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recurrence of cml

Posts: 15
Joined: Jan 2004

My grandkids maternal grandma has a recurrence of cml after chemo, full body radiation and BMT after 7.5 years. She is presently taking Gleeved. Can anyone give me any info on this disease and possibly a NEW book I can purchase for her? Thank you so much for any help

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Posts: 6
Joined: Nov 2004

Dear Dyanna,
The best thing to do as for more info is to read books which you can get fron the American Cancer Society or y0u can do as I did and ask my Oncologist for any ideas they might have .Most doctors have ample supply of books or pamphlets you can read.Also you can go to www.webmb.com
Micheal from the chat room also has a good site to go to and read about leukemia.
I have also found that the Public Library has a good source of information there.And also talking to other who have survived Leukemia and had a setback has alot of good information also.
I have a friend who is using Gleevec Injections for much the same reason Your loved one is.
Keeping up a Positive Mental Attitude and keeping your Faith,while relying on friends and family to get you through this.
Eating a well balanced diet is also one great thing you can do to help.brocoli as well as other green veggies are really good to help keep up the body's energy level.You can also go to the Tennessee Oncology Website and find some helpfull things there to.As well as any Mayo Clinic.
If I can be of any help please dont hestitate to eamil me here at csn.
Dod Bless and Keep you and yours
Is My Prayer.
Countrygirl6777 or email me at livin2bfree4ever @yahoo.com
Will keep all of you in my prayers.
With Chritian LOve.
Susan Meschell

Posts: 8
Joined: Jun 2008

Hi Countrygirl6777, i am a 27 year female that was recently diagnosed with cml back in feb of 2008 which was on my b day what a b-day do you have any strong words of hope for me

Posts: 1
Joined: Oct 2014

I was 28 when I was diagnosed and 36 when I stopped treatments. I am now 40 and still show no signs of the philadelphia chromosone. They said it wasn't likely to stick and now my doc is starting to think it may be a durable remission. I never believed it would beat me and I spent whatever it took to get 2 nd and 3rd opinions. Own it, take charge of your decisions, and always believe your cure is out there. I am not the same person I was before cancer but for better or for worse I am a survivor. 50% from good doctors and 50% from sure fortitude. Be positive. I always said this was a bump in the road and it was. So if your road starts feeling too bumpy find a friend or family member who can remind you that You are the steam roller and go kick that cancer's hinney end. Gleevec helped me. Working helped me. And the love of family and friends kept me at it. Workout even if its horrible it makes you tough and it will help you survive the fatigue even if it doesn't cure it. I wish you all the best and yes there is lots of hope for you and all of us.


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