VickiCO

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MoonDragon
MoonDragon Member Posts: 183
edited March 2014 in Colorectal Cancer #1
Just let'n you know, you're on my mind and I'm thinking about you and hoping you're doing well! This message might be long gone by the time you're feeling well enough to check in, but sending hugs your way!

Jorie
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  • msccolon
    msccolon Member Posts: 1,917 Member
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    me too!
    Praying for you and sure your recovery is going well. We all look forward to the day you or your caregiver post to let us know how you are doing!
    mary
  • VickiCO
    VickiCO Member Posts: 917
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    It's Me!! I am HOME!!
    I held onto that rope and came through with flying colors. NO OSTOMY! And even better, out of 14 lymph nodes 0 were positive! I had surgery Wednesday - 5 hours. I had a lot of scar tissue from my previous surgery. Dr Brilliance, my new name for him, said the prayers worked and the tumor was even smaller, and he had enough clear margins to hook me back up. I am sore and tired, but happy.

    Thank you all for your support. I couldn't have done it without you.

    I will post more as I am able to get up an around. I am walking a lot, that helps.

    God Bless....Vicki
  • VickiCO
    VickiCO Member Posts: 917
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    VickiCO said:

    It's Me!! I am HOME!!
    I held onto that rope and came through with flying colors. NO OSTOMY! And even better, out of 14 lymph nodes 0 were positive! I had surgery Wednesday - 5 hours. I had a lot of scar tissue from my previous surgery. Dr Brilliance, my new name for him, said the prayers worked and the tumor was even smaller, and he had enough clear margins to hook me back up. I am sore and tired, but happy.

    Thank you all for your support. I couldn't have done it without you.

    I will post more as I am able to get up an around. I am walking a lot, that helps.

    God Bless....Vicki

    Oh! Oh! I almost forgot!
    I have been downgraded to STAGE 2!!! I still have to do the chemo, but so what???

    Vicki
  • maglets
    maglets Member Posts: 2,576 Member
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    VickiCO said:

    Oh! Oh! I almost forgot!
    I have been downgraded to STAGE 2!!! I still have to do the chemo, but so what???

    Vicki

    JUMPIN for Joy
    Oh Vicki I am so glad to hear your news and just to plain hear from you again....what wonderful news and no ostomy. Welcome home....I know there have been a ton of people here thinking about you. and NO lymph nodes.....

    out to the kitchen, some clear space and a great big happy dance.

    Well done Vicki,
    Lots of love and hugs,
    Mags
  • dixchi
    dixchi Member Posts: 431
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    maglets said:

    JUMPIN for Joy
    Oh Vicki I am so glad to hear your news and just to plain hear from you again....what wonderful news and no ostomy. Welcome home....I know there have been a ton of people here thinking about you. and NO lymph nodes.....

    out to the kitchen, some clear space and a great big happy dance.

    Well done Vicki,
    Lots of love and hugs,
    Mags

    HOORAY
    that is such great news, Vicki. I am so happy for you and know you
    are dancing for joy. Hope your recovery continues to go well.
    Hugs!

    Barbara
  • KathiM
    KathiM Member Posts: 8,028 Member
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    VickiCO said:

    Oh! Oh! I almost forgot!
    I have been downgraded to STAGE 2!!! I still have to do the chemo, but so what???

    Vicki

    YEA!!!!!
    I'm dancing BIG TIME for you, sweet soul!!!

    YEA YEA YEA YEA YEA YEA YEA!!!

    NAKED HAPPY DANCE!!!!

    Now, you rest up!!!

    HUgs, Kathi
  • dorookie
    dorookie Member Posts: 1,731 Member
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    VickiCO said:

    Oh! Oh! I almost forgot!
    I have been downgraded to STAGE 2!!! I still have to do the chemo, but so what???

    Vicki

    AWESOME
    Vicki,

    I cant even think of the words to describe how happy I am for you. All I can say is God was/is with you, you were truly blessed and I am so thankful and happy for you. Way to go, thank GOd for that great surgeon you had as well.

    Welcome back my friend, you go Stage 2'er!!!!

    God Bless
    Beth
  • CherylHutch
    CherylHutch Member Posts: 1,375
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    VickiCO said:

    Oh! Oh! I almost forgot!
    I have been downgraded to STAGE 2!!! I still have to do the chemo, but so what???

    Vicki

    WOW!
    WOW Vicki!!! That is FANTASTIC news!!! I don't think I've ever heard of someone being downgraded before... so YIPPPPPEEEEEEE!!!

    The pain, soreness, and tireds will all go away... so use them to your advantage and get pampered, pampered, pampered :D

    I'm soooo happy for you!!!

    Huggggggs,

    Cheryl
  • msccolon
    msccolon Member Posts: 1,917 Member
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    VickiCO said:

    It's Me!! I am HOME!!
    I held onto that rope and came through with flying colors. NO OSTOMY! And even better, out of 14 lymph nodes 0 were positive! I had surgery Wednesday - 5 hours. I had a lot of scar tissue from my previous surgery. Dr Brilliance, my new name for him, said the prayers worked and the tumor was even smaller, and he had enough clear margins to hook me back up. I am sore and tired, but happy.

