breast reconstruction

sunshine6
sunshine6 Member Posts: 2
edited March 2014 in Breast Cancer #1
I am 45 years old and my mastectomy was four years ago, but I am only now looking at reconstruction. Not a good candidate for implant because of radiation, so we are looking at a tram-flap procedure. I'm very nervous about the potential damage to my abdominal muscles. Is there anyone out there who has had this procedure and can tell me what to expect for the long term? Also, exactly how challenging and how long was the recovery for you? Any advice?

Comments

  • kathydaly
    kathydaly Member Posts: 81
    After my first BC,I also had my breast reconstructed 3yrs. after treatment, so I guess I was 42 then. I hated, despised,was absolutely repugnated by my prosthesis, lmao. But truly, that is how I felt about it. I wanted the tram-flap as opposed to other options because then it was all me. I had and have a very undepenable and pyscophrenhic(sp) back, lol. Hence, I was very nervous about the possiblity of weaking my stomach muscles in aiding my back muscles, but at the same time really wanted the tram-flap. Consequently, I went to see an orthopedic surgeon and explained my dilemma. H said it would be no problem and to go ahead w/the procedure. And, I did. For the long term, it has made all the difference in the world. There has been no effect on my back, and my stomach muscles are fine. I am deliriously happy I did it. It is Night and Day difference. Perfecto, lolol. There's no getting around the after surgery challenge. It was painful immediately afterwords, but they gave me that pump thing so I could press the button to administer more meds in between(lifesaver). Found that morphine wasn't working for me , so they switched it to dilaudid, worked like a charm. When I went home, I definately was out of commission for about 4 weeks.

    My advice, is I would have done it again when I had second maestectomy but they would have had to be done at the same time for that. In other words, I would do it again in a heartbeat. The difference it made in how comfortable I was every day, is that I felt like I had never had had a maestectomy. I was big-breasted to begin with and so the balance thing was an issue for me also. Before that, at around 5 o'clock every evening my 12, 9, 4 yr old children would see this flying plastic blob sailing through the kitchen then the family room straight at the fireplace, and say, "Mom, what is that", response, "oh nothing ,don't worry, just something Mommy wants to burn , but can't", lollolo. I swear to God.

    That is my experience,disgust, rejuvenation, and hope I can share with you.

    Just do it! LOL, no seriously if possible, I'd say go for it!

    Prayers, love and (((((((huggs)))))) for you, Kathy
  • sunshine6
    sunshine6 Member Posts: 2
    THANK YOU KATHY!!
    How long ago did you have the procedure done, and how physically active are you today? One of the risks they mentioned was hernia.
    I never use a prosthesis, I can't stand for anything to press against the skin where I had my surgery, so I just go through life lop-sided, but in baggy clothes. Was your skin sensitive to the touch, and did the surgery make any difference? It seems like the nerve endings are just too close to the surface now. The wait list for me to get this done is 18 months, so I have lots of time to get scared off and cancel, but I just hate being so obviously not symmetrical. Seems like every procedure I have been subjected to has come with an unexpected surprise at the end, and even if there is a down side to this, I really want to be forewarned as much as possible. Luckily my kids are older now (17, 16, 15 and 13) than they were when I was in treatment, so hopefully they will be self-sufficient enough to let me rest and recover. Thank you so much for your thoughts on this, I am so anxious about this whole thing.
    Stefanie
  • Mich1417
    Mich1417 Member Posts: 37 Member
    Hi! I had the latissimus dorsi option for reconstruction 3 years after my mastectomy. Let me know if you want info on that. I'm having no problems and I'm a triathlete...need my lats for swimming.
    Good luck on your decision. :-)
  • lileva
    lileva Member Posts: 9
    Sunshine,
    I had tram-flap reconstruction last Jan. (06). I too was not a canidate for an inplant because of all the radiation. Even though it is major surgery and there is some post-procedure pain (my post-op pain was well controlled), I have been very happy that I chose to have it done.
    It has done wonders for my self esteem and clothes fit better. I just hated the prosthesis. I have not had any problems with my stomach muscles and have not had any hernia problems. There really hasn't been any surprises. I like the fact that it is my own tissue and will age just like my real breast. I must tell you though that you will not have any sensation in the new breast, but that has not been a problem for me. You will also get the added benefit of having a tummy tuck. ( I really enjoy that part of it.)
    After the surgery you will have a couple of drains in that can be cumbersome, but they are only in for about a week. There was a lot of swelling in my abdomen and legs right after surgery so you will have to wear clothing that is loose fitting for about a week. I did not realize this and tried to go home from the hospital in my jeans. (Bad idea!) Once the swelling went down, I was thrilled with my new figure!
    So, I too say go for it. It is well worth the initial discomfort.
    Good luck,
    Eva
  • kathydaly
    kathydaly Member Posts: 81
    sunshine6 said:

