What type of RCC do you have? Clear cell? Papillary? I do know there is a genetic form of papillary renal cell carcinoma. I think about 80% of RCC patients are clear cell patients and I have never heard of a genetic form of clear cell. I'm sure others can advise, but I'd also ask your Dr. at your next visit if it concerns you.
Good Luck,
Dawn
Caregiver of father-in-law with Stage IV Papillary RCC
Hi Kathie,
I am the 2nd and maybe the 3rd generation to have Clear Cell RCC. I went through genetic counseling to see if there was a genetic link. Unfortunately they could not find a link with what they currently know. What they did explain is that heredity is one of the risk factors for kidney cancer but not the only one. I have 2 older brothers and one younger. They have each been checked and have no evidence of cancer. I hope this helps!
Hi! My mother had RCC and then I had it. I lost my mother but I am a survivor now 11 years. She was in the late stages of RCC and I was diagnosed 11 months after we lost her. They told me it was genetic, Renal Cell, Clear Cell. I had our pathology reports sent off to Bethesda Mariland and they did some research on them. My doctor however is the one who told me that it was genetic. I don't remember what gene is missing, it has been so long. I do hope this helps some.
Joined: Mar 2009
It depends
Hi Kathie,
What type of RCC do you have? Clear cell? Papillary? I do know there is a genetic form of papillary renal cell carcinoma. I think about 80% of RCC patients are clear cell patients and I have never heard of a genetic form of clear cell. I'm sure others can advise, but I'd also ask your Dr. at your next visit if it concerns you.
Good Luck,
Dawn
Caregiver of father-in-law with Stage IV Papillary RCC
Joined: Dec 2008
Family Risk
Hi Kathie,
I am the 2nd and maybe the 3rd generation to have Clear Cell RCC. I went through genetic counseling to see if there was a genetic link. Unfortunately they could not find a link with what they currently know. What they did explain is that heredity is one of the risk factors for kidney cancer but not the only one. I have 2 older brothers and one younger. They have each been checked and have no evidence of cancer. I hope this helps!
Sincerely,
Rob
Joined: Sep 2009
Genetic
Hi! My mother had RCC and then I had it. I lost my mother but I am a survivor now 11 years. She was in the late stages of RCC and I was diagnosed 11 months after we lost her. They told me it was genetic, Renal Cell, Clear Cell. I had our pathology reports sent off to Bethesda Mariland and they did some research on them. My doctor however is the one who told me that it was genetic. I don't remember what gene is missing, it has been so long. I do hope this helps some.