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going crazy

mrsriderman
Posts: 48
Joined: Aug 2007

i do not know how to put this but my bowls are crazy. one day-- everything fine and normal -- then the next day i feel URGENT to "go" evey couple of hours. it is driving me crazy. i know there are side effects to the "meds" i am on, but this is rediculous. i cant say my diet has changed-- even since my surgry. is this normal?

lisa r

MoonDragon's picture
MoonDragon
Posts: 194
Joined: Jun 2005

I so feel your pain! I can't even say I'm normal yet as I yo-yo between the "runs" and being stopped up. I don't have any answers but I wanted you to know you're not alone!

Jorie

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Sadly, dear girl, this is the 'Way of the West' for treatment...think about it, you are treating an area that you are trying to use everyday....know that it will get better, and this will dim to a rather unpleasant memory soon...

In the meantime, I ate banannas to slow things down, and just politely asked to use a facility wherever I was when the urge hit....I explained I am a colorectal cancer survivor...everyone was wonderful....

Hugs, kathi

vinny3's picture
vinny3
Posts: 933
Joined: Jun 2006

Didn't have the same problem as I have a colostomy but it seems that there have been others here who have indicated that it can take a long time, even several years, before it settles down. That doesn't make it easier for you but it helps to know your problem is common. When I had more looseness I, like KathiM, found that bananas helped. Try to think of it as a medal of honor to beat the beast.

Dick

kristasplace's picture
kristasplace
Posts: 956
Joined: Oct 2007

I know exactly what you're going through, too. And it is maddening. No matter what i seem to eat, or no matter what type of stool i'm going to have, the urgency is always there, and it's frequent. For me this may never end since the surgery will remove most of my "storage facility". It's difficult to have quality of life in this state, but somehow, we must achieve it.

Many hugs,
Krista

chynabear's picture
chynabear
Posts: 483
Joined: Jul 2005

My resection was 10/04/2004, 3 years ago. I STILL have issues with regulararity. I remember it being more pronounced right after surgery and increased during chemo. I would have the urgency to go and then little would come out only to feel the same way a few hours later.

Know that it does get much better, yet maybe never the same. I still struggle with either being constipated or too loose. I quickly realized that what I eat or don't eat plays a huge role in how my bowels work.

One of my chemo nurse's gave me a great recipe for a smoothie that seems to keep my bowels the happiest.

Mix to make milk:

1 Cup Water
2 Tbsp Flax Seed
2 Tbsp Oat Meal (I use Steel Cut Oats)
1 Handful Almonds

Add:

1 Banana
1 Apple
1 Slice Melon
1 Cup Frozen berries or Mixed fruit

Blend well

Hang in there.

Tricia

rmap59
Posts: 266
Joined: Jun 2007

Hey Lisa,
Sounds like me. I go through this everyday and it does get crazy. Things that work sometimes for me are metimucil at night, lomotil if I am going somewhere, small frequent meals. I always carry a complete change of clothes with me and wear diapers and pads on some days. Sounds depressing but I will say that either it has gotten a little better or I am just learning to deal with it better. My surgeon said it would get better after chemo but may take a while. Patience is hard. Pray about it is my advice and I will too.

Robin

rmap59
Posts: 266
Joined: Jun 2007

I just thought of something else that really helps me. Walking, even up and down your driveway or sometimes I walk all around my house several times. If I am having an especially bad day I just walk inside my house so I am close to the bathroom.

Robin

3cbrca
Posts: 208
Joined: May 2007

I'm going crazy too! Glad to know I have company!After my colectomy it took over a year and half for things to to settle down. Then I had chemo for Br Ca earlier this year, which put me right back where I was with the CRC.

JoyceCanada's picture
JoyceCanada
Posts: 134
Joined: Mar 2006

I'm going crazy too!!! It will be 2 years on 4th January 2008 since my Sigmoid resection. Some days are "good" and some days are "BAD". I have not had a "normal" BH movement in 2 years --- I always have "baby poop"..I know this is gross but it seems as though not enough water is removed from my BM. I have been caught short many times and always carry a pair of pantees with me at all times. Immodium does help --- but I am afraid to take it "every day". Can anyone tell me if it is safe to take 1 or 2 immodium everyday? ---- I've tried "diet changes" but nothing seems to work!!

vinny3's picture
vinny3
Posts: 933
Joined: Jun 2006

I've been taking two immodium everyday as well. I have a colostomy and the loose stool tends to plug the vent, then I have a constant balloon. As far as I know, it is safe to take the immodium regularly.

Dick

3cbrca
Posts: 208
Joined: May 2007

I don't know if it helps everybody, but I take Questran twice a day. As I understand it, when they biopsied the small bowel, it did something to my ability to process bile. Questran absorbs bile. Can't hurt to ask your Doc about it. I also take lomotil prn and immodium every morning and night-it's better than it was the first time around.

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Hummm, I had 3 inches of small bowel removed from an obstruction after my 'big' resection. I don't seem to have any bile difficulty, but I will remember this name...Questran....just in case...never thought about the small bowel resection...just wanted to be done with everything....

Hugs, Kathi

3cbrca
Posts: 208
Joined: May 2007

Fun Facts: You know if you have too much bile, it makes the stools a golden or yellow color...

Limey's picture
Limey
Posts: 447
Joined: Mar 2004

For me, Juicing works to keep me regular and I have struggled with both directions also.

I juice 4 carrots, a handful of spinach, 1/2 beet, and some purple kale every day. you can put an apple in it if you dont like the taste. for some reason, It seems to regulate me. you can also use metamusil but I prefer the chemical free method myself.
good luck
Mark.

3cbrca
Posts: 208
Joined: May 2007

I thought of another thing that really helped-Yogurt 3 times a day. It helps to balance the intestinal flora- If you don't like yogurt you can take Multi-dophilus or Acid-dophilus. My GI doc told me to get the ones in the refrigerator case as they have more live cultures. I switched to eating lots of yogurt because I couldn't remember to take the pills.

mydzntz
Posts: 2
Joined: Sep 2007

i take chorella, it's natural supplement to balance your good flora, also detoxsifies your body actually does a lot of things,please research this supplement, also i eat a good fibre breakfast, reguarly, helps make you regular again, goodluck!

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