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CA125 Pre-surgery: 50; POST-surgery: 190.5!!! Why???? :(

lindaprocopio's picture
Posts: 2022
Joined: Oct 2008

I just phoned to get the results of my CA125 blood work drawn at my post-op ongologist appointment. My pre-surgery CA126 was 50 (even though I was diagnosed as Stage 3C), and I was so hoping that AFTER my hysterectomy and staging, that my CA125 would drop down within the normal range. Then, I thought, I could rest easy at night, believing in my heart that they got all of the cancer cut out of me last month during the hysterectomy, and that the upcoming radiation and chemo were just a precaution because I would secretly believe that I was ALREADY cancer-free. No such luck. In preparation with my first consultation today with my radiology oncologist to talk about my further treatments, I phoned to get my blood test results. My CA125 went up to 190.5, POST-surgery. Clearly the cancer lives on within me somewhere else. I could cry. Now I will go to my radiology consultation appointment today fighting for the most aggressive almost-kill-you sandwich of radiation and chemo. My kind of rare uterine cancer (UPSC) doesn't clump up into tumours but instead travels freely in microscopic form, resistant to treatment, famous for reoccurance within very short intervals. I so wanted to have that secret hope to hug to my heart. I am devastated by the news I just got. How seriously do you all rely on CA125's? Is there any other diagnostics they could give me that would show where the new cancer is hiding? Wow; this is so hard! :(

pjba11's picture
Posts: 192
Joined: Nov 2008

Hold on!!!!! You may have come to some wrong conclusions. If I recall from all of my ca125 testing ...your surgery itself could be why your ca125 is jumping around. Even a slight cold can set it off. Let your body heal a bit before you trust this test. God bless you in all of your decisions today. If you need to talk or call me please do.

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