CSN Login
Members Online: 5

You are here

CSN Outage 10/17/19

CSN will be down for maintenance on 10/17/19 from 10pm-10:30pm EST. We apologize for the inconvenience. 

first posting

ninthave
Posts: 12
Joined: Jan 2007

This is my first posting, I had stage 3 colorectal, diagnosed August of 05, had my ileostomy takedown end of last June. I cant believe how many people were told they had hemorrhoids, same here, for 2 years! Had a sigmoid and they completely missed it, finally got diagnosed at 39 years old. Still having a hell of a time with cluster stools, I think I'm going to survive cancer and end up in a mental hospital! Can still have 20 trips to the bathroom on any given day. Have had a few 5 day streches that seemed pretty regular, so am hopefull. Still doesnt seem to be any consistancy, cant figure out which foods are the best. I could relate to so many of you, hope to connect as soon as possible. I to, have wished for the bag back at times!

lfondots63's picture
lfondots63
Posts: 822
Joined: Jan 2006

Hi!

Welcome to the semi-colons! Some days I wish I had your problem. I'm the direct opposite now. Taking Senekot WAY to often. I was dx Dec. 19th and had surgery Dec 20, 2005. I was dx with IBS which is another common thing we get dx with. Nobody thought that at 42 I would have colon cancer. Before I went in for the colonoscopy they thought diverticulitis, colits... I'm sure lots here know the speel. I now get hyper when I don't go every day. LOL. Take care.

Lisa F.

66Rose
Posts: 58
Joined: Dec 2006

Welcome!

I also have an ileostomy! And hope to have a reversal soon, my rectum is not healing.

Did you have radiation before surgery?

Liz
www.runlizrun.com

ninthave
Posts: 12
Joined: Jan 2007

I did have radiationa and chemo before the resection, that was oct/nov of 05. Chemo after too. There is another posting in this area that has a link to a real specific bowel retraining regiman that I started last night. I had one prefect BM last night after starting it! I hope it is a sign of good things. I wish I had it right when I was reconected. I'll try and locate the site and send it to you. Good luck.

ninthave
Posts: 12
Joined: Jan 2007

Here is the link I was talking about

http://www3.mdanderson.org/depts/hcc/summer99/surgarticle.htm

libris
Posts: 23
Joined: Mar 2006

Hi and welcome!
I too had a temporary ileostomy with the take-down in September. I still make 8 -12 bathroom trips a day - mostly in the morning and the evening. It can be hard to get out of the house to get to work on time! I know what you mean about the food issue. Sometimes it seems that nothing makes it better. There are things that definitely make my day worse, though. I had a handful of popcorn once that I thought would kill me. I won't be do that again. Good luck, I hope things keep improving for you.

alihamilton's picture
alihamilton
Posts: 348
Joined: Jan 2004

Don't be discouraged! It does take time..my husband was dx three and a half years ago and still has several bowel movements in the evenings. Have you tried Metamucil? It might help and will certainly do no harm.

All the best,

Moesimo's picture
Moesimo
Posts: 1080
Joined: Aug 2003

I know what you are going through. Please check your email.

Maureen

Subscribe to Comments for "first posting"