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varient hairy cell leukemia/lymphoma

Posts: 28
Joined: May 2008

april o6 we were told he had diabetes ,he had bloody nose a least once a month he had pain by his ribs and his body hair was falling out, he was taking glimepride know as ameryl 4 the diabetes he didnot have, he lost weight without trying and was taking naps alot,and was eating sweets that he didnot normally eat ,and he felt like he had to go to the bathroom and nothing would happen. the doctor said he was doing good,.. sept 07 i took my husband to the er ,he was bleeding enternaly, he had a neuroendocrine tumor in his pancreas and a mass in his stomach,enlarged spleen,lymph node in his lung, then nov 07 we were told he had varint hairy cell leukemia / lymphoma, lymphoma part was stage 4, nov 07 he had distal pancreatectomy and splenectomy ,feb 08 his treatment for the vhcll it was cladribine and rituxan,he got a full remission .april and may his ca-19-9 was 98 high,may 08 he also got a ct , they found a 7mm leison on his liver, next he will do a octreotide scan.we would like to know if anyone is out thier with vhcll with similar factors,

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Posts: 199
Joined: May 2008

Dear ajbf,

The easiest way to locate other members with similar experiences is to type keywords (such as "variant hairy cell leukemia," "neuroendocrine tumor," "stage 4," etc.) on the search bar at the top of the home page. You can refine your search by clicking on the different categories of content listed below the list of keyword matches that you get from your search. The major categories of content on CSN are discussion boards, personal web pages, etc. For example, if you are looking for a personal web page, you can limit your search to personal web pages only by clicking on the "personal web pages" category. Remember that you must be logged in if you want to post anything on a discussion boards, view personal web pages, use the chat room, etc.

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