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Jun 24, 2003 - 5:42 pm
My husband Ron, who is 45, has a high grade oligodendroglioma. He was diagnosed in May 92 and has done extremely well considering. He has had 6 operations, radiotherapy and chemotherapy - PCV, gliadel wafers and Temozolomide. |
Joined: Jul 2003
Re: oligodendroglioma -last hope
It's been two months since you posted, I hope that you have found some answers. My advice, if you can find a place that offers hope (Duke Brain Tumor Center is where my mom is being treated) ignore the doctors and get there. Have you read "Making Miracles Happen" by Gregory Smith...it's about dealing with the medical profession and getting the best treatment that is available. It was a huge eye opener for me. God bless.
Joined: Sep 2003
Re: oligodendroglioma -last hope
I am in therapy (radiation) for oligodendroglioma. I can only offer alternatives to seeking third and fourth opinions. There are alternative treatments out there that you have probably tried. - Antineoplastons - Vitamin B-17 - Apricot kernels - A new one that I have heard about is Delta-24-RGD... a virus that only kills cancer cells... God Bless and I hope for the best.
Joined: Oct 2003
Re: oligodendroglioma -last hope
Is it possible for you to find out who the best docs are in Britain and Western Europe, then get second opinions from those physicians by sending his medical info to them?