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worried or maybe just paranoid ..

Posts: 100
Joined: Mar 2004

Hi Everyone,

Quick question - my mom (for those who don't know - diagnosed Jan 2003 with Stage 3), recently had a routine physical. The results came back showing some blood in the urine and her hemologin has dropped a little bit. The doctor said that this is just a urinary tract infection and not to worry. Of course, anything abnormal worries me so I thought I might run this by everyone .. Any thoughts on if she should get a second opinion. Of course the first thing that I think of is that this might be a recurrence to the bladder...


Kanort's picture
Posts: 1275
Joined: Jan 2004

Hi Vanessa,

Was this with her oncologist or a primary care physician? I am sure that it is as simple as a urinary tract infection, but I certainly understand your worry. My CEA level went up from 1.3 to 1.7 so I am worried about that even though I was told not to.

Keep us posted.


Posts: 100
Joined: Mar 2004

Hi Kay,

it was her primary care physician (who is aware of her history, but sometimes I worry that she is not vigilant enough...) Your CEA level is still so low- I'm sure you have nothing to be concerned about !

Posts: 719
Joined: Feb 2005

HI Vanessa, My docs have been following up with ultrasounds to verify things (classify spots on my liver, cycts on my ovaries - and the notations also carry exlanations such as: gall bladder clean, kidneys clean...) Maybe a simple ultrasound (not invasive) can clear up any worry for your mom. It is just a thought; I am sure that your mom is so happy to have you advocating for her....what an angel you must be! All the best and I hope you find answers soon - Maura

Posts: 1961
Joined: Aug 2003

Yes, it is probably "just" urinary tract infection. But, if it is worrying either you or her (or both!), then you might want to pursue it with her doctors. I believe in getting things checked out, to help me sleep at night!
All the best, Tara

spongebob's picture
Posts: 2598
Joined: Apr 2003

Vanessa -

OK... I'm going to sound like the worry-wart in the bunch here, but it is from close personal experience... Get a second opinion and a cystoscope. Have a urine cytology test done. My mom and my aunt are both stage 4 with bladder cancer - mets from their colon cancer. It's a hereditary thing. I get a urine cytology test done every year (I got the family "prized genes", too)

It may be "just" a UTI, but don't fool around when a survivor has blood in the urine.

- SpongeBob

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