back negative.

    I'm taking tamoxifen, having no side effects. I'm frequently warmer than I normally would be, but if that's a hot flash, it's real easy to cope with.

    No radiation, no chemo. My oncologist said she would give me chemo if I wanted it. My husband and I poured over the stats, and because my chance of recurrance was so very, very low, the chemo would do me no good, and the potential side effects of chemo were bigger than the advantages.

    I went back to work half-time at just over 5 weeks (I have a desk job) and back to work full-time two weeks after that. And I crashed at 8 pm I was so tired for a long time.

    I am done with cancer--ha, ha. (I do know that's not true, but still....)

    It's scary when you don't know what's going on. Before surgery, you don't know the size, the margins, the grade, Oncotype DX, what the surgery will be like, what the tests ahead of time will be like, how sick you will be, who will keep supporting you, which of your friends will act like a**holes and need to be purged--there are just too many things you don't know. You are not in control. Everyone here will echo that the waiting is the worst part.

    My nipples are going to stick out--it's like I'm always cold. A molded cup bra will probably cover them, except for in the smoothest, tightest of T-shirts. So yes that can be an issue. I've looked online at gel petals, that you can stick on--not really yet for that.

    I'm not sure what you mean about the increased risk of tamoxifen with a bilateral?

    Lisa
  • jk1952
    jk1952 Member Posts: 613
    Options
    Ltalcott said:

    bilateral mastectomy
    They found IDC in my left breast, and when I was talking to the surgeon he must have said something about having both breasts removed, because I clearly remember saying, "I could have both removed????" I have had cystic breast disease, with lumpy breasts, six or seven biopsies, so I had been waiting for 15 years to hear I had cancer. To have both breasts removed and not worry about any new cancers seemed like the only way to go.

    The MRI that showed the cancer on the left also showed a tiny spot on the other breast, which they decided to biopsy--it came back IDC too! Not spread from the other side, just another primary site. Knocked me on my a**--even thought it changed nothing since I'd already scheduled the bilateral. (Did mean a sentinel node biopsy on both sides.)

    I have told many people--other than it being cancer--everything about my diagnosis was positive. IDC, most common kind of breast cancer, which means most research. They know what works. My tumors were small, 1.4 and .6 cm, with clean margins, no lymph node involvement. I had no complications of the really complicated surgery--17 hours long!--except a hematoma that caused me to keep that one drain maybe a week longer than the others. ER+, PR+, and HER2-, Oncotype DX scores of 9 and 16. Because of my family history, they did the genetic testing, and it came back negative.

    I'm taking tamoxifen, having no side effects. I'm frequently warmer than I normally would be, but if that's a hot flash, it's real easy to cope with.

    No radiation, no chemo. My oncologist said she would give me chemo if I wanted it. My husband and I poured over the stats, and because my chance of recurrance was so very, very low, the chemo would do me no good, and the potential side effects of chemo were bigger than the advantages.

    I went back to work half-time at just over 5 weeks (I have a desk job) and back to work full-time two weeks after that. And I crashed at 8 pm I was so tired for a long time.

    I am done with cancer--ha, ha. (I do know that's not true, but still....)

    It's scary when you don't know what's going on. Before surgery, you don't know the size, the margins, the grade, Oncotype DX, what the surgery will be like, what the tests ahead of time will be like, how sick you will be, who will keep supporting you, which of your friends will act like a**holes and need to be purged--there are just too many things you don't know. You are not in control. Everyone here will echo that the waiting is the worst part.

    My nipples are going to stick out--it's like I'm always cold. A molded cup bra will probably cover them, except for in the smoothest, tightest of T-shirts. So yes that can be an issue. I've looked online at gel petals, that you can stick on--not really yet for that.

    I'm not sure what you mean about the increased risk of tamoxifen with a bilateral?

    Lisa

    Laura, everyone is different

    Laura, everyone is different when it comes to the pain after surgery. I had the same surgery as Lisa (bilateral mastectomy and DIEP reconstruction) and stopped taking morphine one day after surgery and started taking only Advil or Tylenol after two days. Hopefully, your post-surgery pain will be like mine.

    Joyce