Semi-Colon Roll Call
Back in 2004/2005 when I was deep in the fight I remember a thread that everyone listed where they lived and being amazed at how many people actually read this board (there are many more lurkers than posters!!!).
I will start a new one with a little twist, stage and current status (in treatment, starting treatment, surgery scheduled, NED, etc). As a stage IV survivor I remember how I felt that there were so many others fighting and beating the beast and the stats were so WRONG!! I think it was Stacy that said "numbers are for Vegas" and we all know medical science does not understand nor can it measure internal fortitude.
For the "newbies" NED means No Evidence Of Disease. You have to be NED 5 years before the docs and insurance companies deem you cancer free.
I will start.....................
Dxed 2/04 stage IV (mets to liver and 1 lung), currenly NED 4 1/2 years, Greensboro, NC. USA
next..........
Comments
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my turn
hi still fairly new dx on Jan 22 of this year with stage 4 colon mets to lung , had stage 2, 3 yrs ago got lucky for awhile hopefully itll happen again, Ohio USA
next by the way I love the pic of your boxer We have 3 gotta have a sense of humor to own these dogs huh?0 -
When do you start?
Hello all,
I used to come here all the time when first Dx'd. This site really helped me with people answering my questions about chemo and what to expect. I would then try and help others with questions.
Dx'd Nov 2006
Stage III
2/28 Lymph Node
Surgery Feb 2007 Ascending colon
Chemo May - Oct 2007
I was actually told No Evidence of Diease in Dec. of 07 (when I had a colonosopy after chemo.
BUT...are you NED after your surgery to remove the tumor or after chemo? I'm either NED 1 year or 2 years.
Claudia
Rensselaer , In (North West Indiana)0 -
Great questionclaud1951 said:When do you start?
Hello all,
I used to come here all the time when first Dx'd. This site really helped me with people answering my questions about chemo and what to expect. I would then try and help others with questions.
Dx'd Nov 2006
Stage III
2/28 Lymph Node
Surgery Feb 2007 Ascending colon
Chemo May - Oct 2007
I was actually told No Evidence of Diease in Dec. of 07 (when I had a colonosopy after chemo.
BUT...are you NED after your surgery to remove the tumor or after chemo? I'm either NED 1 year or 2 years.
Claudia
Rensselaer , In (North West Indiana)
I did not follow any of the conventional paths to my NEDness so I talked it over with my oncologist to define my date.0 -
3!!!sheri22 said:my turn
hi still fairly new dx on Jan 22 of this year with stage 4 colon mets to lung , had stage 2, 3 yrs ago got lucky for awhile hopefully itll happen again, Ohio USA
next by the way I love the pic of your boxer We have 3 gotta have a sense of humor to own these dogs huh?
My one keeps me so busy and I tell everyone she is my cancer fighting dog. On those really dark days, she would always do something to make me laugh. BY FAR, the best dog I have ever had. Have you seen the video of the baby and the boxer touching hand to paw. It is so cool and I love the boxer yawn in it.0 -
My story
OK here is the story
05/2008 DX Stage IV Rectal Cancer, mets to liver and lung, inoperable
11/2008 Finish 12 Folfox+Avastin tumors shrunk 50%, but not good enough
01/12/09 Rectal Surgery, with permanent colostomy
02/19/09 SIRT aborted, due to tumor growing
03/03/09 Start Folfiri+Avastin
What helps me most? Exercise, 1 hour walking, 2 hours chi gong everyday. Diet, all vegetarian and lot of juice (thank Emily). Positive attitude, and of course this board.
Nothern Virginia
Peter0 -
North Carolina
My name is Jackie I live in Shelby North Carolina.
Dx'd 10-25-2004
no stage rectal cancer
chemo & radiation 6 weeks 11-25-2004
surgery 1-31-2005, temporary ileostomy and removed mass
NED 1-31-2005
chemo 3 weeks
surgery 12-19-2005, polpys removed and reversal
surgery 5-19-2006, permanent ileostomy
waiting for more surgery but biopsy are cancer free0 -
History
The following has been my journey so far:
Diagnosed 7/2004 Stage 2, no lymph node involvement
Had surgery; located in colon section near appendix.
