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Scary Doctor visit this morning UPDATE

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Ok, I was scheduled for round 2 of 5FU this week (5 days infusion, then 3 weeks off). I see the oncologist on Mondays. So I was giving him my list of issues that have cropped up, one being I am having bad pains in my abdomen, feels like it's in the colon up high near my navel. He started poking around, which brought me up off the table at one point. He looked concerned and asked if I would consent to a CT scan. He said it's possibly an abdominal hernia, but isn't sure.

Should I be scared? Is he looking for a tumor? I mentioned a tumor and he said not to get ahead of myself. Now I have to wait for the lab to have room to fit me in, hopefully later this week.

BTW - we went ahead with the chemo. He asked if I wanted to delay and I said no...let's help all we can if it is a tumor.

Not a good day. And of course, it was the first time since early December that I drove myself to and from, and I was all alone to hear this.

Vicki

UPDATE
The scan trip was horrible. They gave me a barium contrast to drink at home first, and I couldn't get it down. Heavy vomiting with every sip. I called and they said just come in and they would give me something else. So in we go, sick all the way. They gave me something that tasted like Tang...good for a while and about 2/3 of the way through, I redecorated the waiting room with orange drink! It was immediate and no way to make it to the restroom. There wasn't even a wastebasket to grab. What a mess! They dressed me up in scrubs, my clothes were toast! So they took me back and decided they had enough still in me to do the scans. Score one.

Then I had to go to chemo. We all decided it was the chemo causing the reaction. Probably should not have scheduled the scan this week. Oh well, it's over. I'll get the results Friday. Once I got to chemo, they decided I was in rough shape (duh!) so they added hydration to the routine. So, we were there 2 1/2 hours instead of 45 min, but it was a good thing. At least Dick was with me all day. I am still very sick from chemo and can't keep anything down, even with Zofran. And the wonderful hot sweats are back, all night long.

I tell you, is this cure worth it?

Thanks for listening....Vicki

daydreamer110761's picture
daydreamer110761
Posts: 497
Joined: Dec 2008

I hated hearing things alone. Don't get yourself all upset, just wait until the ct scan. getting upset helps nothing, just take it easy until the results. thinking of you ...

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

remember Cheryl's first step////take a big deep breath...sorry this has come up Vicki...who needs it. Could be nothing, could be chemo pain..hang on there Vicki

hugs, mags

lmliess's picture
lmliess
Posts: 331
Joined: Dec 2008

easier said than done I KNOW...but just wait until you get all the facts and then if need be, get a plan in action. The one good thing about all this is that we are all going to be looked after and scanned so much that if anything comes up it will be handled right away.
Look how far you have come and hang in there!

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

if it helps, i doubt that it's a tumor cause I don't know about YOU, but I had no pain with my tumor! It's probably a hernia or infection from surgery (it hasn't been that long since yours, right?). Deep breath and stop imagining the worst! Time enough to deal with whatever it is when you find out what it TRULY is!
mary

dixchi's picture
dixchi
Posts: 438
Joined: Jun 2008

and hoping all turns out ok; know it is scarey but you
just had surgery not too long ago and there could be
side issues with that or as your doc said maybe a hernia.....
the last thing I would think of is ca......they ususally
don't hurt like that. Keeping you in my thoughts.

Barbara

polarprincess
Posts: 210
Joined: Aug 2008

I have had the exact same thing since last week and i was really worried as well.. in fact on wednesday it hurt so bad i went to the emergency room. Whenever the doc would press in that area it hurt horribly..yet all my bloodwork and everything came back ok, and so he didn't order any scans or anything since I had just had a scan in february which i realize doesn't always show things in the colon but...anyway.. long story short in the end i am pretty sure it was just a combination of semi blocked stool and horrible gas because i had eaten chinese food for 2 days straight, and even though i had gone to the bathroom, a couple days later i went like 5 times and then had an episode of diarrhea after that which evidently had been blocked behind the harder stool and after that the pretty bad pain went away and within a couple of days after that all of the pain was gone... so all in all it was about 6 days of pretty significant pain... maybe yours will be something as simple too hopefully.. good luck