    THANK YOU KATHY!!
    How long ago did you have the procedure done, and how physically active are you today? One of the risks they mentioned was hernia.
    I never use a prosthesis, I can't stand for anything to press against the skin where I had my surgery, so I just go through life lop-sided, but in baggy clothes. Was your skin sensitive to the touch, and did the surgery make any difference? It seems like the nerve endings are just too close to the surface now. The wait list for me to get this done is 18 months, so I have lots of time to get scared off and cancel, but I just hate being so obviously not symmetrical. Seems like every procedure I have been subjected to has come with an unexpected surprise at the end, and even if there is a down side to this, I really want to be forewarned as much as possible. Luckily my kids are older now (17, 16, 15 and 13) than they were when I was in treatment, so hopefully they will be self-sufficient enough to let me rest and recover. Thank you so much for your thoughts on this, I am so anxious about this whole thing.
    Stefanie

    Hi again......I had the procedure done in'94 and i had no mention of hernia made to me, not even by the orthopedic doctor. Maybe the sensitive skin thing was what was wrong with me, because I sure as hell couldn't stand anything against it either. I think the top of the skin ends up being higher where less clothes touch it but the bottom part, while lower, will have the bra against it. All I can say is I had no skin sensittivity problems after it. My kids are now 24, 21, and 16.

    My forewarning is make sure you will have that pump thing for pain medicine after surgery, and/or tell them if the pain isn't being controlled. And realize you will be recovering for that4-6 week period, maybe longer. By recovering I mean sore, taking pain meds, and doing very, very little. I had some anxiety too, but once I made the decision it all went away. I'm so glad it was helpful for you, ty.

    Prayers, love and (((huggs))), Kathy
  • lovonna
    lovonna Member Posts: 78
    I had tram-flap reconstruction in Jan 06. For me this was the easy part! As the others have mentioned the pain pump in the hospital was a must but after I went home I was off the pain meds fairly quickly, like less than a week. Everyone's tolerance for pain is different though.

    I am very pleased with my reconstruction and would recommend this procedure. I chose it because I liked the idea of using my own tissue and not having a "silicone or saline bag" hanging off of me.

    If you are a cannidate for this, I say do it.

    God Bless, LoVonna
  • 24242
    24242 Member Posts: 1,398
    lovonna said:

    I had tram-flap reconstruction in Jan 06. For me this was the easy part! As the others have mentioned the pain pump in the hospital was a must but after I went home I was off the pain meds fairly quickly, like less than a week. Everyone's tolerance for pain is different though.

    I am very pleased with my reconstruction and would recommend this procedure. I chose it because I liked the idea of using my own tissue and not having a "silicone or saline bag" hanging off of me.

    If you are a cannidate for this, I say do it.