No chemo recommended at that time.
3/2008 Recurrence to liver; surgery and 4 treatments
Folfox before surgery and 8 treatments after. Ended
chemo Dec. 2008; had one scan and I am NED, CEA 1.4;
onc says anything below 2 is normal for me; next
scan this coming Monday and hope I am still ok.
Would like to go to my 50th high school reunion
in Alabama with a happy smile on my face.
Barbara0 -
2 4 1... 411
Here's the 411 on us two...
SpongeBob:
Diagnosed Stage 3 CRC (thanks to HNPCC/Lynch Syndrome) in July of 2001 - age 36
Right hemicolectomy, removed 26"
Treated weekly with 5-FU/Lukovorin for 6 months
Currently NED for - GOSH! - 7 years
Married (to usakat) in May 2007
Currently living in Charleston, SC but moving to Key West, FL this summer
usakat:
Diagnosed Stage 3 CRC (also thanks to HNPCC/Lynch Syndrome) on 5/17/2006 - age 42
Right hemicolectomy, removed 19"
Treated w/ Oxaliplatin/Xeloda/Lukovorin for 6 months
Currently NED for 2 years
Married (to SpongeBob) in May 2007
Currently living in Charleston, SC but moving to Key West, FL this summer0 -
Historydixchi said:History
The following has been my journey so far:
Diagnosed 7/2004 Stage 2, no lymph node involvement
Had surgery; located in colon section near appendix.
No chemo recommended at that time.
3/2008 Recurrence to liver; surgery and 4 treatments
Folfox before surgery and 8 treatments after. Ended
chemo Dec. 2008; had one scan and I am NED, CEA 1.4;
onc says anything below 2 is normal for me; next
scan this coming Monday and hope I am still ok.
Would like to go to my 50th high school reunion
in Alabama with a happy smile on my face.
Barbara
I live in Gardner Kansas.
I was DX'd 12/1/08 with colorectal cancer after a colonoscopy. I went to the DR thinking I had a hemmoroid - she found a 2cm mass and ordered the colonoscopy for the following Monday. (This was the day before Thanksgiving and I was having my whole family over....) After the PET scan they found 2 small mets to the liver.
I just had my APR surgery with colostomy March 10 at St Joseph's Hospital in KC MO. I am having my liver recection April 9 at MD Anderson in Houston. Then I will do a mop up chemo for 4 months.
You all have inspired me that even though I have Stage IV with mets, I can still be fighting strong many many years from now!!0 -
Diane from Georgia
I'm Diane from Villa Rica, Georgia
Dx'd on Jan. 2nd, 2009, just days after my 58th birthday. Had resection on Jan. 7th. Spent 42 hours in the hospital before discharge. Surgeon removed 18" of colon via lap surgery. I was put on a regular diet less than 18 hours after surgery! Port installed a few weeks later.
Stage III
5 out of 17 lymph nodes showed 'a few cancer cells' (surgeons words) No sign of cancer in liver biopsy.
No mets
Currently having chemo. 3 out of 12 completed as of April 2, 2009. . I'm getting the usual triple cocktail and am wearing the fanny pack home for 46 hours. Fluorouracil Levoleucovorin Oxaliplatin
I am exercising, eating a Mediterranean Diet, taking vitamins and praying.0 -
IMHOclaud1951 said:When do you start?
Hello all,
I used to come here all the time when first Dx'd. This site really helped me with people answering my questions about chemo and what to expect. I would then try and help others with questions.
Dx'd Nov 2006
Stage III
2/28 Lymph Node
Surgery Feb 2007 Ascending colon
Chemo May - Oct 2007
I was actually told No Evidence of Diease in Dec. of 07 (when I had a colonosopy after chemo.
BUT...are you NED after your surgery to remove the tumor or after chemo? I'm either NED 1 year or 2 years.
Claudia
Rensselaer , In (North West Indiana)
In my humble opinion...
I count my NED time from the time I finished chemo and had follow-up testing which showed no evidence of disease.
