Are you in the Sorafenib + Interferon Clinical Trial

woody305
woody305 Member Posts: 2
edited March 2014 in Kidney Cancer #1
If anyone here is or has been enrolled in a study using Sorafenib (BAY43-9006) in combination with Interferon alpha 2-b for metastatic renal cell carcinoma, I would love to ask you some questions about how you are doing with the trial. Things such as severity of side effects, etc. I know these vary by individual but at least it would be nice to chat with someone to see what I am facing.

Thanks,
Woody

P.S. You can reach me at [email protected]

Comments

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  • SHIRLMUNSON
    SHIRLMUNSON Member Posts: 2
    woody
    I AM IN THE STUDY AT HUOUSTON FOR SORAFENIB. I DIDN'T GET CHOSEN FOR BOTH. I AM GETTING ALONG FINE WITH THE SORAFENIB ALONE. I WAS DISAPPOINTED I DIDN'T GET CHOSEN FOR BOTH. SEPT. 20TH I WILL HAVE CT SCANS AND ALL OTHER TESTS FOR THE FIRST TIME. I AM WORKING WITH DR JONASCH AT MD ANDERSON. WHO ARE YOU WITH? HOW MANY OTHER PEOPLE ARE YOU TALKING TO? I STARTED TAKING SORAFENIB JULY 25TH TWICE A DAY PLUS VIT B6. I WAS DIGNOSED WITH KIDNEY IN 2004 AND HAD ONE KIDNEY REMOVED AND THEY SAVED 3/4 OF OTHER ONE. OK FOR A YEAR THEN IT DECIDED TO GO ELSEWHERE MY LUNGS. TWO SPOTS TOP OF LEFT LUNG AND INBETWEEN LUNGS IN THE CENTER OF CHEST. I HAVE GOTTN ALONG PRETTY WELL AFTER MY FIRST BAD EXPERIENCE. I THOUGHT I WAS HAVING ALL THE SIDE EFFECTS AT ONCE AND ENDED UP IN ER ROOM FOR A DAY. THOUGHT I WAS HEART ATTACK, BUT TURNED OUT TO BE ACID REFLUX. I HAD FOOT SYNDROME FOR ABOUT FOUR DAYS AND TOOK BENADRYL. NO PROBLEMS NOW.
  • SHIRLMUNSON
    SHIRLMUNSON Member Posts: 2
    woody
    I AM IN THE STUDY AT HUOUSTON FOR SORAFENIB. I DIDN'T GET CHOSEN FOR BOTH. I AM GETTING ALONG FINE WITH THE SORAFENIB ALONE. I WAS DISAPPOINTED I DIDN'T GET CHOSEN FOR BOTH. SEPT. 20TH I WILL HAVE CT SCANS AND ALL OTHER TESTS FOR THE FIRST TIME. I AM WORKING WITH DR JONASCH AT MD ANDERSON. WHO ARE YOU WITH? HOW MANY OTHER PEOPLE ARE YOU TALKING TO? I STARTED TAKING SORAFENIB JULY 25TH TWICE A DAY PLUS VIT B6. I WAS DIGNOSED WITH KIDNEY IN 2004 AND HAD ONE KIDNEY REMOVED AND THEY SAVED 3/4 OF OTHER ONE. OK FOR A YEAR THEN IT DECIDED TO GO ELSEWHERE MY LUNGS. TWO SPOTS TOP OF LEFT LUNG AND INBETWEEN LUNGS IN THE CENTER OF CHEST. I HAVE GOTTN ALONG PRETTY WELL AFTER MY FIRST BAD EXPERIENCE. I THOUGHT I WAS HAVING ALL THE SIDE EFFECTS AT ONCE AND ENDED UP IN ER ROOM FOR A DAY. THOUGHT I WAS HEART ATTACK, BUT TURNED OUT TO BE ACID REFLUX. I HAD FOOT SYNDROME FOR ABOUT FOUR DAYS AND TOOK BENADRYL. TAKE CARE. SHIRL [email protected]
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