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I can´t believe, I´m NED!!

Monicaemilia
Monicaemilia CSN Member Posts: 455 Member
edited March 2014 in Colorectal Cancer #1
I´m home from liver resection surgery and it went better than expected. I only have 70% of my liver left (for now) but are otherwise tumour free. I had given up last year when they cancelled my surgery, but through my family´s relentless support and energy, I´m here in Buenos Aires and have been given a second chance. Don´t ever give up! Monica
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Comments

  • davidsonxx
    davidsonxx CSN Member Posts: 134
    #2
    I am glad the surgery went well. You have fought so hard you deserve some good news. Here's to second chances! May we all get them.
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  • betina61
    betina61 CSN Member Posts: 642 Member
    #3
    Oh Monica! what wonderful news,thank you for sharing,posts like this keep us fighting together.
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  • lfondots63
    lfondots63 CSN Member Posts: 818 Member
    #4
    Oh Monica! I'm so glad you are doing well. You are a true inspiration. You are right, never give up because you never know what is around the corner. HUGS and happy dancing here!

    Lisa F
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  • vinny3
    vinny3 CSN Member Posts: 928 Member
    #5
    That's great news Monica. When you get a chance fill us in on the rest of your treatment that you had in addition to the surgery.
    Thanks, ****
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  • jerseysue
    jerseysue CSN Member Posts: 624 Member
    #6
    Wonderful news it's always good to hear NED!
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  • Lisa Rose
    Lisa Rose CSN Member Posts: 598 Member
    #7
    jerseysue said:

    Wonderful news it's always good to hear NED!

    Monica,

    I am thrilled for you and your family. Go celebrate and enjoy you NED-NESS today, tomorrow and everyday.

    Lisa
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  • pink05
    pink05 CSN Member Posts: 550
    #8
    Monica,

    That is great news!!! I am so happy to hear this!

    God bless,

    -Lee-
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  • Faith4Cure
    Faith4Cure CSN Member Posts: 405 Member
    #9
    That is great news, Monica!!So glad that you kept on looking for more options and never gave up! Thanks for sharing. Keep us posted and enjoy being with NED!

    Faith
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  • StacyGleaso
    StacyGleaso CSN Member Posts: 1,233 Member
    #10
    Monica,

    GREAT NEWS! Thanks for taking the time to update us, we could all benefit from a happy story!

    Hugs,

    Stacy, who only has 60% of liver left, and that's not a problem!
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  • DK2006
    DK2006 CSN Member Posts: 126
    #11
    Yeah Monica!
    This is great news! Thanks for sharing it with us!
    Best wishes,
    Donna
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  • crazylady
    crazylady CSN Member Posts: 543 Member
    #12
    Hi Monica,
    That's great news! Enjoy NED and celebrate well!
    Jamie
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  • KarenET
    KarenET CSN Member Posts: 2
    #13
    crazylady said:

    Hi Monica,
    That's great news! Enjoy NED and celebrate well!
    Jamie

    Running out of options
    I'm new and am enjoying all your messages. My dad was diagnosed stage IV with liver mets June 2006. They removed a foot of his colon & 11 lymph nodes-all had cancer. He has extensive "tumor burden" in his liver, a lymph node in his stomach area, & the lining around the organs. First-line treatment was FOLFOX with Avastin, but he got worse on this & had terrible side effects. The cancer progressed "substantially". A year ago he started Erbitux with CPT-11 and has had amazing shrinkage of his tumors! The doctors even used the term "miracle"! For the first time they said surgery may become an option. But, Monday they said his cancer has progressed and took him off that treatment. We had 2 options: Xeloda with panitumimab or a Phase I trial. We took the drug option and so far he has no side effects. That's whats frustrating...he feels great, gained back all the weight he had lost (40 lbs!) and all of his counts are normal except his CEA just went from 3 to 20. They keep telling us that resection, etc is not an option. He is 63 and is otherwise healthy. Has anyone had a similar experience? Any advice? He's being treated at the Mayo in Minnesota so I know he's being well cared for, but would anyone advise a second opinion? Any help is greatly appreciated!!!
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  • scouty
    scouty CSN Member Posts: 1,965 Member
    #14
    YGG!!!!!!!!! You go girl!!!

    Persistence is why you are where you are today. That baby of yours sure has a great role model.

    Celebrate and thanks for letting us know!!!! I am so very happy for you.

    Lisa P.
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  • Betsydoglover
    Betsydoglover CSN Member Posts: 1,248 Member
    #15
    Monica -

    What wonderful news and a great example regarding the value of second opinions. So happy for you.

    Betsy
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  • jsabol
    jsabol CSN Member Posts: 1,145 Member
    #16
    What great news, Monica! We're all celebrating with you! Judy
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  • Limey
    Limey CSN Member Posts: 446 Member
    #17
    Monica, mucho Congrats to you. I would love to learn more about the other treatments you have done down there. Heal well.
    Limey
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  • hopefulone
    hopefulone CSN Member Posts: 1,043 Member
    #18
    Monica.. I am so thrilled for you. Your such an inspiration . We keep pursuing options. Your post today just reminds me that we can never give up! God Bless. Diane
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  • jams67
    jams67 CSN Member Posts: 925 Member
    #19
    Great news! Ask your doctor how long it will take the liver to regenerate after losing 70% of it.
    Jo Ann
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  • alta29
    alta29 CSN Member Posts: 435 Member
    #20
    PERFECTO !!!!!!!!!!!!!!! Now we know where to go for a second opinion !
    God bless
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  • shmurciakova
    shmurciakova CSN Member Posts: 906 Member
    #21
    Hi Monica,
    That is awsome! Yea, I was a bit late reading your post...
    I am so happy for you. I was just re-reading an e-mail you sent me back in 2006. Finally, your struggle has paid off and you can join me with NED. I am happy to share!
    Love,
    Susan
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