    God Bless, LoVonna

    Thanks for sharing your experiences, nice to read others since 10 years later almost and still haven't brought myself to think about it. I had one mastectomy then the other and that was enough for me I had always felt. Maybe after reading about others it might inspire me to go have some more surgery. I'll never say never...
    Tara
  • jamilli
    jamilli Member Posts: 16
    Why a tram-flap? Why not a DIEP or GAP procedure where they just take your fatty tissue from your abdomen or gluteal area and not the muscle. I just returned from UCLA medical center after having this procedure done a week ago. Please research this further. Why take muscle? From my research the two best places to go for this are New Orleans and UCLA. Good luck.
  • cspearson
    cspearson Member Posts: 1
    Mich1417 said:

    Hi! I had the latissimus dorsi option for reconstruction 3 years after my mastectomy. Let me know if you want info on that. I'm having no problems and I'm a triathlete...need my lats for swimming.
    Good luck on your decision. :-)

    Hi, I had my bilateral mastectomy in August with tissue expanders put in immediately. The expanders aren't working well on the side I had my radiation on so I was told the skin wouldn't stretch anymore. My Dr. mentioned the latissimus dorsi option and I just wanted some input from people who have been through that. Thank you for any information you may have regarding this.
  • ffransla
    ffransla Member Posts: 1
    Mich1417 said:

    Hi! I had the latissimus dorsi option for reconstruction 3 years after my mastectomy. Let me know if you want info on that. I'm having no problems and I'm a triathlete...need my lats for swimming.
    Good luck on your decision. :-)

    I had to have an implant removed after 24 years and they had to take muscle. It was done in December. I plan to have latissimus dorsi done in May. I have the same on other side. I'm a bit leery but I can't stand looking at the scar and the hole that is there with no implant. Sounds like you don't have any weakness. I hope I don't. The other side is good. Thanks for your note.
  • cancersurvivor2
    cancersurvivor2 Member Posts: 1
    edited May 2016 #12
    Tram-flap

     

     

     

     



    I had a left mastectomy on January 28, 2016.  I was able to have an implant immediately placed after the mastectomy.  I was fortunate that my cancer was removed and I did not need to have chemo or radiation.  Unfortunately things went south from there.  My breast did not want to completely heal.  Just had an area about where the nipple and areola were that would not close.  This prompted my surgeon to open and cut away the bad area and stitch it back up.  At this point, I believe that I already had my staph infection and the infection was now closed in.  This prompted another surgery to open the area again and removed and sanitized the implant and flush the area and put it back  in.  Again this still had the same area that did not want to heal.  Which prompted my fourth surgery on the same breast again.  This now meant implant had to be removed and a spacer placed instead to maintain the area to try again.  I am now looking at another surgery and struggling on the decision to have an implant placed back in for fear that it will not heal again.  I am now considering having the Tram Flap procedure. I am somewhat overweight but have not had any abdominal surgeries and my surgeon says that it would be possible.  Sorry I know I am rambling but I am wondering if you have had any regrets on having the tram flap procedure.  Appreciate any feedback you my have for me.  I am 51 and at this point want to be able to have my life back and eventually be able to return to my normally activities.

     

    Feed back can be sent to smilingteller@aol.com

     

    Sincerely,

    Cancersurvivor2

     

     

     

     

     

     

     



     

     

     

     

     

     



      I had a left mastectomy on January 28, 2016.  I was able to have an implant immediately placed after the mastectomy.  I was fortunate that my cancer was removed and I did not need to have chemo or radiation.  Unfortunately things went south from there.  My breast did not want to completely heal.  Just had an area about where the nipple and areola were that would not close.  This prompted my surgeon to open and cut away the bad area and stitch it back up.  At this point, I believe that I already had my staph infection and the infection was now closed in.  This prompted another surgery to open the area again and removed and sanitized the implant and flush the area and put it back  in.  Again this still had the same area that did not want to heal.  Which prompted my fourth surgery on the same breast again.  This now meant implant had to be removed and a spacer placed instead to maintain the area to try again.  I am now looking at another surgery and struggling on the decision to have an implant placed back in for fear that it will not heal again.  I am now considering having the Tram Flap procedure. I am somewhat overweight but have not had any abdominal surgeries and my surgeon says that it would be possible.  Sorry I know I am rambling but I am wondering if you have had any regrets on having the tram flap procedure.  Appreciate any feedback you my have for me.  I am 51 and at this point want to be able to have my life back and eventually be able to return to my normally activities.

     

    Sincerely

     

    Cancersurvivor2

     

     



     

     

  • monaa11
    monaa11 Member Posts: 2
     

     

     

     

    I've really benefited from this image