chemo/blood clots

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meemaa
meemaa Member Posts: 25
edited March 2014 in Colorectal Cancer #1
My husband had chemo for a re-occurance of CC in one lymph node. Had surgery and 2 rounds of Camptosor + Xeloda. Much too toxic. Hair loss, hand/foot syndrome, rash, diarrhea for 5 weeks. We decided to quit. In an exam they saw his right leg swollen. Ultra sound shows a blood clot. Now on blood thinner. Any one else have this problem?

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  • claud1951
    claud1951 Member Posts: 424 Member
    #2
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    Hi Meemaa,

    I had taken Xeloda with Oxilplaitin (sp) and yes..I got the Hand/foot syndrome from the xeloda. Was on these two for only 4 treatment then had to get off of them.

    I was put on Camptosar & 5FU (a pump for 46 hours after Camptosar)took this for 8 treatments. This seemed to work for me all though, the Camptosar did cause hair loss.

    As long as it worked for me, I wasn't to concerned about the hair loss (Camptosar says hair will thin. Well..mine did to the point I finally had to buzz it).

    Stopped chemo 6 months ago and have my hair back and it's curly!

    I have heard you can get blood clots on chemo but this did not happen to me.

    Hope your hubby gets along with the blood thinners and I'll be thinking of him.

    Claudia
  • meemaa
    meemaa Member Posts: 25
    #3
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    claud1951 said:

    Hi Meemaa,

    I had taken Xeloda with Oxilplaitin (sp) and yes..I got the Hand/foot syndrome from the xeloda. Was on these two for only 4 treatment then had to get off of them.

    I was put on Camptosar & 5FU (a pump for 46 hours after Camptosar)took this for 8 treatments. This seemed to work for me all though, the Camptosar did cause hair loss.

    As long as it worked for me, I wasn't to concerned about the hair loss (Camptosar says hair will thin. Well..mine did to the point I finally had to buzz it).

    Stopped chemo 6 months ago and have my hair back and it's curly!

    I have heard you can get blood clots on chemo but this did not happen to me.

    Hope your hubby gets along with the blood thinners and I'll be thinking of him.

    Claudia

    Thanks Claudia, He is 78 and we thought a blood clot was worst than a maybe cancer cell floating around. This is our 3rd battle with cancer and we are not down just yet.
  • jams67
    jams67 Member Posts: 925 Member
    #4
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    I had a blood clot in my port that caused a lot of problems. None as far, as I know, anywhere else.
    Jo Ann
  • nudgie
    nudgie Member Posts: 1,478 Member
    #5
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    During my reconnection surgery (2/07) I apparently formed a very small clot in a minor vien within my right lung and was put on blood thinning shot during my hospital stay and then went on Warfarin for about 1-year and then had some major blood work done to see if I had any protein issues with clotting and all came back clear.

    I was told by several docs that the normal therapy for clots is about 6 months to 1 year unless you carry certain proteins within your blood that does not allow you clot properly then you are normally put on blood thinners for life.

    I hope this helps.
  • meemaa
    meemaa Member Posts: 25
    #6
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    nudgie said:

    During my reconnection surgery (2/07) I apparently formed a very small clot in a minor vien within my right lung and was put on blood thinning shot during my hospital stay and then went on Warfarin for about 1-year and then had some major blood work done to see if I had any protein issues with clotting and all came back clear.

    I was told by several docs that the normal therapy for clots is about 6 months to 1 year unless you carry certain proteins within your blood that does not allow you clot properly then you are normally put on blood thinners for life.

    I hope this helps.

    Thanks, One more thing to track and worry about. I wish God didn't trust me so much

    Mary B.
  • kmygil
    kmygil Member Posts: 876 Member
    #7
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    Hi. Yes, I had this problem. After about 4 treatments my left leg swelled and got dark red. It was a DVT (deep vein thrombosis), and evidently they are not uncommon during chemo. I was on thinners (cumadin) for about 6 months. You have to get your PT taken a lot so the dosage can be adjusted, and it is an ongoing process. I was also told to wear TEDs (you know, those awful support hose that leave bruises?)for the rest of my life, but that I could take them off at night. Needless to say, since I never even wear panty hose I am not compliant with this. Yes, my feet and legs are permanently swollen, but I can buy big shoes & wear pants. Chemo IS the gift that keeps on giving--not that I'm bitter or anything :-)

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