CSN Login
Members Online: 5

You are here

Some facts as I prepare for Sacramento

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

I am honored to be representing ACS by going to Sacramento (California state capitol) to talk about a bill pending for providing for under- and un-insured people to get colorectal screenings done. WOW...got my packet today and was I surprised!!!

-If this cancer is caught BEFORE is spreads, the 5-year survival rate is 90%.
-Of the over 5,000 Californians that are expected to die of colorectal cancer in 2006, HALF could be saved if they were tested.
-The survival rate for colorectal cancer is lower than for breast and prostate cancer BECAUSE SCREENING RATES ARE MUCH LOWER.

These things probably aren't new to most of you....but WHAT an education I'M getting!

(ok, I WILL go to my colonoscopy in April, after all).

HUGS AND HUGS AND HUGS to all of you!!!!
Kathi

Moesimo's picture
Moesimo
Posts: 1080
Joined: Aug 2003

You go girl!!!!

Sincer there are so many of us that were diagnosed younger than 50, maybe you can rally for screenings younger than 50. That is a goal of mine. I tell lots of people not to wait until 50. But then the insurance co. doesn't want to pay.

Good luck

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Already on my list, my girl! THAT is something that as long as I have their ear.....I was dx at 49, had I waited till 50, I'd be pushin up daisies!
Hugs,
Kathi

rthornton's picture
rthornton
Posts: 346
Joined: May 2005

I was diagnosed at 35. If I had waited until 37 or 38, I'd also be pushing daisies.

Rodney

Anonymous user (not verified)

I second that, third that, and even fourth that! I'd also like to ask that if you are at risk, i.e., family member had disease, screen at least in your thirties. Bert's dad died of the disease at 57, Bert got it under 50, and our son Mike was told by his doctor, one of those rare ones that truly fights for his patients, next year he will be screened...no if's, and's, or butt's (little humor here) about it. Mike is 29!!!

My opinion, the earlier, the better.

Monika

Lisa Rose's picture
Lisa Rose
Posts: 595
Joined: Mar 2003

Hi Kathi,

As I was reading your post I thought it would be interesting to see how old everyone was when diagnosed.

I was dx at 40.

Good Luck,
Lisa Rose

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Good idea Lisa....I was diagnosed at 50. But doctor said it had been growing for approx. 10 years.

Kerry

Betsydoglover's picture
Betsydoglover
Posts: 1256
Joined: Jul 2005

Good idea Lisa. I guess I fit the profile in that I was diagnosed at 55. And it had been there "a while" - whatever that means. My oncologist told me that the standard (and we know standards aren't that great) is that my kids and my brother's kids should get a first colonsocopy no later than ten years prior to my age at diagnosis - in other words 45. And I think they should all have them before age 40.

Betsy

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

I was 49 and mine too had been there many years......the silly fecal popsiscle test (waste of time) missed it a couple of times.

Lisa P.

JADot's picture
JADot
Posts: 720
Joined: Jan 2006

Kathi:

You rock! Thanks for taking the time to be an advocate. I strongly second all that's been said about early screening. I was diagnosed at 39 and docs said it'd been there for 2-3 years.

You go - best of luck to you on your trip!

Cheers,
JADot

lfondots63's picture
lfondots63
Posts: 822
Joined: Jan 2006

Hi Kathi!

You rock!! You will need to tell us how the trip goes. I was dx at 42 but I am sure it was growing for a while since I had been sick for a while. Just thought it was IBS. DUH. If I had waited I would have been the same as all. My colon was almost blocked by the tumor.

Lisa

debralla
Posts: 205
Joined: Feb 2006

Kathi
I was diagnosed at 45 four months ago . celebrated my 46th while getting my second treatment . I am stage 4 (liver mets) Dr said mine was around for awhile as well .
TAKE CARE AND GOD BLESS
DEBRA

Anonymous user (not verified)

This comment has been removed by the Moderator

charelaine
Posts: 36
Joined: Mar 2006

I was 29 when dx w/stage III. Been there 2-3 years, best guess, and was completely obstructing by the time I went to the ER.

HowardJ
Posts: 484
Joined: Jan 2005

Wouldn't it be great if life was like the TV commercial being run about how excited people are to get screened for CRC.

