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quivck update

Limey's picture
Limey
Posts: 447
Joined: Mar 2004

Hi all, I had a CT/PET scan yesterday and tomorrow will see my urologist to see what to do about my colon. It seems i have a pretty severe blockage (of course it seems to be much better this week)from this tumor. so... I have to decide to try and have a stint put in to open up the colon, or, go to a perm bag. neither excite me but such is life.

I hope to walk away tomorrow with an action plan that will help reduce discomfort and encourage this cancer to get the hell outta dodge.
i will keep you posted.
Mark.

Monicaemilia's picture
Monicaemilia
Posts: 455
Joined: Nov 2006

Mark: I have had a 'temporary' iliestomy for 2 1/2 years and I refuse to get rid of it. Maybe I am odd, but I had years of discomfort (running to the bathroom) and I finally feel okay. Reversing the iliestomy has been the last thought on my mind. I really don't mind and I am now quite used to it. You have to do what feels good to you, but I just wanted to give a plug to the 'bag' option. Monica

Moesimo's picture
Moesimo
Posts: 1080
Joined: Aug 2003

I had a temp. ileo which was reversed. I spent the next 18 mos. in the bathroom or loooking for one. I decided to have a colostomy done and I havent looked back.

Good luck with whatever you decide

Maureen

fedester
Posts: 757
Joined: Jul 2004

mark,
hope all goes well, good luck with your decision. i had a temp and than had it reversed.
be well
never,ever give up!!
bruce

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Mark, good luck with your decision. The main thing is telling cancer to "get the hell out of Dodge." More power to you!

Gail

taraHK
Posts: 1961
Joined: Aug 2003

Hi Mark. Sorry you are going through this and I am sure none of the options look dreamy. But, I am another one of those who has a permanent colostomy. Takes a little adjustment both physically and emotionally but I have to say, for me, it is truly no big deal...I wear what I like, do what I like (including hiking, swimming and, if you'll pardon me, 'intimacy') and all Ok. I wish you all the best as you face these tough decisions. But I do want to assure you there is a Good Life post permanent colostomy if that is where you end up going. Tara

kristasplace's picture
kristasplace
Posts: 956
Joined: Oct 2007

Hi Mark! I just wanted to add my two cents to this discussion because i hate my ileostomy! I don't know how others are dealing with it so well?? It bursts in the night more often then it should, it dehydrates me, i don't feel comfortable swimming (my favorite thing to do), because too long in the water and the bag starts to peal off. I can't wear jeans, the stoma hurts, it needs emptying often, it fills up with gas and bloats...I could go on and on. If it were my choice, i would take the stint any day of the week.

I do remember how miserable i was with a huge tumor that blocked me and made my life hell, and i am relieved to not have that problem any more, but...I think the stint will help you. Are they planning on removing your tumor and resectioning you again to get the ostomy?? Would the stint be permanent too?

Good luck with your decision!
Many hugs,
Krista

betina61's picture
betina61
Posts: 644
Joined: Aug 2006

Hi Mark,I don't have a personal opinion about what will be a better choice for you,but I'll pray for the right one for you.

hopefulone
Posts: 1048
Joined: Jan 2007

Hoping it goes better for you Mark. God Bless
Diane

jenalynet's picture
jenalynet
Posts: 363
Joined: Nov 2005

Hi Mark, I can't give an opinion about what procedure you should choose but I want to wish you the best. I do hope you get rid of the discomfort you have. I'm sorry that we have to make these tough calls with this cancer..I will keep you in my thoughts. Hugs to you, Audrey.

sladich's picture
sladich
Posts: 430
Joined: May 2007

I wish you the best, Mark.

Debbie

JMARIE66
Posts: 56
Joined: Mar 2008

Mark...I was glad to see yours post as someone else had posted for us all to add you to our prayers and send you positive vibes. This sounds like another bump in the road, of which I am wishing you success and a quick recovery!
JMarie

kmygil
Posts: 881
Joined: Feb 2007

Hi Mark. My vote is for comfort while you work to kill the beast. It may be a permanent thing, but as long as you are comfortable while you fight I think that's the key. Hugs and prayers.
Kirsten

jsabol's picture
jsabol
Posts: 1156
Joined: Dec 2003

Thinking of you, Mark, and sending many positive thoughts your way. Send this beast packing!
Judy

jams67's picture
jams67
Posts: 927
Joined: May 2006

Thanks for the update. My hope is that whatever you choose, you will be more comfortable.
Jo Ann

pamness
Posts: 513
Joined: Nov 2007

I don't have any personal experience to add to your post, but, "getting the hell out of Dodge," sound like a reasonable way to proceed. All the best.

Pam

KierstenRx's picture
KierstenRx
Posts: 249
Joined: Nov 2006

Mark,
Good luck with your decision. The permanent colostomy takes some adjusting, but is much better than the alternative. I do everything I did before and it doesn't affect my daily life. I made up my mind from the get go to not let my life be dictated by s**t!!!

I have always admired your amazing attitude and spirit. Know that I will continue to keep you in my prayers.

Kiersten

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