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im back from the abyss

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

Can you believe it? My original surgery date was 05/18 and here it is 07/19?????? I don't have the time nor the desire to check over all the postings I've missed, but Jess kept me up on her postings and your postings for me. I wanted to let you all know how much i appreciate your support, thoughts and prayers. Things went way south, none of us really expected it. As you know, I had MANY infections, and I believe incompetence was the main reason for such. Repeatedly a computer programmer and 25 year old stay at home mother were sent home to manage open wounds that licensed nurses differ on the management of. Here I sit, with the upper portion of my abdomen sewn together fascia and skin only, since the last infection management left it impossible to sew my abdominal muscles back together. Yes, you read that right, my abdominal muscles from top to bottom are busily atrophying at the sides of my abdomen, which requires me to wear an abdominal support 24/7 to stave off the inevitable hernia(s). The bottom of the abdomen is a large open wound that is finally being managed using a wound vac, which home health takes care of for me. Ativan and Vicodin get me through the changes. So much of the past 2 months has been such a dark time for me, the only way I made it through was with support from my friends and family; I deeply appreciate it. This is the first time I have been home for more than a week and haven't had to visit an ER; things feel different and I am sure i am on the road to real recovery this time. Have I said it before? cancer SUCKS!
mary

Julie 44
Posts: 479
Joined: Oct 2008

Mary,
I am so sorry that youe have been through so much...It must have been horrible and scarey for you and your family.....Thank God you are on your way to recovery...I will continue to pray for your healing. JULIE

sheri22
Posts: 278
Joined: Jan 2009

Mary

I hope things go well for you this time you deserve it you have the attitude keep fighting and stay strong

I will keep you in my prayers

Sheri22

punch_vj's picture
punch_vj
Posts: 88
Joined: May 2009

Ms. Colon, I'm so happy you're feeling better :) Sorry that the road has been so precarious, but it's great to know it's getting much better.

Warmly, Vee

kristasplace's picture
kristasplace
Posts: 956
Joined: Oct 2007

Good to see you back, Mary! That wound VAC is going to help you soooo much! No one could believe how fast my ostomy wound closed because of that thing. I sure complained about having to lug it everywhere i went, but in the long run, i'm glad i had it.

What are they going to do about your abdominal muscles? They can't just let them atrophy, can they? It sounds like you're in a lot of pain. I'm glad the medication is helping, but i know they don't normally stave all the pain. Hang in there! You're a trouper!

Hugs,
Krista

snommintj's picture
snommintj
Posts: 602
Joined: Mar 2009

I hear you loud and clear on the infection bit. Did you ever get septic? What a scary situation that is. Well, it's good to know things are looking up. I was plagued by infection for 4 months. I had countless surgeries and wound packs. I had three j-p drains and a pump all at the same time almost 2 months after my surgery, I didn't get the last one out until 4 months after. You'll be glad to know that the body heals very quickly once the infection is gone. I was feeling near perfect less than 30 days after my last drain was removed. But even better than that was the quickness with which my pain subsided. Good luck, you'll be feeling better in no time.

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Hey Mary...... so glad to see you on your way to recovery and back on the board.... we all have missed you! Take care & I will keep you in my prayers

Jennie

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

I know from your past postings that you, indeed, know where I am coming from. It is good to hear that those darn infections will eventually clear up and that I have "normal" to look forward to. I just found out today that I have ANOTHER pocket of "fluid" that will require a new drain. I went in for a CT scan to see if we can remove the 2 j p drains I have on either side of my wound and that's the new news. My new surgeon hasn't read the scans yet, so he couldn't say if those 2 can be removed, but there will be a new drain in my abdomen in the next day or so. After the initial shock and disappointment, I once again am ready to move on.

dorookie
Posts: 1736
Joined: Jul 2007

You were very much missed and I am glad to see you back. I will continue to pray for a speedy and easy recovery for you my dear. Sure hope things get a bit easier for ya, hate to hear you are going through so much crap. and your right CANCER SUCKS big TIME!!!

God Bless ya hon
Beth

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Mary,
It is so good to see you back. We have been thinking about you and praying for you. You are one very strong lady.
Praying that you continue to feel better.
Aloha,
Kathleen

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

So glad you are back. I really missed you. I am sorry you have had such a hard journey. YES, CANCER SUCKS!

Here's hoping things are finally looking up. You have a great daughter there, you know. we appreciated her postings.