PhillieG's picture
PhillieG
Posts: 4888
Joined: May 2005

Hi Vicki,
Sorry this came up for you, the waiting stinks. I have/had a abdominal hernia. I got it a while after my surgery back in the Fall of 2004. I honestly can't remember how long after surgery I got it, I think it was the following spring. At any rate, I have a rather large protrusion in my gut area. I can see where part of the abdominal wall is herniated. I am sore in that area still. I haven't been concerned about getting it fixed because I have other things to work on but an abdominal hernia can cause pain in the area that you are describing. I would not concern yourself that it could be anything other than the hernia at this point. As others have said, take some deep breaths and try to relax, they can't tell you anything more until after you have the scan so why get ahead of things in the wrong direction.
Hope you get the scan and great results quickly.
-phil

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Yes, I had to take a deep breath. ?the most likely scenario is hernia...my surgery was Feb 4, so almost 3 months. I just was alone and letting my imagination run.

I appreciate all of the support. Whatever it is, we can fix it.

Many hugs, Vicki

PhillieG's picture
PhillieG
Posts: 4888
Joined: May 2005

My imagination has run many marathons over the years about this kind of stuff.
-phil

pamysue's picture
pamysue
Posts: 105
Joined: May 2008

if that picture by your name is your baby, then yes "this cure is worth it." My son is what kept me going so many times. So many people, I am sure, love and need you Vicki.
Try to hang in,
Pam

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

That is my youngest grandson, who turned 1 on April 4. And yes, I want to see HIS children! I just have to whine and carry on this week...I'll get past it.

Thank you, Vicki

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Vicki,

Take deep breaths! I'm sorry you're having a problem. It is apparently something- but I doubt it's a tumor. A hernia doesn't sound fun either, but it's better than a tumor, of course.
I'll keep you in prayer-

Take care,
Lisa

Hatshepsut's picture
Hatshepsut
Posts: 340
Joined: Nov 2006

I'm so sorry you are having this scare.

My husband had major surgeries in 2006 and 2007 (and a minor surgery in 2008) and has had some really painful incidents relating to scar tissue since those three surgeries. When that happened, I was very frightened and, of course, thought the worst. As it turned out (thankfully), the doctors were correct and he was having (and continues to have) temporary scar tissue issues. When it happens it is awful, but it does abate.

I hope your problem turns out to be something minor or (another way to look at this) something early that your doctor can address.

I'm a person who reacts dramatically to health issues that arise with my husband since his colon cancer diagnosis. Scan times make me physically sick. But, I do realize that many issues turn out to be something other than a cancer recurrence and when cancer does sometimes recur early detection of problems is vastly superior to finding problems late in the game. Either way, you are going to win.

Sleep well tonight and relax.

Hatshepsut

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Oh, Vicki. I'm sorry you were alone to get scared like that. I am praying it's not a tumor. If you remember some of my posts about the pain I've had since my surgery, you will recall that I've had several episodes severe enough for emergency room visits and hospital admissions. Scar tissue has been causing quite a ruckus, and the pain can be off the charts. So, it is quite possible that it's not a tumor!

*hugs*
Gail

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hey Vicki... here I am with the "Stop what you are doing and take some deep breaths!" Ok, not too deep... it's probably an abdominal hernia so if you take huge breaths, you might hurt yourself (grin).

Sounds to me like it's a hernia! I say that because (grrrrrr) I have one too! Mine showed up about 3-4 months after my surgery. I had started my chemo about 2 months after the surgery and had had a couple of treatments when I noticed my stomach looked "different". It was like this rounded mound just above the belly button... which I had never noticed before. So I told my GP. He looked at it and said that he was going to send me for an ultrasound. I happened to see the ultrasound requisition that he had filled out and (yikes!) it said... "check large mass above stomach". Large mass??? Of course those two words are enough to send anyone into a tizzy.

Lucky for me, the ultrasound was the next day... and sure enough, the "large mass" was a hernia. Mine doesn't hurt... although, when I cough I can feel it. But, visually, I don't like it... makes my stomach look even larger than it already is ;)

And no, they are not going to do surgery on it. Because of the two surgeries, the muscles are not strong enough so if they did a hernia surgery, it would just come undone. Plus, they don't want to do any surgery on me so that we can save it until we might really need surgery.