    Thank you all for your support. I couldn't have done it without you.

    I will post more as I am able to get up an around. I am walking a lot, that helps.

    God Bless....Vicki

    OH, Happy day!
    That is outstanding news! My neighbors are just gonna have to cover their eyes cause the clothes are coming off and it's the NAKED HAPPY DANCE!!!!! I know you were VERY relieved when you came out of the anesthesia and realized you didn't have an ostomy! Sounds like you are recovering well and STAGE 2!!!!!!!!!! God is indeed good!
    mary
  • Shayenne
    Shayenne Member Posts: 2,342
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    msccolon said:

    OH, Happy day!
    That is outstanding news! My neighbors are just gonna have to cover their eyes cause the clothes are coming off and it's the NAKED HAPPY DANCE!!!!! I know you were VERY relieved when you came out of the anesthesia and realized you didn't have an ostomy! Sounds like you are recovering well and STAGE 2!!!!!!!!!! God is indeed good!
    mary

    Awesome!!!
    I am so happy for you! I didn't even know you could get downgraded to a Stage, I thought, once you were Stage 4, that was it! what an awesome thing to be now, and yeah, more chemo! so what! it's working and keeping it at bay! sooo glad to hear about this! You're sure a brave person Vicki, like alot of others on this board, I feel so timid compared to all of you, but I know once I start my treatments, it will only make me more determined and stronger!

    Hugsss to you Vicki!

    ~Donna
  • VickiCO
    VickiCO Member Posts: 917
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    Shayenne said:

    Awesome!!!
    I am so happy for you! I didn't even know you could get downgraded to a Stage, I thought, once you were Stage 4, that was it! what an awesome thing to be now, and yeah, more chemo! so what! it's working and keeping it at bay! sooo glad to hear about this! You're sure a brave person Vicki, like alot of others on this board, I feel so timid compared to all of you, but I know once I start my treatments, it will only make me more determined and stronger!

    Hugsss to you Vicki!

    ~Donna

    Downgrading
    Well, the surgeon is the only one who finally stages the cancer. My oncologist and GI both assumed a Stage 3 because of the tumor size, because it broke through the wall, and it looked like a couple of nodes were engaged. They were operating off of CTs and an EUS (internal ultrasound.) Once they actually go in and see what's happening, they can make a final determination. My surgeon decided that since he found no evidence of spread anywhere, and no nodes involved, I should be at stage 2. I agree. It is unusual, but not unheard of to be downgraded, as well as upgraded.

    Thanks for the hugs! Vicki
  • amcp
    amcp Member Posts: 251 Member
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    VickiCO said:

    Downgrading
    Well, the surgeon is the only one who finally stages the cancer. My oncologist and GI both assumed a Stage 3 because of the tumor size, because it broke through the wall, and it looked like a couple of nodes were engaged. They were operating off of CTs and an EUS (internal ultrasound.) Once they actually go in and see what's happening, they can make a final determination. My surgeon decided that since he found no evidence of spread anywhere, and no nodes involved, I should be at stage 2. I agree. It is unusual, but not unheard of to be downgraded, as well as upgraded.

    Thanks for the hugs! Vicki

    Praise God
    Vicko so good to hear from you and to know that everything went great for you. Praise GOD..he does answer prayers and I know we have all been praying for you. Thanks for you message about Frank's surgery. Hope each day brings you closer to recovery and know that we will continue to remember you in each and every prayer.
    Hugs,
    Anna
  • sheri22
    sheri22 Member Posts: 273
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    VickiCO said:

    Oh! Oh! I almost forgot!
    I have been downgraded to STAGE 2!!! I still have to do the chemo, but so what???

    Vicki

    alright
    Vicki

    Just read your post down to stay 2 that is definantly getting better congrats on the good news hope you are feeling better soon God bless

    Sheri22
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
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    VickiCO said:

    Downgrading
    Well, the surgeon is the only one who finally stages the cancer. My oncologist and GI both assumed a Stage 3 because of the tumor size, because it broke through the wall, and it looked like a couple of nodes were engaged. They were operating off of CTs and an EUS (internal ultrasound.) Once they actually go in and see what's happening, they can make a final determination. My surgeon decided that since he found no evidence of spread anywhere, and no nodes involved, I should be at stage 2. I agree. It is unusual, but not unheard of to be downgraded, as well as upgraded.

    Thanks for the hugs! Vicki

    yes!
    Vicki,
    I am so glad to hear your news! You have been in my thoughts in prayers a lot. As **** and I were flying home today I was hoping we'd hear from you!
    So glad the news got better after surgery.
    You go!
    Aloha,
    Kathleen
  • Joy1216
    Joy1216 Member Posts: 290 Member
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    Early Valentine's Day gift
    Vicki, sounds to me like you got an early Valentine's Day gift from your surgeon. That's fantastic news. I'll be going the naked happy dance for you.
    Joy
  • menright
    menright Member Posts: 256 Member
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    VickiCO said:

    It's Me!! I am HOME!!
    I held onto that rope and came through with flying colors. NO OSTOMY! And even better, out of 14 lymph nodes 0 were positive! I had surgery Wednesday - 5 hours. I had a lot of scar tissue from my previous surgery. Dr Brilliance, my new name for him, said the prayers worked and the tumor was even smaller, and he had enough clear margins to hook me back up. I am sore and tired, but happy.

