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GBM. Tips for kids?
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Apr 20, 2005 - 10:01 am
Hi! I am 26 yo with a 5 yo daughter. I was recently diagnosed with a GBM grade 4, I have had surgery and radiation. I will begin chemo shortly. I have been very open with my daughter and told her the truth whenever she has had any questions, maybe not always the whole truth.... |
Joined: Apr 2005
Re: GBM. Tips for kids?
I am the caregiver for my Mom who has GBM4 and I havc a 9 year old daughter. Mom just came home after radiation and chemo not working. Cait has been told that the prognosis wasn't good; but, not in those terms. We are Christians, and all her grandparents [except my Mom] are deceased. We have explained what we believe. She has no trouble with that since she understands that I am old [49] and grandma is "very old" and she used to tease Mom. What she is having trouble with is articulating [she is a child] is Mom dying in our house. We have just tried to give her special time for just her and listen. It is tough, especially with a child so young as yours. Many hospices and nursing agencies [your local hospital could tell you] have special programs for kids [camp, counselors].
I wish I could be more help.
Lisa
Joined: Apr 2005
Re: GBM. Tips for kids?
Thank you Lannie. We live at a small place and the hospital can not provide much help, besides we just moved to England from sweden and she has not really got into the lingo yet. I am grateful for having the opportunity to spend a great amount of time with her and she is very brave and cheery around me. She firmly believes we become angels when we die wich is helpful but I still worry about her. Thank you for listening. Keep you and your family in our thoughts and prayers.
Joined: Mar 2005
Re: GBM. Tips for kids?
My brother (36) has GBM, he has had 3 surgeries and has been told they will do no more. He has a 6 year old son. I think one thing they have done is gotten some books written specifically for kids about cancer. Maybe you could do a search on the internet for something like that?
shelly
Joined: Mar 2005
Glioblastoma death?
My brother has GBM and is at the end of any treatments they can do. I was wondering if anyone could give me an idea what to expect in the coming months.
shelly