Soooooo... don't worry, you are going to be fine! Besides, a tumour would no have grown that fast in between the scans you have had. And remember... with colon cancer, one of the problems is there are no symptoms.

You'll be fine!!

Huggggggggs,

Cheryl

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Yes, I overreacted yesterday. Tumors don't hurt, and there was nothing there in October, so it surely couldn't be large enough to feel by April! It's just that I am so darn close to the end, hopefully, and this crops up. Plus no of my support team (husband DD DSIL) were there to talk me down off the ledge. So I built it up in my head and started down that dark path again.

Good news is that they took me off Fentynal. Now I am just on Vicodin for pain (and do I have pain now!You are right Cheryl, really deep breaths hurt!)

Thanks for always being there, folks. i know I can count on reason and reality from you guys.

Vicki

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

Time has a way of bringing a bit of clarity! Funny that you prefer to have support with you if you receive potentially bad news. I guess because I've been in this a bit longer than you have and have been dealing with multiple recurrences, I actually ALWAYS go to consultation appointments alone! If I receive "bad" news, I want time to process it myself and decide what I am going to do and what I am going to tell my loved ones. I do know that they have a stake in how I deal with this, but I also know that I am the one in charge of making the tough decisions and I have to do what is ultimately the best for me. Plus, time gives me the ability to present the news in a way that might not be so shocking to them! It gives me a small amount of control in this battle and from my perspective, that's a big plus! I certainly go to my loved ones for support when I need it and I don't try to internalize everything like I did back when this began, but I have always been rather independent and this just works for me the best!

I sure do hope you are able to get that pain under control soon, I know it can be terribly draining! And bring that needed pillow into public with you, I bet you'd get the good seats and the good tables every time! People love a chance to help another who is in need, especially when it's related to something everyone dreads, such as cancer! Play the card you've been dealt, sometimes it has advantages!
mary

Annabelle41415's picture
Annabelle41415
Posts: 6212
Joined: Feb 2009

You are in my thoughts and prayers. I'm sure it is nothing and you have been staying on top of everything. It is a good thing that the doctor is being proactive with things too

Keep us updated. Kim

FAPMom47
Posts: 68
Joined: Feb 2009

I had the same pain 3 weeks ago and went to the ER. They did tests and it came back good, only thing they came up with was alot of air pockets, so they said gas. It hurt bad not like gas. I hope everything gets back on track for you.
Many Prayers
Jackie

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I have my CT scan scheduled for 9am tomorrow. we should have answers by Friday...

Vicki

lmliess's picture
lmliess
Posts: 331
Joined: Dec 2008

I'll say an extra prayer for you tonight.

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I added an update to my post...

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Vicki... wow, that was quite the day you had, wasn't it?? I'm so sorry you had to go through that and then, after being so sick, had to do the chemo. Not to mention, the hydration didn't seem to help you feel any better :/

I'm still puzzled over the contrast drink. I have never had to have that (knock on wood) when I get a CAT scan. I get hooked up to an IV and they administer the contrast dye via the IV. Although they have a heck of a time trying to get a vein, it sure beats having to drink some yucky tasting drink that I hear so many people hate or get sick on.

I hope you don't have to do that too often!! And I'm sending soothing stomach thoughts out to the universe for you so that this chemo period won't be so bad. You take it easy and don't try to over do anything. Your poor body needs time to rest and heal!!

Hugggggs and healing thoughts!!

Cheryl

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

I got both when it was a CT of the gut but only the i.v. dye for the lungs. I don't remember the flavor of the drink, but I followed the refrigeration suggestion and found it was a bit tasty. I AM weird! LOL

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hmmm... maybe that's the difference, although, for the life of me, I don't remember drinking anything back when I was getting CT scans of the intestinal areas. I could be wrong... it wouldn't be the first time my memory has failed me, and the CT scans I've had over the last year have been for he lungs and the adrenal gland area... but funny that I wouldn't remember the drinks, especially if they are foul tasting. Hahahaha... trust me, maybe I did have them and I liked them LOL!