    Thank you all for your support. I couldn't have done it without you.

    I will post more as I am able to get up an around. I am walking a lot, that helps.

    God Bless....Vicki

    Awesome news
    Vicki:

    Glad to hear your surgery went well. No ostomy is fantastic. I can only hope for the same. Congrats on the good news and good luck with your recovery.

    Mike
  • Buzzard
    Buzzard Member Posts: 3,043 Member
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    VickiCO said:

    Downgrading
    Well, the surgeon is the only one who finally stages the cancer. My oncologist and GI both assumed a Stage 3 because of the tumor size, because it broke through the wall, and it looked like a couple of nodes were engaged. They were operating off of CTs and an EUS (internal ultrasound.) Once they actually go in and see what's happening, they can make a final determination. My surgeon decided that since he found no evidence of spread anywhere, and no nodes involved, I should be at stage 2. I agree. It is unusual, but not unheard of to be downgraded, as well as upgraded.

    Thanks for the hugs! Vicki

    I had a feeling.....
    and said it in an earlier post that even though we hadn't heard from ya that there was gonna be some good news coming soon..........He is an awesome God isn't He.......0 nodes, stage 2 instead of 3, no ostomy. Congratulations sweetie, you deserve all the good news. Now rest and get better for the next and final round of mop up chemo and your done.....God Bless you hun and your caregiver...talk with you again soon...
  • menright
    menright Member Posts: 256 Member
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    VickiCO said:

    It's Me!! I am HOME!!
    I held onto that rope and came through with flying colors. NO OSTOMY! And even better, out of 14 lymph nodes 0 were positive! I had surgery Wednesday - 5 hours. I had a lot of scar tissue from my previous surgery. Dr Brilliance, my new name for him, said the prayers worked and the tumor was even smaller, and he had enough clear margins to hook me back up. I am sore and tired, but happy.

    Thank you all for your support. I couldn't have done it without you.

    I will post more as I am able to get up an around. I am walking a lot, that helps.

    God Bless....Vicki

    No colostomy?
    Vicki:

    Tell me more about the surgery and the lack of a colostomy. I will be scheduling my surgery in the coming weeks and I would like to explore all avenues to avoid a colostomy.

    I wonder if your surgeon utilized any unique skills to prevent the ostomy? Any input would be greatly appreciated.

    Best of luck with your recovery and again congrats.

    Mike
  • Joy1216 said:

    Early Valentine's Day gift
    Vicki, sounds to me like you got an early Valentine's Day gift from your surgeon. That's fantastic news. I'll be going the naked happy dance for you.
    Joy

    This comment has been removed by the Moderator
  • VickiCO
    VickiCO Member Posts: 917
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    menright said:

    No colostomy?
    Vicki:

    Tell me more about the surgery and the lack of a colostomy. I will be scheduling my surgery in the coming weeks and I would like to explore all avenues to avoid a colostomy.

    I wonder if your surgeon utilized any unique skills to prevent the ostomy? Any input would be greatly appreciated.

    Best of luck with your recovery and again congrats.

    Mike

    Hi Mike
    First, get yourself to Denver and look up Dr Nelson Mozia. You think I'm kidding...I am not! He is a miracle worker and the best colorectal surgeon there is. He was recommended by no less than 5 other doctors, including my own son-in-law. I was so lucky to be directed to him. Not all doctors are as skilled in the rectal area as they are in the colon. There is less space, and less clear tissue, to work with. My first surgeon (we call him Dr Doom) said, after one digital exam and three minutes of talking that I had "no hope" (rotten words for cancer survivors!) of avoiding an ostomy. I later found out he had only done one colorectal resection ever! Dr Mozia has been doing them for 28 years.

    Barring that, find the best surgeon and ask a lot of questions. What I was told was that my tumor was 3-4 cm inside the anus, and spreading outward. When first diagnosed, it had reached 1 cm from the opening, but the radiation and chemo shrunk it back. Even Dr Mozia said it would be difficult to avoid a colostomy. He recommended the longest possible radiation (I had 28 treatments, I think 30 is the max) and then waited a full 5 weeks after we stopped to give it a chance to fully work. I was sent to ostomy classes, and even wore a dummy device for three days to get the feel and learn about it. Now, here is the part that is hard to explain, even by the doctors. When he actually went in, he was amazed that the tumor was nearly gone, and the tissue in the rectum was clear margins, cancer free. I believe in the power of prayer, and I also believe that, as hard as the radiation treatments were for me (I won't lie to you, I had a rough time)they worked as well. DO NOT GIVE UP ON THEM! I did cut back on my sugar intake, and stopped red meat altogether, but I really don't think that had enough time to contribute to the success.

    I hope this is what you are looking for.

    Vicki