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panic tumor rapidly getting bigger

victor53's picture
Posts: 97
Joined: Apr 2008

2 weeks ago today i went on my 2 week break from chemo.
The the plan when i started 2 months ago was 6 weeks of Erbitux carboplatin and taxol.
Then a 2 week rest .
Then 7 weeks of radiation plus chemo.
Then 4 week rest then surgery.
Well i finished the 6 weeks of chemo with no problems felt fine. That was 2 weeks ago

I had a 4cm tonsil into base of tongue and a huge 9cm lemon sized lymhnode.
the six weeks of chemo had shrunk the lymphnode in half.
Yesterday morning i felt it getting bigger and i felt the base of tongue getting bigger my 2 week rest is up today but they dont have me sheduled till next tuesday for chemo and radiation to start again.
I called medical oncologist yesterday morning nurse said they would call me back and they never did. I just called again and told them again that my tongue and lymphnode have doubled in size in the past 2 days the nurse said there must have been an emergency yesterday so i didnt get my call back she would tell the doc again.
i guess my tumors doubling in size in a couple days isnt an emergency.
Has any one else had a rapid increase in tumor and lymphnode size during a break in treatment.

Posts: 101
Joined: Jun 2008

To hell with good manners...it may not be an emergency but it certainly merits prompt attention. I suggest not waiting for a phone call..do what I did once: go to the clinic or hospital you've been treated at and sit there until you receive adequate care. By the way, you're the one who determines what's adequate. Best to you, Rich

Posts: 2
Joined: Jul 2008

I agree with Rich and get in there!!

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