C.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Vicki,

Wow- I'm so sorry you've had such an awful reaction and experience.
You know, it could be the hernia or possible infection that made you have such a violent reaction to it- or I guess it also could have been the chemo, like you said. I'm praying for you right now and will continue to do so.
It may not seem like it all right now, but, yes- the cure IS worth it!

"Hang in there" (like you have a choice- lol!) Things will get better.

Praying for blessings to come your way-
Lisa

shoppergal
Posts: 118
Joined: Mar 2009

I'm sorry it's been rough for you. Unfortunately everytime we have to do scans the stuff we drink always taste like crap!! lol I tell my Dr all the time with everything they can do medically today, you would think that they would come up with something that tastes at least a little better. You were right, maybe you should have waited for the scan when you were feeling better but I'm sure you did it because you were nervous about what it was. Unfotunately, once we go thru this lousy cancer, every ache and pain, we right away think the worst. I had alot of tenderness alittle below my bellybutton and to the right for a long time after surgery. It didn't have to be touched to hurt, sometimes I would just feel sharp pains when I was standing. It was scar tissue that formed from surgery plus I have a slight hernia, which is common after surgery. You were lucky that it was only 21/2 hrs at chemo, I usually spent that amopunt of time normally and then when I became allergic to the chemo and needed steroids first, I spent 4-5 hrs there! I can relate to the hot flashes and I have alot of sympathy for you. I had already been thru menopause before cancer,and had been taking hormone replacement beforehand (my gyn said they usually lower the risk of getting cc.... apparently NOT), which I stopped after my diagnosis. Of coure the hot flashes started again but on chemo, I wouldn't even know how to explain HOW HORRIBLE they were. Not only at night but during the day. My onc gave me Effexor which is an antidepressant that is being used for hot flashes,so I'm actually killing two birds with one stone. I call it my two in one pill! lol It helped the depression faster than the hot flashes, but eventually I noticed that they disappeared also HURRAY!!! I have noticed since chemo my overall body temp has changed I'm warmer than I used to be so the cold doesn't bother me quite as much. Is the cure worth it all.....when going thru it sometimes I didn't think so either. I thought 6 months of chemo was forever, but now looking back it went by pretty fast. Now possibly having to go back on chemo, I'm not happy, and I hope I don't have to.But this time I'll know what ot expect, and this time I won't think is it worth it. I know now it most definately is!!!! My thoughts are with you as you going this horrible time. Good luck

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

I am so sorry to hear about the HORRIBLE experience with the scan ... you'd think they could come up with something that's easier to tolerate, especially since we go through ENOUGH CRAP!!!! I do remember the tech saying the sweeter the stuff you drink the higher likelihood it's coming back up, which is why the only stuff they offer is the yummy (?!) banana smoothie! I hope they were thinking about what product they offer while they were cleaning up the mess! I would have loved to see the looks on the faces of the other people in the waiting room with you when you blew! Classic deer in headlights! :) I know, I get joy out of the weirdest things, but you have to take it where you can get it! I sure am praying that you have a better week on treatment; hope the added fluids help and that if the medication you are on for controlling nausea and vomiting aren't working they can get you something that DOES work. You have been through it and I know you are just wishing for ONE DARN GOOD DAY!!!! Stay strong, gal
mary

Annabelle41415's picture
Annabelle41415
Posts: 6212
Joined: Feb 2009

I am so sorry to hear of the trouble you had with your scan. You have been through so much. I hope you feel better soon. Kim

dixchi's picture
dixchi
Posts: 438
Joined: Jun 2008

Wow, Vicki, so sorry you had such a bad experience with the scan....
hope the results are good when you get the report.

I once did have a throw up from the stuff I had to drink for a CT
scan; first time it ever happened and this was after I had had
several scans over the past year. I had to drink it there in
the clinic and then they gave me an injection also. You have
a choice of cherry or grape.....well, I did ok until I got home,
then, like you, I pitched all over the place and had to clean it
up. I also had the shakes and could not get warm. Bad time.

From now on I think I will be getting PET/CT scan, that's what
the docs want instead and for that they only give me an injection,no
stuff to drink. Goes easier.