Spread the word!

kangatoo's picture
kangatoo
Posts: 2115
Joined: Feb 2004

Well done Kathi....takes a lot of courage to get deeply involved in advocation for the needs of "the many".No matter how loud we shout there is always someone with a reason to try and fob off the urgency of health issues. The trouble is...firstly $$$$ are involved.....secondly...those against these positive legislations probably think they are immune to cancer!
Howard....yah forgot something mate...your age!Hey mate....do you know we just found out all tha gals ages here?.......he!he! ooops...sorry Kathi and gals.
............kanga just fell "over tha hill"....downward slide now....I'm 50!

livin
Posts: 319
Joined: Jan 2003

Hi Kathi, Iam like many other dx at age 46 years old but was told could have had it as far back as 10 years earlier. Had a bout with breast cancer first at 44 y/o then had a metast. to the liver at 49 which was also said to had probably been there really at age 48 y/o because the cat showed a vague area on my liver then but never had follow up treatment. until a pain ful stomach ache one day at 49 y/o.

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Would you guys mind, if I get a chance while I'm there, to show these legislators this thread? Please let me know if you Do Not want me to, you can e-mail my CSN mail....I don't want to step on toes, but this may be a way of REALLY letting them know what is what.
Hugs,
Kathi

JKendall
Posts: 186
Joined: Nov 2004

Kathi...I'm not shy about it, and I know Jerri won't mind, she gets on the soapbox every chance she gets!

Jerri was 47 at diagnosis (Stage IV) with no family history and had probably been carrying it for at least 2-3 years before that. She's now going through a second round of chemo after almost a year of NED (Mets to liver, spleen and abdominal cavity). We're VERY scared, and it could have been caught earlier with a simple colonoscopy if any one of the three or four doctors she saw in the preceding years could have pieced those quietly progressive symptoms together.

This disease kills way too many people, and leaves open wounds in the hearts of those who love them and care for them. Someone has GOT TO LISTEN!!!

Thanks for carrying the torch for us.

Jimmy

kangatoo's picture
kangatoo
Posts: 2115
Joined: Feb 2004

Kathi...fine by me...we need to get some of our politicians and people who have an influence on legislation to realise that..."IT COULD BE THEM!"
Sorry for shouting at yah.....but when will the they understand?
Btw....I was dx'd in 1997 with haemarroids...the specialist only looked as far as he could go with a sigmoidoscope. If he had ordered a colonoscopy my cancer would have been found back then.I was told in 2003 when the final dx for cancer was decided on that I almost certainly had cancer in 97!

Anonymous user (not verified)

Not at all Kathi...please let them know straight out that this disease, just like other cancers, does not discriminate, especially not based on age. Most people here, including my Bert, need never, ever have had this disease if proper screening (the gold standard colonoscopies) had been performed. Come on folks, we all know our bodies pretty much better than any doctor does and for them to tell us and TREAT us for other symptoms simple because we haven't reached that magic number of 50 for the colonoscopy is rediculous. This is true for everyone and most especially for those who have family history, as was Bert's case. When they removed his tumor back in 2003, estimated growth time was 5 to 6 years, so he got it in his early 40's. Right about right cause his dad died at 57 of right sided colon cancer.

I get so angry about this every single time. Sorry folks...just needed to get it off my chest....AGAIN!!!

Monika :o)

goldfinch's picture
goldfinch
Posts: 737
Joined: Oct 2003

I was 46 years old, no family history.
Mary

Anonymous user (not verified)

This comment has been removed by the Moderator

Anonymous user (not verified)

This comment has been removed by the Moderator

Jen28
Posts: 45
Joined: Nov 2005

I was 28 when I was diagnosed with stage III colon cancer, with no family history.

Jen

well's picture
well
Posts: 26
Joined: Apr 2005

How many were diagnosed *before* age 50!

Myself, I have stage 4 colorectal cancer and have been told not to expect to live to see age 50. I was diagnosed as stage 3+ in my mid-40s. Age 50 is definitely too late to begin routine screening, in my opinion. If screened earlier, I might have had a chance to live to age 50. I hope your legislators will consider the implications.

Subscribe to Comments for "Some facts as I prepare for Sacramento"