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How frequently are you scoped?

Betsydoglover's picture
Betsydoglover
Posts: 1256
Joined: Jul 2005

Hi all -

Gotta question. Last November I had my first post surgery colonoscopy (couldn't get all the way thru last May due to sigmoid tumor). Everything checked out and my gastro doc said to come back in two years. He even said that many docs say three years, but he is not comfortable with that. (I am Stage IV but currently and also last November NED).

Today I saw my oncologist. She told me that even though I am her "star patient" - boy I love those words - she is very uncomfortable with me waiting until Nov 2007 for another scope. She wants me to have one again in Nov 2006. That's fine with me if my GI doc will do it.

So, plenty of time to decide - thus I am soliciting experiences with what has been recommended to all of you.

Thanks much,
Betsy

DK2006
Posts: 126
Joined: Jan 2006

Hi Betsy,
I was told I can have a yearly colonoscopy for the first 5 years. Best wishes. Donna

suzannchili's picture
suzannchili
Posts: 135
Joined: Mar 2003

I had a yearly colonoscopy for the first 2 years, then every 3 years. Be well!

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shmurciakova's picture
shmurciakova
Posts: 910
Joined: Dec 2002

I had my first post surgical scope one year after my colon resection. It was clear so she told me to come back in 3 years. I am due to go in June and every 3 years after that assuming all is clear.
-Susan.

jerseysue's picture
jerseysue
Posts: 626
Joined: Oct 2005

I had my first colonoscopy in February and I'll be getting one yearly. I'm also stage IV and NED since November as well. I don't go to a gastro doc I told my onc that I wanted to use the same surgeon that did my surgery last April. I use the same surgeon for everything it knows me and I know him. I like it that way.

Moesimo's picture
Moesimo
Posts: 1080
Joined: Aug 2003

I am ALMOST 3 years out with stage 3 rectal cancer. I was told I would be scoped at 1 year and then could go 2 or 3 years. Not me, I have been scoped yearly and I think I will continue until I am 5 years cancer free. Then I will maybe go longer. My docs are great and agree with me.

Maureen

rthornton's picture
rthornton
Posts: 346
Joined: May 2005

Betsy,

I no longer have a colon so I will never again have a colonoscopy. But every six months I get a flex sigmoid scope (and my colorectal surgeon is nice enough to give me sedation for that).

Rodney

jsabol's picture
jsabol
Posts: 1156
Joined: Dec 2003

Hi Betsy,
I will have a yearly colonscopy for the first 3 years,and then my onc "will see" if we should go further out, to 2 or 3 years.
I agree with your onc. The first 3 years after treatment are the highest risk for recurrance or mets, as I understand it, and I'd rather keep checking! Judy

4law's picture
4law
Posts: 112
Joined: Dec 2004

I just had first post surgical colonoscopy and CT scan. My oncologist said that if my rectal cancer returns, it will most likely be within 5 years -- therefore I will have yearly colonoscopies and CT scans for 5 years.

AuthorUnknown
Posts: 1560
Joined: May 2006

Betsy,

The oncologist told my mother (through me) that she would have colonoscopies every year for first 5 years. And then we will see...

NanD
Posts: 59
Joined: Mar 2006

I'd go with the yearly-so much of being a semi-colon involves some crazy, unpredictable, ever changing bowel habits that it's real tough for me to know what's normal. I always feel reassured by that negative scope. Also, the guidelines are not all that clear, so it's important to let your oncologist decide on a case by case basis.

drmrgirl47's picture
drmrgirl47
Posts: 129
Joined: Mar 2004

Hi Betsy,
I go for a colonoscopy every year for 5 years. But I also have a sigmoid every 3-4 months. I had stage 3, rectal cancer. I just saw my colorectal doctor Thursday and he said most of those cancers return within 2 years. So far I am 2 years 4 months NED. Thank God. I also go for CAT scan and chest x rays once a year. And blood work from oncologist every 6 months. Peace. Annette

Betsydoglover's picture
Betsydoglover
Posts: 1256
Joined: Jul 2005

Thanks to all. It wasn't going to take much convincing, but you all definitely convinced me to go with a yearly schedule for a while. Looking forward to my November 2006 scope - ok - not really, but I definitely will do it!

Take care,
Betsy

Susanbm
Posts: 61
Joined: Mar 2006

I'm stage III and I just had my one year colonoscopy and was told that I could wait 2 years for the next one. Now you've got me worried! I guess I'll check with my oncologist to see what he says. I understood that I have a greater chance of it coming back somewhere else, not my colon.

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