Apr 06, 2005 - 8:06 pm
I just finished 9 rounds of taxol/carbo, have felt rotten for 8 months, had debulking. I've had extreme bone pain, fatigue, hair loss, etc. I'm stage 4 oc. My gyn/onc Dr now wants me to start tamosifen. In researching this drug I find similar side effects and lots of people who say "I had to stop taking it" but don't say why. Frankly I'd like to find my baseline, see if it's possible for me to feel at all good, before I start something new. Tamoxifen seems to be mainly for breast ca. I'm 54. With the limits of stage 4 I do't want to live the rest of my life in misery, I'll take quality over quantity of life. Anyone else tried this drug? I'm afraid my Dr. maybe having trouble letting go. Any info will be much appreciated.