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Craig aka Sundanceh

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

Your quote "I see a chest surgeon tomorrow and my future is up in the air - I've been pretty sick about it all day as tomorrow draws near...just wanted to check the board one more time before I turned in for the night."

Craig thank you for your inspiration and valued information that you have given me and others. I just wanted to let you know I am praying for you for a positive outcome
for tomorrow. I have been following your story completely and I feel for you. I thank you most of all for coming forward so bluntly with the possibilities with my outcome because what I have posted and you being honest with your own experience.

You and many others have given me so much knowledge and I thank you for that and all the others that have so willing contributed to this board.

Hugs! Kim

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Craig,

I will be praying extra hard for you. You are an inspiration, as I said before. We thank you for your input.

Keep us informed! Many hugs, Vicki

Julie 44
Posts: 479
Joined: Oct 2008

I to will be keeping you in my prayers...You will come out of this and go on fighting like you do.......JULIE

mom_2_3
Posts: 965
Joined: Nov 2008

Prayers for you today Craig. Hope you get all good news.

Kim, it was very thoughtful of you to post this. Thanks!

Amy

lmliess's picture
lmliess
Posts: 331
Joined: Dec 2008

and sending positive thoughts and prayers for a positive outcome.

Please keep us posted.

Linda

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Praying for u now.... let us know....

Jennie

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Hi, Kim

I've been out of pocket today and just got in a few minutes ago and came to log in and see what's going on out in our world...

I got the biggest surprise when I saw my name mentioned in the subject line of your post. That was so very thoughtful of you to do for me. In fact, that's one of the nicest things anybody has ever done for me. I was very touched and moved by your gesture of kindness. I had to wipe away "tears of joy" from my face, I was so caught off-guard.

I am glad that you feel that way. I'm beginning to get to know you and everybody and it feels so wonderful now to have a support group that I've never had in my life - ever.

A month ago, I did know anybody here and did not know any of their stories, and now I know so many people and their stories and it is beginning to feel very good to get to know you and everyone!

I've been asking myself if I was making any kind of difference on the board - Kim, your post tells me that maybe I have done some good or at least tried to, and that's what it's all about for me. The true "connection" between human spirits and reaching each other across cyberspace is such an inspiration to me and is technology that is well spent and invested.

I'm not sure how I lasted 5-years with nobody to talk to about it - friends, family, and even your spouses don't want to keep hearing about it and so you just keep quiet and move on. I now have people out there that understand the condition and that I can share things with and try to be of some assistance if I can.

This board has been a true blessing to me as I know it is to everybody else - bigger than any one us, but collectively together, it is truly an amazing thing. You are some of the most happenin' people that I know and all of your courageousness and fight continues to remind me that we must fight so that we can live to tell about what we learned.

Vicki: Thanks again for your warm comments.
Julie: Nice to meet you and thanks for your kind sentiments.
Amy: Nice to meet you too and thank you so much for your support.
Linda: Thank you for your support and kind words too.
Jennie: Thank you for your support and prayers too.

I know I came crashing through the door like a bull in a china closet, but I wanted to thank you one and all for welcoming me here and making me like part of the family. I really care about each of you, I just want you to know that.

I'm going to close with one of Eric's lines, but I told him yesterday that I wanted to elaborate and add to it - so here goes:

"Cancer does not define us - but how we Fight and Handle the Cancer DOES define us."

All my blessings and prayers to each of you and to Donna tonight -

Kim, thank you again. You made me feel like a million bucks!

-Craig

Annabelle41415's picture
Annabelle41415
Posts: 6722
Joined: Feb 2009

That was a very nice response and I'm glad that I put a smile on your face. I can't imagine how you have dealt with this for five years without interaction with people going through it. I am glad that you found us and feel at home here because now you have a new family.

Believe me, you have made a great difference on this board. So a big thank you!

I hope that all went well today.

Hugs! Kim

donnare
Posts: 266
Joined: Jun 2009

Hi Craig,

Just wondering how things went with the surgeon. Hope you got good news and are well.

Donna

SandyL
Posts: 220
Joined: Feb 2009

I don't know how you managed for 5 years without a support system in place. That's something that you really need when fighting this battle. We are here for you! That was such a very nice response from you. I'm finding that postings like the one that Kim posted are the norm around here and isn't it wonderful?
Have a blessed day.
Sandy

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Hi, Donna

Unfortunately, I ended up slipping through the "cracks" in the medical system for my appointment.

The new oncologist neglected to get my CT and PET scans loaded into the hospital server so they could be accessed. When they set up the appointment with the chest surgeon, they assured us they would have the scans loaded and everything set up for the visit.

When we got there, I ran through my history with the PA of the surgeon and then in came 4-trainees who were there to observe. It was like something out of Grey's Anatomy :)

Then the surgeon made his entrance and got his PA all shook up - he must be the intimidating type, because she got very nervous around him.

Bottom line is they did not have my scans loaded into the system, so there was nothing for the chest surgeon to look at.

He began barking orders and ordering up scans, and his pager was constantly going off, and he would return the phone calls right then and there were many of them, seemingly uninterested that we were even in the room.

So, he ordered CT's and PETs and said to forget about biopsies and VATS and all of that until we scanned. We were trying to let him know that we had every scan he was looking for, but that the scans were not loaded. He just has so much going on, he was not listening to us or even his own people. My wife and I were upset at the treatment we received.

At the end, he finally understood that we had scans AND he would now review them. Well DUH, that's what we setup the appointment for him for - he was supposed to review scans and let me know about the VATS etc. during the appointment, that's what we were there for. So, we both missed a half day of work and came away with nothing, except the bill of course.

Oh my! So, we're back to waiting another week to see what they come back with. He did confirm that the potential tumor is in a bad position in the pleura. But I knew that already.

Thanks for asking and thinking about me. Maybe I'll open a post when I get some hard decisions.

Thinking of you and your husband as he starts his first chemo on Monday.

-Craig

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