Then, according to custom, I promptly went out, ordered a retro bowling shirt and had the name "Ned" embroidered on it!0 -
Hi everybody
Had emergency surgery Aug. 04, so going on 5 years now. Had large tumor that went through colon wall and engulfed overy, 3 lymph nodes positive. Had colostomy reversed after about a year, chemo, port removed after 3 years. Going to college at age 50 now. Very grateful for time gained, was at the point of dying, intestines completely blocked and ready to rupture when I went to ER 5 yrs ago. Now keeping an eye on liver lesion, very small 1/2 cm, going to have it rescanned in June and colonoscopy done. Hoping shows no growth or activity, just keepin on keepin on! If I had not returned to school would never have touched a computer and never found this site, wish it had been available to me during my surgeries and treatments, but thankful for it now. I live outside Zanesville Ohio, a small rural area. Have found this site very helpful and uplifting, especially when testing times roll around. There are some very upbeat and positive people on this forum, who try to help others, no matter what bad times they may be going through themselves. I appreciate you all.
Pam0 -
havent seen that videoscouty said:3!!!
My one keeps me so busy and I tell everyone she is my cancer fighting dog. On those really dark days, she would always do something to make me laugh. BY FAR, the best dog I have ever had. Have you seen the video of the baby and the boxer touching hand to paw. It is so cool and I love the boxer yawn in it.
Scouty
No I havent seen that video but it sounds like a boxer. You have that post about Florida too I think , I do have a question for you , my husband and I are going to Ocean city this month I love the ocean but the dr has warned me about the sun are the side affects that bad or is it just rash? I just thought you would be the one to ask the Florida vacation sounds like fun too hopefully next year?0 -
Mayor Rileyspongebob said:2 4 1... 411
Here's the 411 on us two...
SpongeBob:
Diagnosed Stage 3 CRC (thanks to HNPCC/Lynch Syndrome) in July of 2001 - age 36
Right hemicolectomy, removed 26"
Treated weekly with 5-FU/Lukovorin for 6 months
Currently NED for - GOSH! - 7 years
Married (to usakat) in May 2007
Currently living in Charleston, SC but moving to Key West, FL this summer
usakat:
Diagnosed Stage 3 CRC (also thanks to HNPCC/Lynch Syndrome) on 5/17/2006 - age 42
Right hemicolectomy, removed 19"
Treated w/ Oxaliplatin/Xeloda/Lukovorin for 6 months
Currently NED for 2 years
Married (to SpongeBob) in May 2007
Currently living in Charleston, SC but moving to Key West, FL this summer
I totally forgot y'all were living in my uncle's town!
:-)
peace, emily0 -
Surprise conception....
In March of last year my husband and I received the biggest surprise of our lives. I discovered I was 2 months pregnant with our 3rd child and we really had no idea how it happened. Two older children in our room as well as other conventional BC methods didn't prevent the pregnancy. But we looked forward to adding to our family and called the new baby our "immaculate conception.
Fast forward to November when I went in for scheduled c-section. After my tubal ligation the attending surgeon was feeling about my abdomen and felt a nodule (lymphn node) next to the colon and beneath my uterus. Surgical oncologist called immediately and biopsy confirmed adenocarcinoma. CT scan (my 9th wedding anniversary) that week confirmed 5 liver mets. I was diagnosed on 11/10 (my birthday). My husband's birthday had been 2 days before.
First oncologist said I was not operable. Second opinion at Memorial Sloan Kettering said I was "close" to resection.
11/24/08: Started FOLFOX
1/20: 2 month CT scan. Everything shrunk by 40%
2/20: colon surgery, liver surgery (40% removed, entire left lobe, wedge of right), gall bladder removed and HAI pump implanted
3/16: CT scan after being off of chemo for 2 months shows NED
3/23: Started HAI liver chemo therapy for 6 months
4/6/9: Will re-start FOLFOX for 6 rounds
Pathology from surgery indicated largest liver lesion at diagnosis had gone down 90% and was 90% necrotic. 7 of 42 lymph nodes infected.
My oncologist said the NED period started with surgery.
My daughter Katherine ("Katie Bird") is my angel...0
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