Wishing the best for you,
Barbara

hollyberry's picture
hollyberry
Posts: 176
Joined: Nov 2008

Have you tried Emend for the upset stomach? It was the only thing that really worked for me. Zofran didn't even touch the nausea. Just a suggestion.
Hope you feel better soon.
Hollyberry

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Oh, man. Sounds like you had such a tough day. I'm so sorry. We'll be praying for wonderful results.

*hugs*
Gail

kimby's picture
kimby
Posts: 804
Joined: Oct 2007

Vicki,

How horrible is that? You feel like crap and get to be embarrassed, too. You can do this and you'll feel better soon. Let's hope they got a great scan and it will be ok. You will be ok. Sorry this sucks so much.

Kimby

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I have had the worst week. The chemo reaction is so bad I am still bedridden. I have had 5 different anti-nausea drugs pushed in, plus one orally. They stopped the chemo Thursday. I can't even walk right now. A few more days, they say, and I'll turn around. Dr says next month we will change the dose and try a few other things. But I truly don't know if I can do this again.

GOOD NEWS is the scans were clear! No mets, no blockage, just radiation after effects showed up, so it looks like a hernia or scars.That we can deal with.

Thanks for listening. Vicki

sheri22
Posts: 278
Joined: Jan 2009

Vicki Alright more good news congrads. You deserve good news, now get out and enjoy this spring weather I am happy for you enjoy

Sheri22

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Vicki, I'm so sorry to hear how sick you've been. That sounds awful! I sure hope this morning you're feeling much better!

Glad it's finished for a few weeks and hope those lowered doses mean no more sickness!

I'm so happy to hear your scans were clear! That is great news! Whew!

Diane

dixchi's picture
dixchi
Posts: 438
Joined: Jun 2008

Wonderful news, nothing better than hearing those words that
the scan is clear......that should you give the umph! to
get back in the ring and battle again......I am sure you
don't feel like it right now but given a good rest time,
you will be...you're a fighter.

Barbara

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Dear Vicki,
I am so sorry to hear that you have had such a hard time. I hope and pray that it goes better for you next round.
At the same time it is so good to hear that your scan was good! Yes!
We are thinking about you and we are with you.
Aloha,
Kathleen

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Yes, as my chemo nurse said today, I got my a$$ kicked this time. But the doctor is working up a reduced plan for next time. I can't quit...I'm too close to the finish line. Only two more rounds and I am done.

Funny thing, not much stays down during this time, but today I got a craving for, of all things, Trix cereal! I haven't eaten that for years. Hubby went out and bought some and I had two big bowls...and it stayed with me! Dick looked at me and said "You're not pregnant are you???" LOL! Whatever it takes.

Many hugs, Vicki

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Hi Vicki,
2 more rounds... you're almost there.!

Funny thing about cravings.... Dick is craving a Bob's Pizza about 4 days a week. (Mind you, before chemo he was eating a strict anti-cancer diet but now he is eating what he can eat.) The owner of the pizza place has caught on that we are buying 4 pizza's a week and he found out why. He's discounted Dick's pizza's until he is done with chemo. I just love the goodness of people. :) Enjoy your Trix!!
Aloha,
Kathleen

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hey Kathleen... what a great craving Dick has! Hey, I want to be at YOUR house when the craving kick in ;) And that is really sweet that the owner of the pizza restaurant is discounting the weekly pizzas! I love hearing stories like that. Sometimes it's the smallest things that neighbours, friends or total strangers do when they hear what you are going through. They don't make a big deal out of it, but they do some little thing that just makes it a little easier and a whole lot better to know their thoughts are with you :)

Vicki... wow! I don't think I've even seen Trix cereal in years!! Hahaha... I don't think I've ever had a craving for cereal, but you are about the third person I've heard of that found they had cravings for cereal... something they didn't have prior to the chemo. Hehehe... I'm now tempted to pick up a box... but I'm scared I'm going to like it

Hugggggggs,

Cheryl

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Don't rush out and buy cereal! It's pure sugar and BAD for you...but I just had to have it. I am recovered now, thank God! But, hummmm, I think I want Pizza today. I wonder where that came from???? LOL!

Vicki

PhillieG's picture
PhillieG
Posts: 4888
Joined: May 2005

if it tastes good, eat it :-)
You're not on that other anti-nausea medicine by any chance, are you?

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