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Beckymarie
Beckymarie Member Posts: 357
edited March 2014 in Caregivers #1
My husband was diagnosed with an inoperable Gr IV Glio in March. He went through radiation and chemo and is now on a maitenance chemo. He had an MRI on the 17th and will see his MD on 25th. We have been told a year or less, but I hear many stories of patients that are living out much longer than a year. Is it because their tumors were operable? This is such a difficult and lonely road we are traveling.

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  • sue Siwek
    sue Siwek Member Posts: 279
    #2
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    please explore the
    please explore the possibilities of a clinical trial. the best way to find out about them is through your husbands oncologist. i would also urge that if you are not at a teaching hospital to go NOW! don't worry about offending the doctor you are with this is your husbands life and his best chance is at a teaching hospital. my husband was diagnosed with an anaplastic astrocytom grade 3 nearly 10 yrs. ago and the docs at the local hospital said that they couldn't do much. well, we got on line and found the nearest teaching hospital which was 1 1/2 hrs. away and he is with us today because of that. you must be your husbands advocate, this is a kick in the gut for both of you and you are afraid but, you must get ahold of yourself and assert yourself. no question is stupid if you are thinking it, you will find out just how strong you are and it will continue to motivate you. your husband is going to give himself over to you. you will be managing things, do not be afraid you can do it and will be a stronger and better person for it. i never dreamed living in my wonderful life, having wonderful children, a lovely home, money to buy what ever i wanted that i would have to step up and take over. i have done it and i am good at it and enjoy the part that has empowered me. would i trade it for a healthy husband you bet cha! that can't be so i am going to make the best life for us that i can. have a good cry when you need to and then get going. good luck and let all of us here hear of you progress. also, how can a doctor tell you he has a year or less, they don't know that, my husband would have been dead a long time ago if we had believed that. doctors are not gods although some think they are!
  • akbetty
    akbetty Member Posts: 38
    #3
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    Sue is right
    When my husband was diagnosed with stage iv lung cancer in May 07, we knew he was in serious shape. The cancer was already in both lungs and both kidneys. We were devastated, but we spent several days with the baby in her carseat, just driving around and talking, and we decided that however long he had, we were going to be as positve and optimistic as we possibly could. Now that it's been over two years, I still know this evil disease will take my husband eventually, but refusing to give up and refusing to feel like a victim has kept him going longer than anyone expected. Don't just accept what the doctors tell you--accept your situation, and then act on it. Everyone's different, and we know our spouses and we can see better than anyone what is helping them and what isn't. My thoughts are with you as you go forward on this journey. There will be many hard times but you can do it.
    Betty
  • sue Siwek
    sue Siwek Member Posts: 279
    #4
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    akbetty said:

    Sue is right
    When my husband was diagnosed with stage iv lung cancer in May 07, we knew he was in serious shape. The cancer was already in both lungs and both kidneys. We were devastated, but we spent several days with the baby in her carseat, just driving around and talking, and we decided that however long he had, we were going to be as positve and optimistic as we possibly could. Now that it's been over two years, I still know this evil disease will take my husband eventually, but refusing to give up and refusing to feel like a victim has kept him going longer than anyone expected. Don't just accept what the doctors tell you--accept your situation, and then act on it. Everyone's different, and we know our spouses and we can see better than anyone what is helping them and what isn't. My thoughts are with you as you go forward on this journey. There will be many hard times but you can do it.
    Betty

    you are a big reason that he
    you are a big reason that he is still alive, i hope he tells you that, BRAVO!

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