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Mouth and Throat Sores

Madelyn67's picture
Madelyn67
Posts: 8
Joined: Jun 2009

I'm new to this forum. Was diagnosed with rectal cancer in 2008. I had the whole removal operation and started chemo in February 2009.

I had my 8th chemo treatment last week and developed sores. Has anyone else had this problem and if so what was prescribed, if anything? I see my doctor tomorrow.

I was also curious if anyone had problems with stoma bleeding during chemo? The doctor told me that the skin around the stoma breaks down and can cause bleeding. I actually had to have the skin around my stoma cauterized.

Any information will be greatly appreciated. Thanks.

Madelyn

Paula G.'s picture
Paula G.
Posts: 596
Joined: Apr 2009

My husband hasn't had the mouth sores and I hope he doesn't. A gal he works with did and some paperwork he got from the onc mentioned L-Lysine. She gave him some. It is by Nature Made. They are tablets and they worked for her. They are 100% natural.
I don't know about the other. Good luck Paula G.

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

I had them really badly. I used the saline solution that worked A LITTLE BIT, but I think the doctor can prescribe something called Magic Mouthwash that is supposed to be really good. I think I've just learned to live with them for now, but there was a time that I couldn't even drink water without pain!

nudgie's picture
nudgie
Posts: 1483
Joined: Sep 2006

My Onc prescribed Magic Mouthwash which comes in liquid form. It helped me, but I only had to use it once.

grandma2selena's picture
grandma2selena
Posts: 200
Joined: Jun 2009

I didn't get mouth sores, but instead got thrush, which lead to a secondary infection of my digestive system. Every time we got the thrush cleared up, it would be time for Chemo again, and sure enough the thrush would come back. My treatment would be different then yours, since we were treating a different condition, but I was given Nystatin for Thrush, then another mouth rince...don't remember what it was called. Hang in there and remember this too shall pass.

Debbie

grandma2selena's picture
grandma2selena
Posts: 200
Joined: Jun 2009

I didn't get mouth sores, but instead got thrush, which lead to a secondary infection of my digestive system. Every time we got the thrush cleared up, it would be time for Chemo again, and sure enough the thrush would come back. My treatment would be different then yours, since we were treating a different condition, but I was given Nystatin for Thrush, then another mouth rince...don't remember what it was called. Hang in there and remember this too shall pass.

Debbie

grandma2selena's picture
grandma2selena
Posts: 200
Joined: Jun 2009

I didn't get mouth sores, but instead got thrush, which lead to a secondary infection of my digestive system. Every time we got the thrush cleared up, it would be time for Chemo again, and sure enough the thrush would come back. My treatment would be different then yours, since we were treating a different condition, but I was given Nystatin for Thrush, then another mouth rince...don't remember what it was called. Hang in there and remember this too shall pass.

Debbie

grandma2selena's picture
grandma2selena
Posts: 200
Joined: Jun 2009

I didn't get mouth sores, but instead got thrush, which lead to a secondary infection of my digestive system. Every time we got the thrush cleared up, it would be time for Chemo again, and sure enough the thrush would come back. My treatment would be different then yours, since we were treating a different condition, but I was given Nystatin for Thrush, then another mouth rince...don't remember what it was called. Hang in there and remember this too shall pass.

Debbie

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

... started getting sores, didn't happen till my 5th treatment, so when I went for my 6th treatment, my onc wouldn't give me the Bolus push, and leucovorin till they cleared, she just gave me the Avastin, Irinotecan and 5FU. But, I use the magic mouthwash, which makes it feel alittle better, I put it on a Q-tip, then apply it directly to the sore, and it numbs it out pretty good :)

Julie 44
Posts: 479
Joined: Oct 2008

Ask your onc to perscribe Magic Mouthwash..You just swish it around and it nubs your mouth and it helps soooo much..It really saved me....Also had crackes in the corners of my mouth. The onc gave me some cream for that but forgot the name of that but it worked great too..Good luck....Try drinking very warm (not hot) drinks and hold them in your mouth too that helps sooth it...

daydreamer110761's picture
daydreamer110761
Posts: 497
Joined: Dec 2008

I only got a mouth sore one time, but had throat sores towards the end. Everyone here mentions magic mouthwash, and I had a prescription for it, but never got it. I used a combo of liquid benadryl and maalox, which was cheaper (since I had both of those things) and I only used it once.

kimby's picture
kimby
Posts: 804
Joined: Oct 2007

Welcome to the forum. I hope you find this place as welcoming and helpful as I do!

Here's what I do for mouth sores:

*Brush your teeth with a soft (I use a toddler's brush) toothbrush several times a day
*Use Biotene toothpaste and mouthwash
*Rinse your mouth with a mix of: 1/2 tsp salt, 1 tsp baking soda, one cup water. I keep this mixture in a travel mug in the kitchen and bathroom and swish/spit everytime I walk through.

I start this the night before chemo. The cleaner I keep my mouth, the less likely I am to get the mouth sores and the quicker they clear up.

HTH,

Kimby

bluesman
Posts: 1
Joined: Jun 2009

Thank you so much for the information about the mouth sores prevention. I came to this site just to find such valuable information! Walk in beauty!

lizzydavis's picture
lizzydavis
Posts: 893
Joined: May 2009

Kimby,

Thanks for the info. I will be starting chemo Tuesday. My NP said to rinse with salt water. But I like your routine. Thanks!!

impactzone's picture
impactzone
Posts: 532
Joined: Aug 2006

Kimby's suggestions are GREAT... I followed them religiously 3 X per day and it really helped...
Chip

taraHK
Posts: 1961
Joined: Aug 2003

You have already got some great suggestions for the mouth sores, which I agree with (I use a prescription mouthwash). My sympathies -- mouth sores are truly no fun.

You also asked about bleeding around the stoma due to chemo. I have never experienced this (and I have had chemo 4 times! various regimes) and also I haven't heard of this before. Which doesn't mean it isn't due to the chemo.....Have you considered other possibilities? Does your appliance fit well? Any bangs to the stoma? Are you comfortable with your cleansing routine? I have had minor bleeding sometimes around my stoma but usually if I'm a little rough with my cleaning or one time when I bashed it accidentally (ouch). Are you in contact with your stoma nurse still? (Also -- does your chemo "cocktail" include Avastin? That can sometimes interfere with healing -- altho it has been a while since your surgery now....).

Best wishes,

Tara

Madelyn67's picture
Madelyn67
Posts: 8
Joined: Jun 2009

Thanks everyone for your information. The doctor gave me a script for Magic Swizzle, which numbs your mouth. I used it for 2 days and in that time the sores went away. My doctor also gave me an antifungal script, just in case it was something else.

My blood levels (for my liver) were extremely low, so my doctor put off chemo for at least 3 weeks. Dcotor was worried that the chemo was affecting my liver, so who knows what will happen next.

Anyone else have problems with their liver blood levels from chemo and what did your doctor do? Thanks.

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