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Hair Loss

cmcl's picture
Posts: 79
Joined: Jan 2004

I have one treatment left of Oxali/5FU/LEV. I did not lose all my hair. but lost a lot, it's very thin. I thank God I started with a good head of hair. It's really not noticeable to people who don't know me. I was just wondering when I'll notice it getting back to normal. I haven't had a haircut since July and colored since June.
Any advise?

nanuk's picture
Posts: 1362
Joined: Dec 2003

Carolyn: everybody's different, but my wife lost all
of her hair during treatment, but got it all back and twice as thick and curly!(it was straight before) This was 16 years ago, and she was on 5fu.. Bud

Posts: 24
Joined: Aug 2003

Did they premedicate you with decadron (or other steroid) before each infusion? Steroids are well known to cause hair thinning. It was so significant with me, I had them stop the premedication. I was never nauseated, so I guess I didn't need it anyway.

BTW I started out with thin, straight blonde hair, and although it didn't come back curly, it is thicker than it has ever been in my life.

Good luck


cmcl's picture
Posts: 79
Joined: Jan 2004

I do take Decadron as a premed, as well as a few others, and for a couple of days after treatment, but I REALLY need all the anti-nausea meds I can get. I didn't know that about those meds.
How long did it take before you noticed your hair coming back?
Thanks for the info!

Posts: 12
Joined: Jan 2004

I lost most of mine before the oxalplatin. I was on the camptosar. Then I shaved it because it was coming out in hanks. It is growing back in very thick, even though I am on the oxalplatin now. The color is darker, it isn't long enough to know if it is curly yet. BTW, congratulations on going to your last treatment.


spongebob's picture
Posts: 2598
Joined: Apr 2003

Ahoy, Carolyn -

Wooo-Hooo - last treatment! Go out and have a BIG sushi dinner to celebrate!

My hair got pretty thin but I didn't lose it all. I love to tell the story about how when my onc told me I would probably lose some of my hair during treatments, I asked if we could just target the hair on my back. He didn't understand - oh well somtimes a joke is lost on people! Anyway, I'm a military guy so my hair is kept really short anyhow. I did notice that after about a month I was having to get haircuts more frequently. If you want a success story regarding hair, check out Stacy's (stacygleaso) webpage and look at all of her hair!

Best wishes to you!

- SpongeBob

Posts: 20
Joined: Jul 2003

I was on the same drugs as you and lost a bunch of hair, but like some others here, most people didn't notice it (although I certainly did!). My hair started growing back almost immediately after chemo. Now I'm to the stage where I have goofy patches of hair sticking out of my head (I'm 6 months out of chemo). I'm using hair gel to smooth it down.

Posts: 176
Joined: Mar 2003

So glad to hear you only have 1 treatment left. As far as hair right before my first chemo treatment I had my hair cut very short so if I was going to lose it it wouldn't be in large chunks as it was pretty long, but I never lost it and for the rads and 5FU I never lost it, now with the same as you are getting I still haven't lost it maybe because I can't take the decadron,also in regards to coloring I just let it grow in and it was a pretty white so I have decided not to color anymore. Good luck on your last treatment and kept in touch. Maybe its the air in Jersey lol
Another Jersey girl

Posts: 31
Joined: Feb 2004

Congrats on only one treatment left! Isn't it great to be looking forward to the last one? I agree that everyone is different, but as for my own experience with hair loss, my straight, graying locks started falling out in March, in big wads--there was hair EVERYWHERE! But suddenly in July, as my mom and I were getting ready to go for my treatment,I asked her if it was my imagination, or was my hair growing back in? Indeed, it was growing back in. Now it's dark and curly, and it seems to grow faster than it ever did before.

Good luck.


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