Take care and many, many hugs, Vicki

ADKer's picture
ADKer
Posts: 150
Joined: Aug 2008

What an ordeal! It is good to hear the spit and vinegar in your post though and that there is plenty of fight in you. Best wishes for what I am sure will now be a speedy recovery.

kmygil
Posts: 881
Joined: Feb 2007

Oh Mary! I'm so sorry you have had such a horrible time of it. Yes, CANCER SUCKS BIG TIME! What are they going to do about your abdominal muscles apart from trying to prevent hernias? Will they have to sew them back together at a later date? You are so brave and feisty, and you set an example for all of us in getting through this. Just know that you continue to be in my prayers and I'm sending healing thoughts your way.

Hugs,,
Kirsten

Fight for my love
Posts: 1530
Joined: Jun 2009

Hi Mary,I am glad you are finally home and glad you are on the way of recovery.Best wishes and good luck to you for everything.

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

You have had such a rough road and I am truly glad that you are back with us. It must seem awesome to be home and this week must be glorious for you. Sounds like you still have a lot of recouperation to do. I hope that you will recover completely very soon and be able to do something special for yourself because you deserve it after all this.

Hugs! Kim

angelsbaby's picture
angelsbaby
Posts: 1171
Joined: May 2008

I am so sorry you had to go threw that sometime things don't go the way we like but you sound like you are feeling better i hope you get stronger every day.

michelle

krystle singer's picture
krystle singer
Posts: 109
Joined: Feb 2009

Yes, yes, yes..cancer sucks and treatment ususally sucks, but recovery sings. Hope you have a smoother path ahead and lots of times you want to vocaalize.
God bless,
hugs and prayers..
Sandi

krystle singer's picture
krystle singer
Posts: 109
Joined: Feb 2009

Yes, yes, yes..cancer sucks and treatment ususally sucks, but recovery sings. Hope you have a smoother path ahead and lots of times you want to vocaalize.
God bless,
hugs and prayers..
Sandi

tootsie1's picture
tootsie1
Posts: 5065
Joined: Feb 2008

Mary, Mary, Mary.

You've had such a rough few months. I just feel so sorry that you have had to go through so much (and are still dealing with it).

It's good to have you back on here, and I hope and pray we will only hear about things getting better for you from here on out.

*hugs*
Gail

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Good to see you back........

donnare
Posts: 266
Joined: Jun 2009

Hi Mary,

Sorry you have been through so much. I'm glad you are home with family and friends. I am sending prayers, hugs, and good thoughts your way.

Donna

dixchi's picture
dixchi
Posts: 438
Joined: Jun 2008

cannot believe what you have been thru; very
happy you are recovering and back home!

Huggs,
Barbara

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Mary,

What an awful ordeal you've been through! I'm glad to see you're now home again and are on the mend. I'll be thinking of you and praying for you to recover and feel well soon.

Take care and blessings to you from now on-
Lisa

dmdwins
Posts: 453
Joined: Aug 2008

Take one day at a time. I hope you feel a little better each day!

Dawn

WinneyPooh's picture
WinneyPooh
Posts: 318
Joined: Jul 2009

Mary,
I am new to this whole cancer, but i have to have liver surgery in october, Did you have liver surgery, are these complictian normal, Sounds like other had same complications, is this what i can expect?
the only part of this cancer that scares me is this. I need to know?
Glad you seem to be road to recovery and you seem like a very strong person,
Winney

regslady
Posts: 37
Joined: Jul 2009

You must be incredibly frustrated by all that happened. I'm glad you feel like you are on the road to recovery...best wishes the rest of that road is speedy and stress-free.

regslady
Posts: 37
Joined: Jul 2009

You must be incredibly frustrated by all that happened. I'm glad you feel like you are on the road to recovery...best wishes the rest of that road is speedy and stress-free.

rrob
Posts: 160
Joined: Nov 2007

Mary,

Glad you're back and sorry it's been such a rough ride. You are tough! Keep fighting and hope things start getting easier from here on out.

Rebecca

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

for your responses. I appreciate them all. As far as the abdominal muscles, they will be left to atrophy until such a time in the future when I will need hernia repair surgery. Yea, more surgery. Not sure if they can do the entire abdomen at once, since it will obviously require that mesh stuff, and how the heck will they get it all to come back together???? Not my concern right now, however, I've got infections to heal, food to eat, and possibly some surgeons to sue :). And no, while complications like mine aren't RARE, they certainly aren't normal. I've had 2 previous abdominal surgeries with NO such complications.

Thankfully I had extra weight at the time of original surgery, these infections, etc sure have eaten through the extra! It's still hard to tell just how much weight I've lost, but I sure am looking thin! I jump on the scale regularly to make sure I don't continue to lose weight, however, to satisfy my daughters :). Take care everyone and maybe it won't be so long until I get on again!

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